Help Me Help, Jan

Estimated reading time: 10 minutes, 43 seconds

Jan’s Health Deteriorates

“Jan, I love you! I am here to help you out of bed,” I said beside her. It was 4 am on the second of April, and I had been trying to help her get out of bed for over two hours.

We had already done this twice since 10 pm the night before.

“You need to work with me to get to the bathroom.”

“I am helping.”

“Honey, you have not moved at all.”

Jan slowly rolled over toward me as I lifted the sheets off her. 

I used my right hand to lift her while holding onto the walker.

“I can’t do this,” she moaned.

“You said you needed to go to the bathroom, and I am here to help.”

Pain painted her face with streaks of fear.

“Let me lift you into a sitting position.”

“I’m too heavy.”

“You are not too heavy. You are the love of my life. I can do it.”

I lifted her so she could sit on the bed.

My back hurt, but I did not want to admit it. 

“All we need to do now is get you to stand up.”

Standing before the walker, I reached for her arms to help her slide off the bed. 

“Take it slow and easy.”

“I am afraid.”

“Just sit for a minute.”

I moved the walker to my left and stood in front of her. 

“I will lift you, and once you are standing, I will position the walker for you.”

Jan screamed as I placed my arms under her and lifted her.

“I am not trying to hurt you,” I cried.

I was able to get her feet on the floor, but my back hurt. I bit my lip to hold back a primal scream.

“Here is the walker; let’s move slowly to the bathroom.”


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Midwives

Read: June 2022

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Midwives: A Novel

by Chris Bohjalian

Midwives by Chris Bohjalian is “a compulsively readable novel that explores questions of human responsibility that are as fundamental to our society now as they were when the book was first published.” Forty years after the book was published, it is just as relevant, if not more so. Indeed, the book’s topics are more relevant today with the current set of decisions by the Supreme Court.

After reading The Pull of the Stars and watching every season of Call the Midwivesthis was the logical next book for me to read. It is also one that I know Jan read and liked. 

I highly recommend this book!

The Goodreads summary provides a concise overview. 

The time is 1981, and Sibyl Danforth has been a dedicated midwife in the rural community of Reddington, Vermont, for fifteen years. But one treacherous winter night, in a house isolated by icy roads and failed telephone lines, Sibyl takes desperate measures to save a baby’s life. She performs an emergency Caesarean section on its mother, who appears to have died in labor. But what if—as Sibyl’s assistant later charges—the patient wasn’t already dead, and it was Sibyl who inadvertently killed her?

As recounted by Sibyl’s precocious fourteen-year-old daughter, Connie, the ensuing trial bears the earmarks of a witch hunt except that all its participants are acting from the highest motives—and the defendant increasingly appears to be guilty. As Sibyl Danforth faces the antagonism of the law, the hostility of traditional doctors, and the accusations of her conscience, Midwives engages, moves, and transfixes us as only the best novels ever do. 


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Roses, in the Mouth of a Lion

Read: January 2023

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Roses, in the Mouth of a Lion

by Bushra Rehman

Roses, in the Mouth of a Lion by Bushra Rehman is a book I encouraged friends to read before I finished reading it. I highly recommend this page-turner novel, which is punctuated by both joy and loss, full of ’80s music and beloved books. Roses, in the Mouth of a Lion is a must-read coming-of-age story of Razia Mirza, a girl struggling to reconcile her heritage and faith with her desire to be true to herself.

Razia Mirza, the protagonist, leaps off the page or screen. Bushra Rehman describes Corona with prose that is vibrant and clear-eyed. When I lived in Brooklyn, I had, on a few occasions, meetings in Corona a decade before the novel’s setting. Reading the book made me remember that time and place and understand intuitively the world that Razia was struggling to reconcile.

Razia’s choice between her heart and her family is one I will not reveal. However, the novel defines the conflicts between the Pakistani-American community and the love that Razia and Anglea experience in clear prose, and the reader can easily accept various resolutions.

The choice that Rasia makes left me desiring to know what happens next. I have added Bushra Rehman to my favorite authors and plan to read more of her novels.

I had this novel on my list for the last month but could not get to it until now. I wish I had read it sooner. It is the eighth book I have read in 2023.

The Goodreads summary provides an overview,

Razia Mirza grows up amid the wild grape vines and backyard sunflowers of Corona, Queens, with her best friend, Saima, by her side. Razia’s heart is broken when a family rift drives the girls apart. She finds solace in Taslima, a new girl in her close-knit Pakistani-American community. They embark on a series of small rebellions: listening to scandalous music, wearing miniskirts, and cutting school to explore the city.

When Razia is accepted to Stuyvesant, a prestigious high school in Manhattan, the gulf between the person she is and the daughter her parents want her to be, widens. At Stuyvesant, Razia meets Angela and is attracted to her in a way that blossoms into a new understanding. When an Aunty discovers their relationship in the community, Razia must choose between her family and her future.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Lila: A Novel

Read: April 2022

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Lila: A Novel

by Marilynne Robinson

Lila: A Novel by Marilynne Robinson is an unusual but believable love story. Although different than how I met Jan, this novel is about love and romance that, on the surface, should never have happened. Lila, homeless and alone after years of roaming the countryside, steps inside a small-town Iowa church – the only available shelter from the rain- ignites a romance and a debate that will reshape her life. She becomes the wife of a minister, John Ames, and begins a new existence while trying to make sense of the life that preceded her newfound security.

