Perplexed But Devoted

Estimated reading time: 14 minutes, 46 seconds

Abandonment?

Six months after the cancer diagnosis, I was beginning to feel comfortable as Jan’s caregiver. I had wrapped her in the blanket from her Soul Sisters, which had all their names inscribed. Let me know if you need anything,” I asked as Jan rested on the loveseat while I finished the dishes. Why don’t you ask Siri to play your playlist or a favorite artist?” Jan complied, and Joni Mitchell’s voice soon filled our tiny apartment. 

I whispered thank you, Siri, for playing music that would soothe Jan’s soul.

Closing the dishwasher, I opened the pill box and selected the medicine she needed tonight. I walked over with a glass of water.

I never thought I would be taking so many pills.

“If you want to regain your health, the pills are unavoidable.” 

She nodded her head and took the four pills one after the other.

“My love, what can I do to help you?”

She shook her head negatively as she handed me the glass. 

“I want to be cancer free, and there is nothing more you can do to help me achieve that.”

As I returned the glass to the kitchen, I said, “I am ready, willing, and able to do whatever is required to help you.”

“Richard, you already do so much to help me; I am afraid you will hate me one day.” I started to speak, but she did not give me a chance. 

“You are doing everything for me. You shop, cook, clean, and help me up the sta rs. You even made Matzo Brei better than I can,” Jan exclaimed. “I could not fight cancer without you. But I worry you are overwhelmed and will decide that I am too much to manage.”

She paused for a moment, and I shook my head and said, “I love you, and I always will.”

“I know you love me. Over the years, I have been mean to you, and you never stopped loving me. But my cancer is an enormous burden that you are carrying on your shoulders. Many people leave their spouses when they are sick. I would understand if you wanted to leave me.

Jan started weeping, and I tried to hold my tears inside my eyelids.

I knew what I wanted to say, but I was voiceless. I knew I would not deal with Jan’s comment about being mean to me as I had always ignored her claims.

I kneeled in front of Jan and kissed her lips.

Finally, I could form words and have them exit my mouth.

“I am not like some generic guy; I am your husband. I may not have said sickness and health when in my wedding vows, but I am here and will always be here for you. I am not going anywhere today, tomorrow, or ever.”

Jan smiled as tears flowed down her cheeks. 

Between sobs, she repeated, “I love you! I love you!”

I embraced her and kissed the top of her head.

I still remember when we met, and you kissed the top of my head. No one had ever kissed me there.”

“Yes, I remember that night. When I kissed you, I promised myself and God that I would love, honor, and cherish you throughout my life. I have kept that promise daily, and I am not changing my mind because you have cancer.”

“There is no way I could fight cancer without your love.”

I held her as tight as I could, and between mutual sobs, we kissed each other like we did the night we met.


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12 comments add your comment

  1. Excellent story…I never heard of any couple making almost the same salary!!

    Funny and sad story, but I enjoyed it!!

    • Thanks, Hugo, for your comment.

      Jan and I chose similar work focused on repairing the world. As a result, our salaries were both modest. That we ended with wages almost the same at the end is not all that surprising. If Jan had lived and continued to work at the YWCA for the last two years, her total compensation would have surpassed mine.

      I agree that the story, like life, is humorous and sad simultaneously. I write from my heart, and the articles reflect the complexity of the lives Jan and I lived and how life is complicated.

      The love that Jan and I shared will never die.

      In closing I wanted to share share a poem from Evergreen by Kirsten Robinson. Her poems are a tribute to the enduring resilience of human nature as we cycle through times of light and darkness, much like nature itself.

        Give thanks for all
        that is good and beautiful;
        the gifts you carry
        people who lift you up
        your big, big love
        faith and trust that your life
        is unfolding as it should

        Give thanks for all
        that has been difficult and hard;
        trials tribulations tears
        tests of self strength fears
        all of the unknowns and days
        that broke you

        Without the darkness
        you would not have
        learned to appreciate the light

      Thanks for your friendship and support.

