Jan and Ana

Jan and Ana Visit During Hospice

by Richard W. Brown April 8, 2022 27 comments

Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

Visiting Jan

Dr. Saksena, it’s so nice to see you,” I said as I stood by Jan’s bed, holding her hand. We had been waiting for the doctor as we both had many questions.

Jan’s smile was one of the weakest I had ever seen.

“I am sorry you are back in the hospital, but the stent has made a difference,” she said. “How are you feeling today?”

Jan shook her head up, down, and sideways.

I am OK, just very tired of being in the hospital and worried about the lymphoma returning.

“We are in touch with Dr. Strair and his team and constantly monitor it.”

“How aggressive is it?”

“It’s not where we would like it to be, but we are looking at various treatment options.”

She asked Jan a few more questions before leaving.

“Thanks, Dr. Saksena!”

I kissed Jan and reminded her how much I loved her.

“We will find a way to get thru this, my dear!”

“The lymphoma is active again; how can you be so positive?”

“Because we have an excellent medical team and….”

She napped for a few minutes, and I texted Dr. Strair.

Dr. Strair, how are you? I am at the hospital with Jan. Dr. Saksena stopped by and spoke about how aggressive the lymphoma is. Jan asked if she would survive. Saksena was realistic in her response.

Do you know when we can speak tonight? The sooner I know, the easier it will be to connect my sons to the call.
Tuesday, April 6, 2021, 6:26 pm

He responded quickly.

How is 7:30?
Tuesday, April 6, 2021, 6:32 pm

I agreed and texted Jon and Mike.

Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

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My random thoughts on love, grief, life and all things considered.

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The Amen Effect

Read: March 2025

The Amen Effect

by Sharon Brous

Sharon Brous, a prominent American rabbi, argues in The Amen Effect: Ancient Wisdom to Heal Our Hearts and Mend Our Broken World that the essential spiritual work of our time—though instinctual and often countercultural—focuses on connecting through celebration, sorrow and solidarity. We must support each other in times of joy and pain, embrace vulnerability and possibility, nurture relationships with shared purposes, and create communities centered on care.

From one of our country’s most prominent rabbis, this is an inspiring book about the power of community based on one of her most impactful sermons. What will it take to mend our broken hearts and rebuild our society in a time of loneliness, isolation, social rupture, and alienation?

Brous contends that honoring our most basic human instinct—the yearning for authentic connection—is the way to reawaken our shared humanity and begin to heal. This kind of sacred presence is captured by the word amen, a powerful ancient idea that we affirm the fullness of one another’s experience by demonstrating, in body and word: “I see you. You are not alone.”

An acclaimed preacher and storyteller, Brous pairs heart-driven anecdotes from her experience building and pastoring to a leading-edge faith community over the past two decades with ancient Jewish wisdom and contemporary science. The result is a clarion call: the sense of belonging engendered by our genuine presence is a social and biological need and a moral and spiritual necessity.

With original insights and practical tools, The Amen Effect translates foundational ideas into simple practices that connect us to our better angels, offering a blueprint for a more meaningful life and a more connected and caring world.

As she writes in the preface, after listing the joys and pains of life, weddings, births, and death,

It’s in these times that I feel the weight of the work, the privilege of being alive, the blessing of being so close to such raw beauty and pain. It’s there that I have learned the power of saying ‘Amen‘ to one another’s grief and joy, sorrow and celebration with our very presence. Of bearing witness to profound suffering and protesting injustice with our very presence. Of comforting and consoling, surviving and thriving with our very presence. What I’ve learned, during the years, is the meaning of sacred companionship. I have seen, in ways subtle and pronounced, a longing to connect with others who can help hold the pain, a need to share what we’ve learned in the trenches, and a desire to give, even when we ourselves have barely caught our breath. And I have seen how knowing that we’re not alone can both heighten our joy and help us endure unimaginable hardship.

Click here to read about my experience listening to Rabbi Brous at the Kol Tzedek Speakers Series at Temple Emanu-El in Westfield.

Sharon Brous is the senior and founding rabbi of IKAR, a leading-edge Jewish community based in Los Angeles, and the author of The Amen Effect: Ancient Wisdom to Heal Our Hearts and Mend Our Broken World, a national bestseller.

In 2013, Brous blessed President Obama, and Vice President Biden at the Inaugural National Prayer Service, and in 2021 returned to bless President Biden and Vice President Harris and then led the White House Passover Seder 2021 and the Hanukkah candle lighting with the Vice President and Second Gentleman in 2023. She was ranked as the number one most influential Rabbi in America by Newsweek/The Daily Beast. She has also been recognized by The Forward and the Jerusalem Post as one of the most influential Jews alive today. Her work has appeared in prominent publications such as The New York Times, The Los Angeles Times, and The Washington Post. Additionally, her TED talk, “Reclaiming Religion,” has been viewed by over 1.5 million people.

Brous is in the inaugural cohort of Auburn Seminary’s Senior Fellows program, which unites top faith leaders working on the frontlines for justice. She sits on the faculty of REBOOT and serves on the International Council of the New Israel Fund and the national steering committee for the Poor People’s Campaign.

A Columbia University graduate (both undergraduate and M.A. in Human Rights), she was ordained by the Jewish Theological Seminary and lives in Los Angeles with her husband and children.

When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

The Girl in His Shadow

Read: July 2022

The Girl in His Shadow

by Audrey Blake

I completed the Big Library Read of 2022, The Girl in His Shadow, by Audrey Blake. I highly recommend it. The Girl in His Shadow is historical fiction about one woman who believed in scientific medicine before the world believed in her. Ms. Blake has a split personality— because she is the creative alter ego of writing duo Jaima Fixsen and Regina Sirois, two authors who met as finalists of a writing contest and have been writing together happily ever since.

