Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

Jan Runs Out of Options

“Your mom was very frustrated today,” I told Jon as we set the table for dinner after I visited with his mom on Monday. “I had hoped she would have been as vibrant as she was when I saw her in the ICU on Saturday after the emergency stent surgery. I remain optimistic and want to focus on getting her home and keeping her here.”

Jon looked pensive as he queried me, “What can we do?”

“Well, from what I had seen when she was home, she was weak, and I could not always help her. We may need to look into rehab or more intensive physical therapy at home.”

While we ate dinner, we left those suggestions on the sideboard. They were thoughts that might be easier to discuss on a full stomach. 

We were sitting on the couch after cleaning the dinner dishes. 

“Those are the only options I can see,” said Jon. 

“We should talk to both of the oncologists. They might have ideas.”

Can you reach out to them to set up a call so Mike and I can discuss the next steps?

“Yes, I will text Dr. Strair in the morning and schedule a call.”

Is the physical therapist downstairs the one Mom used?

I said yes. “I will reach out to Karyn in the morning.”

Next Steps Planning

“Jon, let’s see if we can chat with Karyn for a few minutes before getting Mom her milkshake.” I pulled my mask up and stepped into the office of Keating Physical Therapy. As soon as she saw me, Karyn came over to me.

“Do you have a minute to chat with my two sons about the next steps for Jan?”

“Yes, how is she?”

As we walked outside, I gave her a quick update on Jan’s recent hospitalization and surgery. 

After introducing my sons, Jon asked, “We are trying to make the best plans for Mom’s return home. Is there a time we could talk to you about rehab or more physical therapy?

Yes, I would be happy to help with discharge plans,” said Karyn. Your Mom is wonderful, and I would be happy to do what I can to help.

Thanks; let us know the best time for you.

We stopped to get Jan a chocolate milkshake, and the mood was upbeat and optimistic. 

While they prepared the shake, I texted Dr. Strair. 

Both of our sons are in NJ this week. They are concerned, and if it is OK, they might appreciate a brief call to understand the next steps better.

April 6, 2021, 10:13 am

Dr. Strair responded and said we could talk this evening. 

“I will be at Mike’s for dinner,” said Jon.

I nodded as I got into the car and drove to visit Jan. 


Next Page


Pages: 1 2 3 4 5

27 comments add your comment

Share your thoughts and ideas

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Previous Post:

Next Post:

The Jan Lilien Education Fund!

The Fire and the Ore

Read: September 2022

Get this book

The Fire and the Ore

by Olivia Hawker

The Fire and the Ore by Olivia Hawker is a novel set in 1856 when three women—once strangers—come together in unpredictable Utah Territory. Hopeful, desperate, and willful, they’ll allow nothing on earth or Heaven to stand in their way. I have always enjoyed the history of the movement of people across the plains. Tamar, Jane, and Tabitha, along with their shared husband, Thomas Ricks, were real people, and Olivia Hawker compellingly describes them as people living in difficult times.

Olivia Hawker is a descendant of Jane and a former Mormon. She writes eloquently about the unnecessary Utah War (AKA Buchanan’s Blunder) and how the sister-wives grow to love and support each other. Tamar’s sister Patience, although a minor character, wrote a memoir of the time that the author used as a resource.

Reading a compelling historical fiction novel about family, sisterhood, and survival about three women like Jan was an easy choice. It was a page-turner from the first page to the last.

The Washington Post bestselling author of One for the Blackbird, One for the Crow is a compelling novel of family, sisterhood, and survival.

The Goodreads summary provides a good overview,

Following the call of their newfound Mormon faith, Tamar Loader and her family weather a brutal pilgrimage from England to Utah, where Tamar is united with her destined husband, Thomas Ricks. Clinging to a promise for the future, she abides a surprise: Thomas is already wedded to one woman—Tabitha, a local healer—and betrothed to another.

Orphaned by tragedy and stranded in the Salt Lake Valley, Jane Shupe struggles to provide for herself and her younger sister. Out of necessity, with no love lost, she too must bear the trials of a sister-wife. She is no member of the Mormon migration, yet Jane agrees to marry Thomas.

