A Day of Fear and Hope

Estimated reading time: 10 minutes, 30 seconds

Emergency Surgery

“Good evening, is this Mr. Brown speaking?” I said yes. “My name is Sarah, and I am one of the nurses attending to your wife, Mrs. Brown. I regret to inform you that her condition is still critical, but we are doing everything in our power to ensure her comfort and recovery.

I am seeking your approval for a stent installation procedure that could help improve her condition.” She explained this was a routine medical procedure involving inserting a tiny mesh tube into the blocked artery to help restore blood flow to the heart. 

I understand this is a difficult time for you, but we need your permission to proceed. Can we count on your approval for this procedure?” I nodded in agreement but then realized she couldn’t see my response over the phone.

“Please do whatever is necessary to help my wife,” I pleaded, hoping that the procedure would help improve her condition.

The clock struck midnight, and I realized I hadn’t slept this entire month. I was on edge, waiting for any news about Jan, and I was willing to agree to every risk factor the nurse mentioned to ensure that she would live. 

Once the nurse had obtained all the necessary information, she asked, “Okay, that’s all I need for now. Is this the best number to reach you?” I confirmed that it was.

I started pacing around the apartment, my heart beating fast and my mind racing with worry. I was exhausted, but I knew I couldn’t sleep until I knew Jan was okay. I took a deep breath as my iPhone rang.

Mr. Brown, the surgery went well, and she’s back in the ICU!” the voice at the other end said.

Relief flooded my body, and I muttered my words of appreciation, “Thank you, thank you!

With overwhelming gratitude, I texted Dr. Strair, the Rabbi, and my sons to let them know Jan was okay.

The surgery was successful, and she is now in the ICU, where they can drain the fluid and treat the infection with antibiotics. This is a minor but essential step in the right direction!

April 3, 2021, 1:43 am

Dr. Strair responded immediately to my text.

After a night of very little sleep, I texted a morning update. 

Morning update: The medical team conducted a CAT scan and found a life-threatening infection in her kidneys that caused fluid buildup. If she hadn’t been admitted to the hospital, it could have been fatal. They performed an emergency surgery to insert a stent in her kidney to drain the fluid. The surgery was successful, and they are treating the infection’s cause with antibiotics. Now, they can concentrate on treating the lymphoma that has returned and is more aggressive than anticipated. 

Saturday, April 3, 7:34 AM

Hope Fades, But Jan is Still With Me!

As human beings, we can sometimes fall into the monotonous routine of our daily lives, where most days tend to blur together into a vague memory. However, certain days remain so vivid in our minds that they remain fresh and unforgettable for years. One such day for me was April 2, 2021 – filled with fear and hope, which I will never forget. At that moment, I thought I would never see my wife again.

The following day, I received great news that filled me with joy and relief. Jan had undergone emergency surgery, and I had been worried sick about her. However, I learned that she had not only survived the surgery but was well on her way to a full recovery. That day will always remind me of the fragility of life and the power of hope.

However, the joy and relief of April 3 were short-lived. Four days later, we received the devastating news that nothing more could be done, and Jan was coming home for the last time. In those moments, I felt like my world had come crashing down around me, and I was consumed by grief and sadness.

It was then that I remembered Atul Gawande‘s book “Being Mortal,” which taught me about the importance of hospice care for those who are terminally ill. I knew that hospice care could provide Jan with the support and comfort she needed in her final days, and it would also allow our family to have a final conversation with her.

Although three years have passed since that fateful day, I still recall it with clarity but less emotional intensity. Jan may no longer be with us, but her love and memory remain alive, and I cherish them daily.


If you liked this post, you should read Help Me Help, Jan, written a year ago, or Learning From Grief.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.


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Stony The Road

Read: October 2019

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Stony the Road

by Henry Louis Gates Jr

Stony the Road: Reconstruction, White Supremacy, and the Rise of Jim Crow by Henry Louis Gates Jr. is a must-read book, especially with white nationalism on the rise.

I read this book when Jan began her chemotherapy. Although the book’s subject – the retreat from reconstruction – was one I studied in college, at times, I found it hard to focus on the material and my wife’s health at the same time. I stayed on the stony road as it is a subject we need to understand if we are going to correct the past failures.

As The New York Times wrote,

Henry Louis Gates Jr.’s “Stony the Road: Reconstruction, White Supremacy, and the Rise of Jim Crow,” an indispensable guide to the making of our times, addresses 2017’s mystifications. The book sets the Obama era beside Reconstruction and the Trump era beside the white supremacist terrorism of Redemption, the period beginning in 1877 during which Reconstruction’s nascent, biracial democracy was largely dismantled. Gates juxtaposes the optimism of Reconstruction, the despair of Redemption, and the promise of the New Negro movement — the effort by black Americans, starting around the turn of the 20th century, to craft a counternarrative to white supremacy. In doing so, “Stony the Road” presents a bracing alternative to Trump-era white nationalism.

Growing up in the Jim Crow south, I was well aware of white nationalism. This book is an essential read if we are going to make America a multi-racial democracy.

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Prophet Song: A Novel

Read: January 2024

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Prophet Song: A Novel

by Paul Lynch

In 2024, I started my reading journey with the Booker Prize 2023 winner – Prophet Song, by Paul Lynch. The book presents a chilling and astonishing outlook of a nation sliding into authoritarianism while also painting a profoundly humane portrait of a mother’s struggle to keep her family together. I have not set a goal of the number of books to read in 2024, but this is an excellent first-day pageturner.

It all begins on a dark, rainy evening in Dublin when Eilish Stack, a scientist and mother of four, opens her front door to two officers from Ireland’s newly formed secret police. They are there to interrogate her husband, a trade unionist. Ireland is falling apart as the government is gradually turning towards tyranny. As her world crumbles and the people she loves disappear, Eilish faces the dystopian reality of her country. How far is Eilish willing to go to protect her family? And what, or who, is she ready to leave behind?