The pen name – Audrey Blake – was in response to the publishers recommending a more straightforward author’s name. Regina’s daughter is named Audrey, and Jaima’s son is Blake.

I cannot praise this book enough. It was well written, and the characters, especially Nora Beady, jumped off the page. I recommend The Girl in His Shadow by Audrey Blake and encourage you to read the book and share your thoughts.

For more information and to start reading The Girl in His Shadow by Audrey Blake, visit: Big Library Read.

The Goodreads summary provides an overview.

Raised by the eccentric surgeon Dr. Horace Croft after losing her parents to a deadly pandemic, the orphan Nora Beady knows little about conventional life. While other young ladies were raised to busy themselves with needlework and watercolors, Nora was trained to perfect her suturing and anatomical illustrations of dissections.

Women face dire consequences if caught practicing medicine, but in Croft’s private clinic Nora is his most trusted–and secret–assistant. That is until the new surgical resident Dr. Daniel Gibson arrives. Dr. Gibson has no idea that Horace’s bright and quiet young ward is a surgeon more qualified and ingenuitive than even himself. In order to protect Dr. Croft and his practice from scandal and collapse Nora must learn to play a new and uncomfortable role–that of a proper young lady.

But pretense has its limits. Nora cannot turn away and ignore the suffering of patients even if it means giving Gibson the power to ruin everything she’s worked for. And when she makes a discovery that could change the field forever, Nora faces an impossible choice. Remain invisible and let the men around her take credit for her work, or let the world see her for what she is–even if it means being destroyed by her own legacy.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

1944: FDR and the Year That Changed History

Read: October 2019

1944: FDR and the Year That Changed History

by Jay Winik

1944: FDR and the Year That Changed History by Jay Winik is a book that I had put off reading several times. When I finally did read it, I could not remember why I had not read it sooner. Had I gone to graduate school and become a professor, it might have been the type of book I might write, and I certainly would have had on my list of books for my classes.

As The NY Times wrote, “Jay Winik brings to life in gripping detail the year 1944, which determined the outcome of World War II and put more pressure than any other on an ailing yet determined President Roosevelt.” Reading a book about events five years before my birth that transformed the world I live in becomes an easy page-turner.

It was not inevitable that World War II would end as it did or that it would even end well. Nineteen forty-four was a year that could have stymied the Allies and cemented Hitler’s waning power. Instead it saved those democracies – but with a fateful cost. Now, in a superbly told story, Jay Winik, the acclaimed author of April 1865 and The Great Upheaval, captures the epic images and extraordinary history as never before.

1944 witnessed a series of titanic events: FDR at the pinnacle of his wartime leadership as well as his reelection, the planning of Operation Overlord with Churchill and Stalin, the unprecedented D-Day invasion, the liberation of Paris, and the horrific Battle of the Bulge, and the tumultuous conferences that finally shaped the coming peace. But on the way, millions of more lives were still at stake as President Roosevelt was exposed to mounting evidence of the most grotesque crime in history, the Final Solution. Just as the Allies were landing in Normandy, the Nazis were accelerating the killing of millions of European Jews.

Winik shows how escalating pressures fell on an all but dying Roosevelt, whose rapidly deteriorating health was a closely guarded secret. Here then, as with D-Day, was a momentous decision for the president. Was winning the war the best way to rescue the Jews? Was a rescue even possible? Or would it get in the way of defeating Hitler? In a year when even the most audacious undertakings were within the world’s reach, including the liberation of Europe, one challenge – saving Europe’s Jews – seemed to remain beyond Roosevelt’s grasp.

I recommend this book.

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Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

Beautiful World, Where Are You

Read: July 2022

Beautiful World, Where Are You

by Sally Rooney

Beautiful World, Where Are You by Sally Rooney, a writer recommended to me, but I have always kept them on the to-read list, not the current reading. Does a beautiful word exist? Is it possible to live in a beautiful world despite the loss of the love of my life? Perhaps reading Beautiful World, Where Are You, will help me in my grief journey.

Ms. Rooney’s book was a page-turner, and I highly recommend it.

One of the quotes from the book echoed my dream of a beautiful world.

“When I try to picture for myself what a happy life might look like, the picture hasn’t changed very much since I was a child – a house with flowers and trees around it, and a river nearby, and a room full of books, and someone there to love me, that’s all. Just to make a home there, and to care for my parents when they grow older. Never to move, never to board a plane again, just to live quietly and then be buried in the earth.” ― Sally Rooney, Beautiful World, Where Are You

It also helped remind me how unique and memorable the love that Jan and I shared was. We could quickly fall into a life lived separately as friends, or we might not have ever fallen in love and married.

As Sally Rooney in Beautiful World, Where Are You, wrote:

“If God wanted me to give you up, he wouldn’t have made me who I am.”

The Goodreads summary provides an overview.

Alice, a novelist, meets Felix, who works in a warehouse, and asks him if he’d like to travel to Rome with her. In Dublin, her best friend, Eileen, is getting over a breakup and slips back into flirting with Simon, a man she has known since childhood. Alice, Felix, Eileen, and Simon are still young—but life is catching up with them. They desire each other, they delude each other, they get together, and they break apart. They have sex, they worry about sex, and they worry about their friendships and the world they live in. Are they standing in the last lighted room before the darkness, bearing witness to something? Will they find a way to believe in a beautiful world?

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Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.