But when the US Army’s invasion brings the rebellious Mormon community to heel, Tamar, Jane, and Tabitha are forced to retreat into the hostile desert wilderness with little in common but the same man—and the resolve to keep themselves and their children alive. What they discover, as one, is redemption, a new definition of family, and a bond stronger than matrimony that is tested like never before.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
The Book of V

Read: October 2021

Get this book

The Book of V

by Anna Solomon

The Book of V by Anna Solomon is a book that I may not have read at another time in my life, and I did find it to be a book that I could not stop reading.

Goodreads summarizes its plot.

Anna Solomon’s kaleidoscopic novel intertwines the lives of a Brooklyn mother in 2016, a senator’s wife in 1970s Washington, D.C., and the Bible’s Queen Esther, whose stories of sex, power and desire overlap and ultimately converge—showing how women’s roles have and have not changed over thousands of years.

Being Jewish, I knew the story of Queen Esther, although this version added new layers of the story that I did not know. The book’s illumination that women’s roles have not changed over thousands of years was something I knew but did not fully understand.

The three characters are very vivid and weave a story that is worth reading.

Lily is a mother and a daughter. And a second wife. And a writer, maybe? Or she was going to be, before she had children. Now, in her rented Brooklyn apartment, she’s grappling with her sexual and intellectual desires while also trying to manage her roles as a mother and a wife.

Vivian Barr seems to be the perfect political wife, dedicated to helping her charismatic and ambitious husband find success in Watergate-era Washington D.C. But one night he demands a humiliating favor, and her refusal to obey changes the course of her life—along with the lives of others.

Esther is a fiercely independent young woman in ancient Persia, where she and her uncle’s tribe live a tenuous existence outside the palace walls. When an innocent mistake results in devastating consequences for her people, she is offered up as a sacrifice to please the king, in the hopes that she will save them all.

I recommend this book.

Subscribe

Contact Us

×
Losing Earth: A Recent History

Read: October 2019

Get this book

Losing Earth: A Recent History

by Nathaniel Rich

Losing Earth: A Recent History by Nathaniel Rich reminds us how close we were to halting the climate emergency, and our failure has resulted in our passing the tilting point. The book “reveals, in previously unreported detail, the birth of climate denialism and the genesis of the fossil-fuel industry’s coordinated effort to thwart climate policy through misinformation propaganda and political influence.”

By 1979, we knew nearly everything we understand today about climate change – including how to stop it. Over the next decade, a handful of scientists, politicians, and strategists, led by two unlikely heroes, risked their careers in a desperate, escalating campaign to convince the world to act before it was too late. Losing Earth is their story and ours.

The New York Times Magazine devoted an entire issue to Nathaniel Rich’s groundbreaking chronicle of that decade, which became an instant journalistic phenomenon – the subject of news coverage, editorials, and conversations all over the world. In its emphasis on the lives of the people who grappled with the significant existential threat of our age, it made vivid the moral dimensions of our shared plight.

Losing Earth tells the human story of climate change in even richer, more intimate terms. It reveals, in previously unreported detail, the birth of climate denialism and the genesis of the fossil-fuel industry’s coordinated effort to thwart climate policy through misinformation propaganda and political influence. The audiobook carries the story into the present day, wrestling with the long shadow of our past failures and asking crucial questions about how we make sense of our past, our future, and ourselves.

Like John Hersey’s Hiroshima and Jonathan Schell’s The Fate of the Earth, Losing Earth is the rarest of achievements: a riveting work of dramatic history that articulates a moral framework for understanding how we got here and how we must go forward.

Losing Earth is a must-read book!

Subscribe

Contact Us

×
Rabbit Moon

Read: April 2025

Get this book

Rabbit Moon: A Novel

by Jennifer Haigh

Today, I dove into Jennifer Haigh‘s gripping new release, Rabbit Moon. Set against the vibrant backdrop of Shanghai, this tense and riveting drama unravels the complexities of a fractured American family. It explores hidden secrets and the unbreakable bond between two sisters. Ms. Haigh, the New York Times bestselling author of Mercy Street, which I read last year, weaves a tale that promises to keep readers on the edge of their seats.

Four years after their bitter divorce, Claire and Aaron Litvak receive a phone call that no parent is prepared for: their 22-year-old daughter Lindsey, who is teaching English in China during her college gap year, has been critically injured in a hit-and-run accident. As they wait at her bedside in a Shanghai hospital, they hold onto hope for the best while preparing for the worst.