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On the Rooftop: A Novel

Read: November 2022

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On the Rooftop: A Novel

by Margaret Wilkerson Sexton

On the Rooftop: A Novel by Margaret Wilkerson Sexton, is a stunning novel about a mother whose dream of musical stardom for her three daughters collides with the daughters’ ambitions for their own lives—set against the backdrop of gentrifying 1950s San Francisco. The first few pages moved glacially and then the story unfolded fully and became a page-turner that I highly recommend.

After hearing Ms. Sexton’s interview on Get Lit with All Of It, a monthly on-air, social media, in-person, and live-stream book club hosted by Alison Stewart of WNYC’s All Of It, I picked up the book. The novel had been on my to-read list.

The novel was loosely based on Fiddler on the Roof and it worked exceedingly well. Vivian is the overbearing mother and the daughters who have their own dreams and goals. With urban renewal, AKA Urban Renewal, as the backdrop, the novel was one that I could not put down.

The small section of the song that Esther writes so she can sing for her people, was a song I wish I could hear in its entirety. That Chole choose to sing it for final audition made it even more powerful.

You put words to the music inside my heart You showed me the world could be its own art I’d never felt myself so whole before I’d never known how much I could reach for.

The Goodreads summary provides an overview,

At home they are just sisters, but on stage, they are The Salvations. Ruth, Esther, and Chloe have been singing and dancing in harmony since they could speak. Thanks to the rigorous direction of their mother, Vivian, they’ve become a bona fide girl group whose shows are the talk of the Jazz-era Fillmore.

Now Vivian has scored a once-in-a-lifetime offer from a talent manager, who promises to catapult The Salvations into the national spotlight. Vivian knows this is the big break she’s been praying for. But sometime between the hours of rehearsal on their rooftop and the weekly gigs at the Champagne Supper Club, the girls have become women, women with dreams that their mother cannot imagine.

The neighborhood is changing, too: all around the Fillmore, white men in suits are approaching Black property owners with offers. One sister finds herself called to fight back, one falls into the comfort of an old relationship, and another yearns to make her voice heard. And Vivian, who has always maintained control, will have to confront the parts of her life that threaten to splinter: the community, The Salvations, and even her family.


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Vanishing World

Read: April 2025

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Vanishing World

by Sayaka Murata

Today, I began reading Sayaka Murata‘s Vanishing World, translated by Ginny Tapley Takemori. This novel, from the author of the bestselling literary sensations Convenience Store Woman and Earthlings, presents a surprising and highly imaginative story set in an alternate version of Japan where sexual relations between married couples have disappeared, and all children are conceived through artificial insemination.

Sayaka Murata has established herself as a remarkable observer of society’s peculiarities, delving into our contemporary world with bizarre and unsettling insights. Her portrayals of a contentedly unmarried retail worker in Convenience Store Woman and a young woman who believes she is an alien in Earthlings have resonated with millions of readers globally. In Vanishing World, Murata takes her vision to a bold new level, envisioning an alternative Japan where attitudes toward sex and procreation diverge significantly from our own.

As a girl, Amane is horrified to learn that her parents “copulated” to conceive her rather than using artificial insemination, which became the norm in the mid-twentieth century. She seeks to escape what she perceives as her mother’s indoctrination into this peculiar “system.” Despite her efforts, Amane’s attractions to both anime characters and real people carry an undeniable sexual weight.

As an adult in a suitably sexless marriage—where sex between married couples is regarded as taboo, akin to incest—Amane and her husband, Saku, decide to relocate to a mysterious new town called Experiment City, or Paradise-Eden. In this community, all children are raised collectively, and every person is considered a mother to all children. Men are beginning to experience pregnancy through artificial wombs that exist outside their bodies, resembling balloons, and children are nameless, referred to simply as “Kodomo-chan.” Will this new world finally cleanse Amane of her strangeness?


