Help Me Help, Jan

Estimated reading time: 10 minutes, 43 seconds

Mike and Elyssa to the Rescue

“Mom, are you OK? Elyssa and I are here to help you,” Mike said. I brought over one of the wooden chairs with the no-scrape patches. It was nearby as the physical therapist needed it for exercises. “This might help to get her to the toilet.

They got her up into the chair and slid her like an ice boat across the wooden floor. 

“Her urine is full of blood,” Mike said. 

I mentioned that the visiting nurse would be here in a few hours. 

“We need her now,” said Elyssa. 

I handed her my iPhone and indicated the number for the visiting nurse. 

Elyssa stepped into the hallway to speak to her. 

“She is on her way. She had an appointment but rescheduled it to get here immediately.”

I thanked Elyssa and rubbed my back. 

“Do you want to sit down?”

I nodded no and tried to walk off the pain. 

My iPhone rang, and it was the Visiting Nurse. Mike went down to let her in.

“Ms. Lilien let me take your vitals,” said the nurse. 

While waiting for the vitals, I stopped breathing for a minute.

“Her blood pressure is 70 over 40, and her temperature is over 100,” said the nurse. “That combined with the blood in her urine, she is high risk and needs to be hospitalized now.”

“I need to call her Oncologist and let him know.”

Dr. Strair answered on the first ring, and I placed him on speakerphone and provided an overview of the situation, and the nurse provided the details.

“I agree she should go to the hospital,” Dr. Strair said. “Do you know what is in her advanced directive? You should read it and know what to do as you might need to use it.”

My body shook like an earthquake had torn the apartment into two pieces. I can’t lose Jan. She is all I have.

The nurse called for an ambulance. 

“Jan, I know going to the hospital is not what you want, but it is what you need to do,” said Elyssa in a very soothing and reassuring voice.

Overlook Hospital

“Thanks for driving me,” I said to Mike. “Can you and Jon make calls to family and friends? I can text you the names and phone numbers. I can’t do it now….” Mike said yes as we pulled into the parking deck at the hospital.

“Only one of you can stay,” said the triage nurse. Mike and Elyssa hugged me and left. 

I paced the narrow hallway as I had not slept in forty hours. 

“I did not know she had COVID,” said the triage nurse. “You cannot stay.”

“It’s important that they call Dr. Strair,” I said as I scribbled his name and number on paper. 

“I will make sure they call the doctor.”

“What about the bag I brought?”

“I will give it to her.”

I stumbled out of the ER and texted my sons that I could not stay with her. Will I ever see her again?

When I got in the car, I called Rabbi Renee.

“Jan’s in the ER!” I said as tears overflowed my face like an open hydrant. 

“She is very sick.”

“What happened,” she asked.

Between my tears, I updated her the best I could.

“I will update everyone at services tonight.”

The Rabbi asked what she could do to help her very calming voice. 

“I just need Jan to stay alive!”

“Any prayers for her recovery will help.”

After parking the car, I texted my sons, family, and close friends this message. 

Jan is in Overlook Hospital. I just spoke to the emergency room physician. He described her as being critically ill. Her blood pressure was 70 over 40, and she had a temperature of 100. She is being admitted to the ICU. Because she still has Covid, I was not allowed to stay with her. I will update you as I learn more.

Friday, April 2, 4 PM

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An Assassin in Utopia: The True Story of a Nineteenth-Century Sex Cult and a President's Murder

Read: February 2023

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An Assassin in Utopia

by Susan Wels

An Assassin in Utopia: The True Story of a Nineteenth-Century Sex Cult and a President’s Murder by Susan Wels is a true crime odyssey that explores a forgotten, astonishing chapter of American history, leading the reader from a free-love community in upstate New York to the shocking assassination of President James Garfield. I had read about this historical period in several other books, most recently Civil War by Other Means.

Susan Wels has written an excellent historical overview of a period we often overlook. I highly recommend An Assassin in Utopia: The True Story of a Nineteenth-Century Sex Cult and a President’s Murder.

The Oneida Community, even though it was the most successful utopian community, is often overlooked. Ms. Wels connects the dots and places the experiment in the center of a transitional period. It is not merely the connection between Charles Julius Guitea and his assassination of President James Garfield, albeit a brutal crime, that shook America to its core, but all of the other linkages. These include “John Humphrey Noyes; his idol, the eccentric newspaper publisher Horace Greeley (founder of the New Yorker and the New York Tribune).”