The accident exposes a deeper rift within the family: it brings to light the shocking events that ended the Litvaks’ marriage and turned Lindsey against them. Estranged from her parents, Lindsey has confided only in her younger sister, Grace, who was adopted from China as an infant. As Claire and Aaron navigate the bustling, cosmopolitan atmosphere of Shanghai—the newly prosperous “miracle city”—they face unsettling questions about Lindsey’s life there, where nothing is as it seems.

With her trademark psychological insight, Jennifer Haigh crafts a taut and suspenseful story about the enduring ties of marriage that divorce cannot sever and the legendary red thread that connects two sisters across time and space. Ms. Haigh again demonstrates that she is, as The New York Times describes her, “an expertly nuanced storyteller…her work is gripping, real, and immersive.”


Jennifer Haigh is the author of seven best-selling, critically acclaimed works of fiction. Her first, Mrs. Kimble, won the PEN Hemingway Award for debut fiction. Her latest, Mercy Street, was named a Best Book of 2022 by the New Yorker and won the Mark Twain American Voice in Literature Award. A Guggenheim fellow and Iowa Writers’ Workshop graduate, she lives in Boston.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


×
Birnam Wood: A Novel

Read: March 2023

Get this book

Birnam Wood: A Novel

by Eleanor Catton

Birnam Wood: A Novel by Eleanor Catton is a gripping psychological thriller from the Booker Prize-winning author of The Luminaries. Birnam Wood is Shakespearean in its wit, drama, and immersion in character. A brilliantly constructed consideration of intentions, actions, and consequences is an unflinching examination of the human impulse to ensure our survival. I highly recommend this novel.

The review in The New Yorker and a personal recommendation made this novel my next read.

At first, the conflict between the guerrilla gardening group and a wealthy American billionaire seemed like a story that had been told too many times. However, Ms. Catton has created a page-turner that is a must-read during our current climate emergency and the growing income gap. Although the end is foretold, it may surprise the reader while confirming the conviction that we must find an alternate way forward.

The Goodreads summary provides an overview,

Five years ago, Mira Bunting founded a guerrilla gardening group: Birnam Wood. An undeclared, unregulated, sometimes-criminal, sometimes-philanthropic gathering of friends, this activist collective plants crops wherever no one will notice: on the sides of roads, in forgotten parks, and in neglected backyards. For years, the group has struggled to break even. Then Mira stumbles on an answer, a way to finally set the group up for the long term: a landslide has closed the Korowai Pass, cutting off the town of Thorndike. A natural disaster has created an opportunity, a sizable farm seemingly abandoned.

But Mira is not the only one interested in Thorndike. Robert Lemoine, the enigmatic American billionaire, has snatched it up to build his end-times bunker–or so he tells Mira when he catches her on the property. Intrigued by Mira, Birnam Wood, and their entrepreneurial spirit, he suggests they work this land. But can they trust him? And, as their ideals and ideologies are tested, can they trust each other?


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



×
Keepers of the House

Read: May 2021

Get this book

The Keepers of the House

by Shirley Ann Grau

The Keepers of the House by Shirley Ann Grau is a book that I read a portion of for a college class, but for reasons that I cannot now remember never got around to reading it from cover to cover. In the early stages of grief, I found a copy in our bookshelf and said, let me read it now. It was a decision that I did not regret.

Having grown up in the American South, the book resonated with me, as did the sections I read fifty years ago. It’s a many-layered indictment of racism and rage that is as terrifying as it is wise.

As someone who likes history and values the importance of place, the book’s focus on the continued ownership of the same land since the early 1800s by the Howland’s provided a broad historical perspective. Abigail Howland has learned many important family legacies, but not all.

However, when William’s, her grandfather, relationship with Margaret Carmichael, a black housekeeper, is revealed to the community, the racism and fury boil over. Abigail chooses to get even with the town her family built by punishing them.

The Keepers of the House is a book that I wish I had read in its entirety half a century ago. Having read it now, I recommend it to all who care about life and community.

Subscribe

Contact Us

×

Discover more from Sharing Jan’s Love

Subscribe now to keep reading and get access to the full archive.

Continue reading