Jan and Ana

Jan and Ana Visit During Hospice

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Home for Hospice

Estimated reading time: 11 minutes, 54 seconds

How do we tell Jan?

Walking home, I could not feel my legs or my feet. My legs moved correctly, but each step felt like a mile. When I stood in front of the building, Mike and Jon were parking. I texted Rabbi Renee while I waited for them to cross the street. 

Rabbi, do you have time for a quick call?

April 6, 8:45 pm

Before we entered the apartment, the Rabbi was calling me. 

“Rabbi Renee, how are you? My sons are here. Can I put you on speakerphone?”

With every ounce of strength, I had left, I explained what we had heard from Dr. Strair.

“She is coming home soon for hospice and only has a few weeks to live.”

“Jan is such a strong woman and has fought her cancer with all her heart. I cannot believe this!”

The boys filled her in on what Dr. Strair had said while I tried to eat. I was hungry, but each bite was tasteless. 

“We need to talk about how we will tell her tomorrow,” I interjected. “With the COVID restrictions, only I can be with her.”

“Rabbis are always allowed in the hospital.”

“Dr. Strair said he would work with Dr. Saksena to allow Mike and I to be there.”

I am sure the doctor had said that, but I could not remember much about the call. 

We agreed that we would coordinate a time with the two doctors so that we could support Jan once she heard the news.

“I could not do this without the three of you.”

“I love Jan and your sons; we will all be there to help you!”

We ended the call, and we all attempted to sleep. As much as I knew the lymphoma was aggressive, I had never anticipated that the love of my life would not survive. Three days ago, I was sure she was on the road to recovery. 

“Listening to her talk to Jon and feeling the warmth of her smile, she seemed like the healthiest she had been in years. Her voice was like the one I heard the day we met. Strong, confident, reassuring, and soothing.” 

Help Me Help Jan

What had changed in seventy-two hours?

I lay in bed in a cold sweat the rest of the night. I need to be fully present for Jan. I thought I was about to cry, but nothing came out of my tear ducts. I kept repeating that I must be fully present for Jan. I have to love her more now than ever. 

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A Sovereign People: The Crises of the 1790s and the Birth of American Nationalism

Read: February 2019

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A Sovereign People: The Crises of the 1790s and the Birth of American Nationalism

by Carol Berkin

A Sovereign People: The Crises of the 1790s and the Birth of American Nationalism by Carol Berkin, Presidential Professor American Colonial and Revolutionary History; Women’s History Professor at Baruch College, focuses on four crises in the first decade. Most historians view these are part of the early partisan debates in America.

Professor Berkin takes a different perspective. She focuses on how the Whiskey Rebellion, the Genet Affair, the XYZ Affair, and the Alien and Sedition Acts helped build nationalism. Despite the partisan divisions, both sides could find solutions that helped America survive its first decade. The failure to resolve anyone of these could have doomed America to failure.

The Federalists – Washington, Hamilton, and Adams – were the leaders of that first decade and managed the successive crisis of sovereignty.

A Sovereign People is one of four books from my first One Day University class.

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The Night Swim

Read: January 2022

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The Night Swim

by Megan Goldin

The Night Swim by Megan Goldin is a book that I thought would be different from the last two books – Sarah’s Key and Send for Me – that I had read. Both of those were directly or indirectly about the Holocaust. I often selected this book from the e-library based on reviews and reading the sample section.

The Night Swim was a page-turner, but it also was about numerous social issues that Jan ad I had spent our lives working to resolve.

Among these are male violence and its impact directly and indirectly on women. Rachel Krall, a podcaster, spoke about how male violence had impacted her. Two of the other female characters were either a victim or the sister of a victim. Having spent my life trying not to exhibit male violence, I was reminded while reading his novel of how painful it can be and the impact of micro-aggressions.

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I missed the role of the Nightingale as it appears more as a background piece and not a primary role. Of course, this is a subtle reference by the author to Greek mythology and the rape of Philomela by her sisters’ husband. Her assailant cut out her tongue to prevent her from speaking of the crime. She was turned into a nightingale to escape. That is why female nightingales cannot sing. The one in the novel never sings and is rescued by Rachel at the end of the book.

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Hannah’s narrative is initially only in letters and then emails.

This format helped move the story along and make the story unfold in unique ways.

The following is a summary from Goodreads.

After the first season of her true-crime podcast became an overnight sensation and set an innocent man free, Rachel Krall is now a household name―and the last hope for thousands of people seeking justice. But she’s used to being recognized for her voice, not her face. Which makes it all the more unsettling when she finds a note on her car windshield, addressed to her, begging for help.

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Electrifying and propulsive, The Night Swim asks: What is the price of a reputation? Can a small town ever right the wrongs of its past? And what happened to Jenny?

I highly recommend this novel and look forward to reading more of Ms. Goldin’s work.

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Read: November 2022

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Lucy by the Sea: A Novel

by Elizabeth Strout

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It has been said that the second year of widowhood is worse than the first—the idea being, I think, that the shock has worn off and now one has to simply live with the loss, and I had been finding that to be true, even before I came to Maine with William. But now there were times I felt that I was just learning of David’s death again for the first time. And I would be privately staggered by grief. And to be in this place where David had never been (!)—I was really dislocated is what I mean.

And I also understood: Grief is a private thing. God, is it a private thing.

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The Goodreads summary provides an overview,

As a panicked world goes into lockdown, Lucy Barton is uprooted from her life in Manhattan and bundled away to a small town in Maine by her ex-husband and on-again, off-again friend, William. For the next several months, it’s just Lucy, William, and their complex past together in a little house nestled against the moody, swirling sea.

Rich with empathy and emotion, Lucy by the Sea vividly captures the fear and struggles that come with isolation, as well as the hope, peace, and possibilities that those long, quiet days can inspire. At the heart of this story are the deep human connections that unite us even when we’re apart–the pain of a beloved daughter’s suffering, the emptiness that comes from the death of a loved one, the promise of a new friendship, and the comfort of an old, enduring love.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Read: November 2021

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Black Sun – Between the Earth and Sky

by Rebecca Roanhorse

Black Sun by Rebecca Roanhorse.  Black Sun is the first book in the Between Earth and Sky trilogy, inspired by the civilizations of the Pre-Columbian Americas and woven into a tale of celestial prophecies, political intrigue, and forbidden magic.

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Read: April 2023

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The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Read: June 2022

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Midwives: A Novel

by Chris Bohjalian

Midwives by Chris Bohjalian is “a compulsively readable novel that explores questions of human responsibility that are as fundamental to our society now as they were when the book was first published.” Forty years after the book was published, it is just as relevant, if not more so. Indeed, the book’s topics are more relevant today with the current set of decisions by the Supreme Court.

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The Goodreads summary provides a concise overview. 

The time is 1981, and Sibyl Danforth has been a dedicated midwife in the rural community of Reddington, Vermont, for fifteen years. But one treacherous winter night, in a house isolated by icy roads and failed telephone lines, Sibyl takes desperate measures to save a baby’s life. She performs an emergency Caesarean section on its mother, who appears to have died in labor. But what if—as Sibyl’s assistant later charges—the patient wasn’t already dead, and it was Sibyl who inadvertently killed her?

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