She also resurrects the importance of the Wormely Compromise and the African-American family that was an instrumental part of public society.

I have found fiction to be something I enjoy, but I knew it was time for a non-fiction book to balance my reading. The New York Times and other publications highly rated An Assassin in Utopia.

The Goodreads summary provides an overview,

It was heaven on earth—and, some whispered, the devil’s garden.

Thousands came by trains and carriages to see this new Eden, carved from hundreds of acres of wild woodland. They marveled at orchards bursting with fruit, thick herds of Ayrshire cattle and Cotswold sheep, and whizzing mills. They gaped at the people who lived in this place—especially the women, with their queer cropped hair and shamelessly short skirts. The men and women of this strange outpost worked and slept together—without sin, they claimed.

From 1848 to 1881, a small utopian colony in upstate New York—the Oneida Community—was known for its shocking sexual practices, from open marriage and free love to the sexual training of young boys by older women. And in 1881, a one-time member of the Oneida Community—Charles Julius Guiteau—assassinated President James Garfield in a brutal crime that shook America to its core.

An Assassin in Utopia is the first book that weaves together these explosive stories in a tale of utopian experiments, political machinations, and murder. This deeply researched narrative—by bestselling author Susan Wels—tells the true, interlocking stories of the Oneida Community and its radical founder, John Humphrey Noyes; his idol, the eccentric newspaper publisher Horace Greeley (founder of the New Yorker and the New York Tribune); and the gloomy, indecisive President James Garfield—who was assassinated after his first six months in office.

Juxtaposed to their stories is the odd tale of Garfield’s assassin, the demented Charles Julius Guiteau, who was connected to all of them in extraordinary, surprising ways.

Against a vivid backdrop of ambition, hucksterism, epidemics, and spectacle, the book’s interwoven stories fuse together in the climactic murder of President Garfield in 1881—at the same time as the Oneida Community collapsed.

Colorful and compelling, An Assassin in Utopia is a page-turning odyssey through America’s nineteenth-century cultural and political landscape.


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Within Arm's Reach: A Novel

Read: May 2024

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Within Arm’s Reach: A Novel

by Ann Napolitano

I embarked on the journey of reading “Within Arm’s Reach: A Novel” by Ann Napolitano today. This poignant and insightful debut novel from the esteemed New York Times bestselling author of “Hello Beautiful” unfolds the story of a large Catholic family spanning three generations whose lives are upended by an unforeseen pregnancy.

“Within Arm’s Reach” is a compelling novel crafted by Ann Napolitano, a bestselling author. The book powerfully captures our profound connections with loved ones, a theme that resonates universally, even when we struggle to express our emotions. The narrative, set in the context of an Irish American family spanning three generations, is a testament to the author’s skill in addressing deeply human themes. It’s another profoundly satisfying narrative from the author who previously explored grief in “Dear Edward” and the unbreakable bonds of sisterhood in “Hello Beautiful.”

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Beautiful World, Where Are You

Read: July 2022

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Beautiful World, Where Are You

by Sally Rooney

Beautiful World, Where Are You by Sally Rooney, a writer recommended to me, but I have always kept them on the to-read list, not the current reading. Does a beautiful word exist? Is it possible to live in a beautiful world despite the loss of the love of my life? Perhaps reading a Beautiful World, Where Are You will help me on my grief journey.

Ms. Rooney’s book was a page-turner, and I highly recommend it.

One of the quotes from the book echoed my dream of a beautiful world.

“When I try to picture for myself what a happy life might look like, the picture hasn’t changed very much since I was a child – a house with flowers and trees around it, and a river nearby, and a room full of books, and someone there to love me, that’s all. Just to make a home there, and to care for my parents when they grow older. Never to move, never to board a plane again, just to live quietly and then be buried in the earth.” ― Sally Rooney, Beautiful World, Where Are You

It also helped remind me how unique and memorable was the love that Jan and I shared. We could quickly fall into a life lived separately as friends, or we might not have ever fallen in love and married.

As Sally Rooney in Beautiful World, Where Are You, wrote:

“If God wanted me to give you up, he wouldn’t have made me who I am.”

The Goodreads summary provides an overview.