Lila is the third novel in the Gilead series. Previously I read Home, the second in the series, and Jack, the fourth. I highly recommend all three books.

Hopefully, one day I will read the Gilead and complete the series.

The Goodreads summary of the book provides an excellent overview.

Neglected as a toddler, Lila was rescued by Doll, a canny young drifter, and brought up by her in a hardscrabble childhood. Together they crafted a life on the run, living hand to mouth with nothing but their sisterly bond and a ragged blade to protect them. Despite bouts of petty violence and moments of desperation, their shared life was laced with moments of joy and love. When Lila arrives in Gilead, she struggles to reconcile the life of her makeshift family and their days of hardship with the gentle Christian worldview of her husband which paradoxically judges those she loves.

Revisiting the beloved characters and setting of Robinson’s Pulitzer Prize-winning Gilead and Home, a National Book Award finalist, Lila is a moving expression of the mysteries of existence that is destined to become an American classic.

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The Exhibitionist: A Novel

Read: July 2023

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The Exhibitionist: A Novel

by Charlotte Mendelson

I began reading Charlotte Mendelson‘s novel, The Exhibitionist, today. The book tells the story of Lucia and Ray, two artists whose marriage starts to fall apart over a weekend. It explores themes such as art, sacrifice, family dynamics, queer desire, and personal freedom. Charlotte Mendelson has created yet another exceptional novel with The Exhibitionist, ranked as the year’s novel by The Times of London, and described as “furiously funny.”

The Hanrahan family is coming together for an important weekend. Ray Hanrahan, a well-known artist with a big ego, is preparing for his first exhibition in many years. His eldest daughter, Leah, is his biggest supporter. His son, Patrick, has decided to pursue his own path. His youngest daughter, Jess, has a big decision to make. Ray’s wife, Lucia, is also an artist but has always prioritized her roles as a wife and mother. She is keeping secrets of her own and must decide which desires to pursue as the weekend progresses and the exhibition approaches.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Finding Peace, One Piece at a Time

Read: September 2021

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Finding Peace, One Piece at a Time

by Rachel Blythe Kodanaz

Finding Peace, One Piece at a Time by Rachel Blythe Kodanaz is a book I wish I had long before Jan died. It provides helpful information that can help maintain an organized lifestyle and assist with the possessions of a loved one.

Having lost almost everything I had except for the clothes on my back after a house fire in 1972, I thought I had adopted a view that possessions were not significant. With Jan’s death, the truth is that she and I had collected essential possessions, and now it was my responsibility to decide what to do with them.

Rachel provides a comprehensive overview of the meaning of possessions and how to build a game plan to manage them. Chapter 3 focuses on Building Your Game Plan: The Ten Essentials and this covers all the crucial topics – triggers, building a team, and creating a timeline, among others.

Magic of the Six Piles is a well-designed plan that will help most of us confront the possessions of our loved ones. The piles are:

  1. Keep
  2. Share
  3. Donate
  4. Sell
  5. Dispose
  6. Ponder

Having read the book, I need to move from pondering to action. This book will be by my side as I work to move my wife’s possessions into the six piles. Hopefully, it will also assist in reducing m possessions to make it easier for my sons.

Ms. Kodanaz has presented at my bereavement groups and has been an inspiration. She has encouraged me to journal and writes about my love for Jan.

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Long Bright River

Read: December 2021

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Long Bright River

by Liz Moore

Long Bright River by Liz Moore was a 2020 NPR Books We Love Selection. It’s a contemporary novel about the opioid epidemic, it’s a novel about sisters and families, it’s a book about the police and how they fall short of the communities they serve, and it’s a well-plotted crime novel. Its main story revolves around Mickey, a patrol officer raising a young son in a working-class neighborhood in Northeast Philadelphia, and her missing sister, who’s addicted to drugs. Both women are the children of addicts, raised by a strict grandmother.

Despite Long Bright River being selected by NPR and others as one of the best books, I was not sure what to expect. My doubts evaporated on page one. Mickey’s narration, including her description of Kensignton, made this a page-turner.

Mickey and Kacey’s lives became so realistic that I could not put the book down. One night, I stayed up to finish reading for the first time in almost a decade.

As much as it focuses on the opioid epidemic and the shortcomings of policing, its proper focus is on sisters and families. My love of family has become more important to me than ever since the loss of Jan, the love of my life.

Ms. Moore brings it all together in the ending but leaves enough doubt as to the future relationship of the sisters that we can feel the harsh reality of life itself. Long Bright River is the first but not the last book by this author that I will read.

Goodreads has an overview if you need more convincing.

In a Philadelphia neighborhood rocked by the opioid crisis, two once-inseparable sisters find themselves at odds. One, Kacey, lives on the streets in the vise of addiction. The other, Mickey, walks those same blocks on her police beat. They don’t speak anymore, but Mickey never stops worrying about her sibling.

Then Kacey disappears, suddenly, at the same time that a mysterious string of murders begins in Mickey’s district, and Mickey becomes dangerously obsessed with finding the culprit–and her sister–before it’s too late.

Alternating its present-day mystery with the story of the sisters’ childhood and adolescence, Long Bright River is at once heart-pounding and heart-wrenching: a gripping suspense novel that is also a moving story of sisters, addiction, and the formidable ties that persist between place, family, and fate.

I highly recommend this book.

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