Each year, I set out on a meaningful pilgrimage to the top of the One Gateway Center in Newark, a tribute to my beloved wife, Jan, and to everyone touched by the harsh reality of blood cancers. It’s staggering to think that every three minutes, someone in the U.S. receives a diagnosis of leukemia, lymphoma, or myeloma, and heartbreakingly, someone loses their fight every nine minutes.
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“Penthouse, please,” I requested, my finger hovering over the button of the self-service elevator. The compact space could barely accommodate three people, yet somehow, it felt roomy. Jan stepped in beside me, her eyes sparkling with anticipation, and one of her friends joined us. In that moment, I couldn’t help but admire her. She had always captivated me, but on our wedding day fifty years ago, she was nothing short of breathtaking.
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“Richard!” A familiar voice called out just as I was about to step into the narrow alleyway between Sofia Color Lounge and the soon-to-open coffee shop where Beadsmith once stood. I turned around and saw—Eric! A genuine smile spread across my face as I recognized him. He was pushing a stroller, his daughter peeking out with bright, curious eyes.
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Rituals often become another item on our to-do lists, rushed and stripped of their more profound significance. When we overlook their meaning and purpose, we hinder our ability to heal from loss and navigate the complexities of grief.
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by Atul Gawande
Before departing for Toronto to celebrate our 44th Wedding Anniversary, I went through the e-library. Everything on my list that I wanted to read was not available except for this book. Being Mortal by Atul Gawande is the book I read on our vacation before Jan’s diagnosis of non-Hodgkin Large B-cell Lymphoma.
Selecting Being Mortal might seem an accidental choice to some, and I believe it was a divine intervention. It prepared me to be a caregiver to my wife over the nineteen months of her fight with cancer. It helped me focus on the good life that my wife lived and not the pain and suffering.
Atul Gawande describes his book as “riveting, honest, and humane. Being Mortal shows that the ultimate goal is not a good death but a good life – to the very end.”
When I read the book, I wondered what I could have done to help my mother in her final years. The book offers an excellent overview of how nursing homes and assisted living facilities have struggled to meet the needs of their residents.
Dr. Gawande provides an in-depth overview of the benefits of hospice care. Although I knew of this option, reading this book helped me understand that I was ready for hospice when my wife came home for the last time.
He reminds us that “when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should.” As he writes in the book, the current system does not work and, in many cases, actually shortens life.
This book has had a lasting impact on my life. It allowed me to be a loving caregiver to my wife when she needed it more than anything else. I read it when it would be most beneficial to me.
I highly recommend this book.
Atul Gawande is the author of several bestselling books: Complications, a finalist for the National Book Award; Better; The Checklist Manifesto; and Being Mortal. He is also a surgeon at Brigham and Women’s Hospital in Boston, a staff writer for The New Yorker, and a professor at Harvard Medical School and the Harvard School of Public Health. He has won the Lewis Thomas Prize for Writing about Science, a MacArthur Fellowship, and two National Magazine Awards. In his work in public health, he is the Founder and Chair of Ariadne Labs, a joint center for health systems innovation, and Lifebox, a nonprofit organization dedicated to making surgery safer globally. He is also the chair of Haven, where he served as CEO from 2018 to 2020. He and his wife have three children and live in Newton, Massachusetts.
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by Isabel Waidner
Today, I began reading “Corey Fah Does Social Mobility: A Novel” by Isabel Waidner. The book is about Corey Fah, a writer whose novel has just won the Fictionalization of Social Evils prize. Despite this achievement, the trophy and funds with the award still need to be in reach. The novel celebrates radical queer survival and challenges false notions of success.
Corey, their partner Drew, and their pet spider, Bambi Pavok, embark on a quest to find an elusive trophy with neon-beige color and UFO-like qualities. This journey takes them back to their childhood in the forest and includes a stint on a reality TV show. While facing the horrors of wormholes and time loops, Corey discovers the difference between a prize and a gift in a complex way.