Alice, a novelist, meets Felix, who works in a warehouse, and asks him if he’d like to travel to Rome with her. In Dublin, her best friend, Eileen, is getting over a break-up and slips back into flirting with Simon, a man she has known since childhood. Alice, Felix, Eileen, and Simon are still young—but life is catching up with them. They desire each other, they delude each other, they get together, and they break apart. They have sex, they worry about sex, and they worry about their friendships and the world they live in. Are they standing in the last lighted room before the darkness, bearing witness to something? Will they find a way to believe in a beautiful world?


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The Half-Life of Ruby Fielding: A Novel

Read: April 2022

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The Half-Life of Ruby Fielding: A Novel

by Lydia Kang

The Half-Life of Ruby Fielding: A Novel by Lydia Kang is a spellbinding historical mystery about hidden identities, wartime paranoia, and the compelling power of deceit. It was my free April book from First Reads, and it was a page-turner that I highly recommend.

The first year of World War II and the Manhattan Project is the backdrop of this historical fiction. The siblings’ Will and Maggie Scripps are well-defined andy sympathetic characters. I will leave it for the reader to find out the truth about them. Ruby Fielding is a fascinating character, although it takes time for her to be fully developed.

Again, I highly recommend this novel!

Goodreads provides a concise overview.

Brooklyn, 1942. War rages overseas as brother and sister Will and Maggie Scripps contribute to the war effort stateside. Ambitious Will secretly scouts for the Manhattan Project while grief-stricken Maggie works at the Navy Yard, writing letters to her dead mother between shifts.

But the siblings’ quiet lives change when they discover a beautiful woman hiding under their back stairs. This stranger harbors an obsession with poisons, an affection for fine things, and a singular talent for killing small creatures. As she draws Will and Maggie deeper into her mysterious past, they both begin to suspect she’s quite dangerous―all while falling helplessly under her spell.

With whispers of spies in dark corners and the world’s first atomic bomb in the works, the visitor’s sudden presence in Maggie’s and Will’s lives raises questions about who she is and what she wants. Is this mysterious woman someone they can trust―or a threat to everything they hold dear?

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Lila: A Novel

Read: April 2022

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Lila: A Novel

by Marilynne Robinson

Lila: A Novel by Marilynne Robinson is an unusual but believable love story. Although different than how I met Jan, this novel is about love and romance that, on the surface, should never have happened. Lila, homeless and alone after years of roaming the countryside, steps inside a small-town Iowa church – the only available shelter from the rain- ignites a romance and a debate that will reshape her life. She becomes the wife of a minister, John Ames, and begins a new existence while trying to make sense of the life that preceded her newfound security.

Lila is the third novel in the Gilead series. Previously I read Home, the second in the series, and Jack, the fourth. I highly recommend all three books.

Hopefully, one day I will read the Gilead and complete the series.

The Goodreads summary of the book provides an excellent overview.

Neglected as a toddler, Lila was rescued by Doll, a canny young drifter, and brought up by her in a hardscrabble childhood. Together they crafted a life on the run, living hand to mouth with nothing but their sisterly bond and a ragged blade to protect them. Despite bouts of petty violence and moments of desperation, their shared life was laced with moments of joy and love. When Lila arrives in Gilead, she struggles to reconcile the life of her makeshift family and their days of hardship with the gentle Christian worldview of her husband which paradoxically judges those she loves.

Revisiting the beloved characters and setting of Robinson’s Pulitzer Prize-winning Gilead and Home, a National Book Award finalist, Lila is a moving expression of the mysteries of existence that is destined to become an American classic.

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The Sum of Our Dreams

Read: September 2019

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The Sum of Our Dreams: A Concise History of America

by Louis P. Masur

The Sum of Our Dreams: A Concise History of America by Louis P. Masur is a book I got through my membership at One Day University. Professor Masur is one of the best teaches that One Day University has. He is the Board of Governors Distinguished Professor of American Studies and History at Rutgers University.

Most concise histories leave out more than they include. I found the Sum of our Dreams to be an excellent book to read, and professor Masur conveyed the American experience concisely and clearly. The more recent history is complex as events like the Global War on Terror are still being analyzed and re-understood.

Evoking Barack Obama’s belief that America remains the “sum of its dreams,” Masur locates the origin of those dreams-of freedom, equality, and opportunity-and traces their progress chronologically, illuminating the nation’s struggle over time to articulate and fulfill their promise.

Masur lets the story of American tell itself. Inspired by James Baldwin’s observation that “American history is longer, larger, more beautiful and more terrible than anything anyone has ever said about it,” he expands our notion of that history while identifying its threads.

I recommend this book as well as any of Professor Masur’s lectures at One Day University.

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