Sayaka Murata is the author of several books, including Convenience Store Woman, which won the Akutagawa Prize, Earthlings, and Life Ceremony. Freeman has recognized her as a “Future of New Writing” author, and Vogue Japan has honored her as a Woman of the Year.

Ginny Tapley Takemori has translated works from more than a dozen Japanese writers, including Ryu Murakami. She resides at the foot of a mountain in Eastern Japan.



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Old Babes in the Wood: Stories

Read: March 2023

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Old Babes in the Wood: Stories

by Margaret Atwood

Old Babes in the Wood: Stories by Margaret Atwood is a collection of remarkable tales, which delight, illuminate, and are quietly devastating. I especially found the stories about Nell and Tig compelling and engaging. Widow describes a letter Nell almost wrote to a friend after Tig is gone. Nell sounded like me when she said, “the warping or folding of time. In some parts of this refolded time, Tig still exists, as much as he ever did.”

The letter Nell is writing to a friend she will never be sent because it speaks to the harsh reality that grief imposes upon us.

Margaret Atwood writes as Nell,

Have I gone into the dark tunnel, dressed in mourning black with gloves and a veil, and come out the other end, all cheery and wearing bright colors and loaded for bear?

No. Because it’s not a tunnel. There isn’t any other end. Time has ceased to be linear, with life events and memories in a chronological row, like beads on a string. It’s the strangest feeling, or experience, or rearrangement. I’m not sure I can explain it to you.

As much as it might have appeared that I was in a dark tunnel after Jan died, I was not and am not now. There is indeed no defined end to the grief journey.

We all must learn how to live without our loved ones. The pathway I have chosen may not work for anyone else.

The earlier Nell and Tig stories are memories about their lives, reminding me of how I wrote about how Jan and I met and eventually married.

I have always enjoyed reading Atwood‘s writing, including The Handmaid’s Tale and The Testaments. I highly recommend Old Babes in the Wood: Stories by Margaret Atwood!

Old Babes in the Wood was my twenty-third book of the year and fulfilled my Goodreads 2023 Reading Challenge, but it will not end my reading this year. 

The Goodreads summary provides an overview,

Margaret Atwood has established herself as one of the world’s most visionary and canonical authors. This collection of fifteen extraordinary stories–some of which have appeared in The New Yorker and The New York Times Magazine–explores the full warp and weft of experience, speaking to our unique times with Atwood’s characteristic insight, wit, and intellect.

The two brave sisters of the title story grapple with loss and memory on a perfect summer evening; “Impatient Griselda” explores alienation and miscommunication with a fresh twist on a folkloric classic; and “My Evil Mother” touches on the unbelievable, examining a mother-daughter relationship in which the mother purports to be a witch. At the heart of the collection are seven extraordinary stories that follow a married couple across the decades, the moments big and small that make up a long life of uncommon love–and what comes after.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Checkout 19: A Novel

Read: December 2022

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Checkout 19: A Novel

by Claire-Louise Bennett

Checkout 19: A Novel by Claire-Louise Bennett, a New York Times Best Ten Best Books of 2022; the newspaper highlights the novel’s “unusual setting: the human mind — a brilliant, surprising, weird and very funny one. All the words one might use to describe this book — experimental, autofictional, surrealist — fail to convey the sheer pleasure of ‘Checkout 19.'” I fully agree with this description and found myself living in my mind.

Since Jan died in May of 2021, I have found myself with no one to talk to about the day-to-day events that consume so much of our lives. Checkout 19: A Novel reminded me that I have only been carrying those intimate conversations in my mind. Is it surreal? Yes. Yes, it is. Reading this novel helped me to accept the importance of those conversations. The new characters and scenarios I conjure are less creative than Ms. Claire-Louise Bennett’s

Goodreads describes Checkout 19: A Novel as the adventures of a young woman discovering her genius through the people she meets–and dreams up–along the way. Checkout 19 is a radical affirmation of the power of the imagination, and the magic escapes those who master it open to us all.