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Trust

Read: December 2022

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Trust by Hernan Diaz

by Hernan Diaz

Trust by Hernan Diaz is an elegant, multifaceted epic that recovers the voices buried under the myths that justify our foundational inequality; Trust is a literary triumph with a beating heart and urgent stakes. The novel is divided into four sections, each engaging and reminding us of the tremendous costs a fortune imposes on those who accumulate wealth. I highly recommend this novel as it is one of the best books I have ever read!

The first section is from Bonds, a successful novel about Benjamin and Helen Rask. Before finishing this section, I was so engrossed that I wanted their story to continue. The second is a memoir of Andrew Bevel, a successful fourth-generation financier, with notations on edits and corrections.

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Trust is one of the NY Times’ top five fiction books of 2022. I have read four of them, Demon Copperhead, The Candy House, The Furrows, and Checkout 19. Trust was the fifth and the seventy-second book I have read this year. 

The Goodreads summary provides an overview.

Even though the roar and effervescence of the 1920s, everyone in New York has heard of Benjamin and Helen Rask. He is a legendary Wall Street tycoon; she is the brilliant daughter of eccentric aristocrats. Together, they have risen to the very top of seemingly endless wealth. But the secrets around their affluence and grandeur incite gossip. At what cost have they acquired their immense fortune? Rumors about Benjamin’s financial maneuvers and Helen’s reclusiveness start to spread–all as a decade of excess and speculation draws to an end.

This is the mystery at the center of a successful 1938 novel, Bonds, which all of New York seems to have read. But it isn’t the only version.

Hernan Diaz’s Trust brilliantly puts the story of these characters into conversation with other accounts–and in tension with the life and perspective of a young woman bent on disentangling fact from fiction. Provocative and propulsive, Trust engages the reader in a quest for the truth while confronting the reality-warping gravitational pull of money and how power often manipulates facts. The result is a novel that becomes more exhilarating and profound with each new layer and revelation.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Dream Count

Read: March 2025

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Dream Count: A Novel

by Chimamanda Ngozi Adichie

Today, I dove into “Dream Count” by Chimamanda Ngozi Adichie, and I couldn’t be more excited! A decade in the making, this novel promises to be a captivating journey. Known for her bestselling works like “Americanah” and “We Should All Be Feminists,” Adichie brings her trademark brilliance to this story of four women exploring their loves, longings, and desires. I can’t wait to see how their lives unfold!

Chiamaka is a Nigerian travel writer living in America. During the pandemic, feeling alone, she reflects on her past lovers and grapples with her choices and regrets. Her best friend Zikora, a successful lawyer, faces betrayal and heartbreak, leading her to turn to the person she thought she needed the least. Omelogor, Chiamaka’s bold and outspoken cousin, is a financial powerhouse in Nigeria who begins to question how well she truly knows herself. Meanwhile, Kadiatou, Chiamaka’s housekeeper, proudly raises her daughter in America yet must confront an unimaginable hardship that threatens everything she has worked to achieve.

In “Dream Count,” Chimamanda Ngozi Adichie focuses on these women’s lives in a captivating and profound novel that explores the very nature of love. Is true happiness ever attainable, or is it merely a fleeting state? How honest must we be with ourselves to love and be loved? The story profoundly reflects on our choices and those made for us, mothers and daughters, and our interconnected world. “Dream Count” resonates with emotional urgency and provides poignant, unflinching observations of the human heart, all conveyed in beautifully powerful language. This work reaffirms Adichie’s status as one of contemporary literature’s most exciting and dynamic writers.


Chimamanda Ngozi Adichie grew up in Nigeria. Her work has been translated into more than fifty-five languages. She is the author of the novels “Purple Hibiscus,” which won the Commonwealth Writers’ Prize; “Half of a Yellow Sun,” which was the recipient of the Women’s Prize for Fiction “Best of the Best” award; Americanah, which won the National Book Critics Circle Award; the story collection “The Thing Around Your Neck” and the essays We Should All Be Feminists and Dear Ijeawele, or A Feminist Manifesto in Fifteen Suggestions. Her most recent work is an essay about losing her father, Notes on Grief, and Mama’s Sleeping Scarf, a children’s book by Nwa Grace-James. A recipient of a MacArthur Fellowship, she divides her time between the United States and Nigeria.



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Wintering: The Power of Rest and Retreat in Difficult Times

Read: October 2021

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Wintering: The Power of Rest and Retreat in Difficult Times

by Katherine May

Wintering: The Power of Rest and Retreat in Difficult Times by Katherine May is “an intimate, revelatory book exploring the ways we can care for and repair ourselves when life knocks us down.”

Two quotes that resonated with me were:

That’s what grief is – a yearning for that one last moment of contact that would settle everything.

We are in the habit of imagining our lives to be linear, a long march from birth to death in which we mass our powers, only to surrender them again, all the while slowly losing our youthful beauty. This is a brutal untruth. Life meanders through the woods. We have seasons when we flourish and seasons when the leaves fall upon us, revealing our bare bones. Given time they grow again.

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The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Table for Two: Fictions

Read: April 2024

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Table for Two: Fictions

by Amor Towles

Today, I began reading Amor Towles‘s Table for Two: Fictions.” As a fan of his previous work, “A Gentleman in Moscow,” I was excited to delve into some of his shorter fiction. The book contains six stories from New York City and a novella from Golden Age Hollywood. “Table for Two is another captivating addition to Towles’s collection of stylish and transporting fiction written with his signature wit, humor, and sophistication.

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