Following the Goldsmiths Prize–winning Sterling Karat Gold, Isabel Waidner’s bold and buoyant new novel is about coming into one’s own, the labor of love, the tendency of history to repeat itself, and what ensues when a large amount of cultural capital is suddenly deposited in a place it has never been before.
by Paul Lynch
In 2024, I started my reading journey with the Booker Prize 2023 winner – Prophet Song, by Paul Lynch. The book presents a chilling and astonishing outlook of a nation sliding into authoritarianism while also painting a profoundly humane portrait of a mother’s struggle to keep her family together. I have not set a goal of the number of books to read in 2024, but this is an excellent first-day pageturner.
It all begins on a dark, rainy evening in Dublin when Eilish Stack, a scientist and mother of four, opens her front door to two officers from Ireland’s newly formed secret police. They are there to interrogate her husband, a trade unionist. Ireland is falling apart as the government is gradually turning towards tyranny. As her world crumbles and the people she loves disappear, Eilish faces the dystopian reality of her country. How far is Eilish willing to go to protect her family? And what, or who, is she ready to leave behind?
The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.
I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.
by Lauren Fox
Send for Me by Lauren Fox. Send for Me is an achingly beautiful work of historical fiction that moves between Germany on the eve of World War II and present-day Wisconsin, unspooling a thread of love, longing, and the constant push and pull of family. Annelise is a dreamer: imagining her future while working at her parents’ famous bakery in Feldenheim, Germany, anticipating all the delicious possibilities yet to come. There are rumors that anti-Jewish sentiment is on the rise, but Annelise and her parents can’t quite believe that it will affect them; they’re hardly religious at all. But as Annelise falls in love, marries, and gives birth to her daughter, the dangers grow closer: a brick was thrown through her window; a childhood friend who cuts ties with her; customers refuse to patronize the bakery.
This novel explores mothers and daughters, duty and obligation, hope and forgiveness of four generations of mothers and daughters – Klara, Annelise, Ruth, and Clare.
Klara is the matriarch who remains in Germany, where she dies at the beginning of the war. Annelise is her daughter who becomes a refugee in Milwaukee. The poignant letters from her mother ask for help to leave Germany and reunite with her daughter and granddaughter Ruthie, tying together the four generations.
The letters are found by Clara, who pays to have them translated. Can we ever escape from the past, and how does it shape our futures.
I enjoyed reading this book as I prefer historical fiction, especially about the rise of Germany and antisemitism.
Send for Me is also a reminder that we are refugees.
Our lives are forever intertwined between two cultures, the past and the future.
I highly recommend Send for Me.
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by Diana Evans
I just started reading A House for Alice: A Novel by Diana Evans. The story is set against a complicated political backdrop but is filled with hope, humor, and humanity. A House for Alice explores the scars of grief and betrayal across generations and reveals the secrets we keep from our loved ones.
The novel opens with two tragedies that occur in London. The first is the Grenfell Tower fire, which took many lives. The second is the death of Cornelius Winston Pitt, a family patriarch who dies alone. A House for Alice is a beautiful and poignant story about a family of women shaken by loss and searching for closure.
The family matriarch, Alice, has lived in England for fifty years but longs to spend her remaining years in her homeland, Nigeria. Her three daughters are divided on the matter. The youngest daughter, Melissa, is also struggling with the aftermath of her failed relationship. The family’s foundational pillars of trust, love, and cultural identity begin to weaken as they navigate these difficult times.
The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.
I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.
by Timothy Egan
The Worst Hard Time: The Untold Story of Those Who Survived the Great American Dust Bowl by Timothy Egan was initially a book I selected from the e-library because nothing else I wanted to read was available. Once I started reading the book, I could not put it down.
Now that we have had the warmest summer since 1936 during the dust bowl, the book has even more meaning.
According to The New York Times,
The dust storms that terrorized the High Plains in the darkest years of the Depression were like nothing ever seen before or since. Timothy Egan’s critically acclaimed account rescues this iconic chapter of American history from the shadows in a tour de force of historical reportage. Following a dozen families and their communities through the rise and fall of the region, Egan tells of their desperate attempts to carry on through blinding black dust blizzards, crop failure, and the death of loved ones. Brilliantly capturing the terrifying drama of catastrophe, Egan does equal justice to the human characters who become his heroes, “the stoic, long-suffering men and women whose lives he opens up with urgency and respect.”
With the likelihood of more ecological catastrophes in the immediate future, this is a book I highly recommend.