I recommend this book.

The Goodreads summary provides an overview,

In a working-class town in a county west of London, a schoolgirl scribbles stories in the back pages of her exercise book, intoxicated by the first sparks of her imagination. As she grows, everything and everyone she encounters become fuel for a burning talent. The large Russian man in the ancient maroon car who careens around the grocery store where she works as a checkout clerk, and slips her a copy of Beyond Good and Evil. The growing heaps of other books in which she loses-and finds-herself. Even the derailing of a friendship, in a devastating violation. The thrill of learning to conjure characters and scenarios in her head is matched by the exhilaration of forging her own way in the world, the two kinds of ingenuity kindling to a brilliant conflagration.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Reluctantly Home

Read: June 2022

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Reluctantly Home

by Imogen Clark

Reluctantly Home by Imogen Clark is about dealing with the past—and finally facing the future-a topic that was appealing to me. Thirteen months into my grief journey, I live between a perfect past and an unknowable future. Will Reluctantly Home by Imogen Clark help me manage these two worlds?

Surprisingly it did. Unlike the two protagonists, I am mourning losing Jan, the love of my life. However, the neuromapping in my brain made it impossible to understand how to continue to love Jan and separate that from the time and space connections that made me believe she would return at any moment.

Reluctantly Home by Imogen Clark helped me understand that grief should and cannot define us forever. I recommend this book to all readers, not only those on a grief journey like mine.

The Goodreads summary provides an overview.

Pip Appleby seems to have it all, with her prestigious job as a human rights lawyer and her enviable London home. But then a tragic accident stops her life in its tracks, and everything changes instantly. Retreating to her family’s rural farm and the humble origins she has been trying to hide, Pip is haunted by what she has done.

When she discovers the diary of actress Evelyn Mountcastle in a box of old books, Pip revels in the opportunity to lose herself in someone else’s life rather than focus on the disaster that is her own. But soon, she sees parallels—Evelyn’s life was also beset by tragedy, and, like Pip, she returned to Southwold under a dark cloud.

When Pip and Evelyn’s paths cross in real life, they slowly begin to reveal the hidden stories holding them back. Can they help each other forgive what happened in the past and, perhaps, find happiness in the future?


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Playground: A Novel

Read: December 2024

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Playground: A Novel

by Richard Powers

I started reading “Playground: A Novel” by Richard Powers today. This remarkable new novel comes from the Pulitzer Prize-winning and New York Times best-selling author of “The Overstory” and “Bewilderment.” Even more astonishing is that this marks my three hundredth book since I embarked on this reading journey on January 1, 2019! I’m also enjoying “Judaism Is About Love,” which means “Playground: A Novel” will be my 98th or 99th book in 2024.

In this sweeping, panoramic novel, four lives intertwine, showcasing Richard Powers at the height of his skills. Twelve-year-old Evie Beaulieu finds herself at the bottom of a swimming pool in Montreal, strapped to one of the world’s first aqua lungs. Ina Aroita grows up on naval bases across the Pacific, finding solace in art as her only home. At an elite high school in Chicago, two opposites bond over a three-thousand-year-old board game: Rafi Young gets lost in literature, while Todd Keane’s work leads to a startling breakthrough in artificial intelligence.

Their paths converge on the history-laden island of Makatea in French Polynesia, once known for its phosphorus deposits that helped sustain the world. This tiny atoll has been chosen for a groundbreaking venture: a plan to create floating, autonomous cities to venture out onto the open sea. However, the island’s residents must vote to approve the project or turn the seasteaders away.

Set against the world’s most enormous ocean backdrop, this awe-inspiring book delves into the last wild place we have yet to colonize, exploring a still-unfolding oceanic narrative. It beautifully weaves rich characters, profound themes of technology and the environment, and a deep examination of our shared humanity—and exploration that only Richard Powers can deliver.



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