Visiting Jan During COVID

Estimated reading time: 7 minutes, 32 seconds

We Kiss After a Month Apart

“It is so good to hear your voice,” Jan said as I stood in the hospital’s lobby, dropping off lunch. “I have good news. Dr. Strair said you can come to visit me tomorrow.” I am sure she said more, but between our mutual tears and the ambient noise of the hospital, all I could say and hear were a crescendo of mutual love messages.

Except for three days, she had been in the hospital for a month.

I drove to New Brunswick to drop off food and clean clothes daily. I would call to let her know I had made the delivery each time. Because Jan had COVID, the lobby was as close as I was allowed.

Along with calls every evening and text message, these brief calls became our only lifeline.

Most were brief and exacerbated our mutual loneliness and anxiety. Today’s call was the first that gave us hope.

“I can’t wait to see you,” my voice was so loud I was sure she could hear me without her iPhone.

“Me too; bring enough lunch for both of us.”

We discussed options and agreed on what we would have for lunch.

“I have to go. The nurses are doing vitals.”

I placed my iPhone in my pocket and danced out of the hospital.

I texted the boys and their partners when I got to Jan’s car.

When I dropped off lunch today, Jan had exciting news. I have been approved to visit her tomorrow. We are both delighted 😃 to be able to see each other!

March 17, 2021, 11:48 am

Hope Springs Eternal

Arriving home, I race thru the house, ensuring everything is in order. In the month she has been in the hospital, I have only used the kitchen and the spare bedroom. My footprint has shrunken to the smallest possible space. Yet, I am worried that if she came home, something might be amiss.

Then I remind myself that she is not coming home. I can visit her tomorrow, but her discharge date remains undetermined.

A buzzing noise arouses me from chores. Is it a bee in the house?

No, my iPhone is ringing.

“Dr. Strair, how are you?”

“I understand you will be visiting Janice tomorrow.”

“Yes, I am. Thank you for making it possible for me to visit my wife.”

“I was worried about her mental health. I knew you were the only one who could cheer her up.”

I want to tell him how worried I have been about Jan. I love her; I need her; I can’t lose her. 

“I will do my best….” I can’t finish the sentence. Tears filled my throat, and the water washed against my molars.

“I understand. I will be visiting with the two of you in the afternoon. I believe we have found something in Janice’s blood work that might be her lucky break.”

I want to ask, but will it ruin her chances?

“Can you share anything with me now,” I ask despite my fears.

“I should be able to share more tomorrow. But Janice’s pathology report indicated that she had an expression of CD30, which is very treatable.”

“Thank you. My wife needs a lucky break.”

Tears formed in my throat like I had swallowed all the ocean water.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief-vise: all that you will do, all that you even imagine doing, will require many times more effort… Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Home: A Novel

Read: February 2022

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Home: A Novel

by Marilynne Robinson

Home: A Novel by Marilynne Robinson is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. Robinson’s most significant work is an unforgettable embodiment of the most profound and universal emotions. Although I have not read the other novels in this series, I plan to add them to my list. I highly recommend this book.

It is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. With the loss of the love of my life ten months ago, these are topics that I have spent time thinking about. Ms. Robinson’s powerful writing weaved a story that I could not stop reading.

Again, I highly recommend this novel.

This is the Goodreads summary.

Hundreds of thousands were enthralled by the luminous voice of John Ames in Gilead Marilynne Robinson’s Pulitzer Prize-winning novel. Home is an entirely independent, deeply affecting novel that takes place concurrently in the same locale, this time in the household of Reverend Robert Boughton, Ames’s closest friend.

Glory Boughton, aged thirty-eight, has returned to Gilead to care for her dying father. Soon her brother, Jack—the prodigal son of the family, gone for twenty years—comes home too, looking for refuge and trying to make peace with a past littered with tormenting trouble and pain.

Jack is one of the great characters in recent literature. A bad boy from childhood, an alcoholic who cannot hold a job, he is perpetually at odds with his surroundings and with his traditionalist father, though he remains Boughton’s most beloved child. Brilliant, lovable, and wayward, Jack forges an intense bond with Glory and engages painfully with Ames, his godfather, and namesake.

Home is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. Robinson’s most significant work is an unforgettable embodiment of the most profound and universal emotions.

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Everything's Fine

Read: June 2023

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Everything’s Fine

by Cecilia Rabess

I started reading Everything’s Fine by Cecilia Rabess today, a stunning debut introducing a talented new author. However, I found it easier to decide to read it after reading in the New York Times that some reviewers on Goodreads criticized the book’s premise without reading it. It’s unfair to criticize something after experiencing it first-hand.

On Jess’s first day at Goldman Sachs, she’s disappointed to learn that she’ll be working with Josh, a white conservative she used to argue with in college. Josh enjoys playing devil’s advocate and can be challenging to deal with.

But when Jess realizes she’s the only Black woman on the team and is being overlooked, Josh offers his support in imperfect but meaningful ways. As they develop an unlikely friendship with undeniable chemistry, it eventually becomes an electrifying romance that shocks them both.

Despite their differences, their attraction brings them together, and Jess starts to question whether happiness is more important than being right. However, as the cultural and political landscape shifts in 2016, Jess, who is just discovering herself, must decide what she’s willing to compromise for love and if everything is excellent. This poignant and sharp novel by Cecilia Rabess asks if they will and if they should.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The Candy House

Read: December 2022

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The Candy House: A Novel

by Jennifer Egan

The Candy House: A Novel by Jennifer Egan focuses on a new technology that allows you access to every memory you’ve ever had and to share your memories in exchange for access to the memories of others—it has seduced multitudes. According to the NYTimes, “this is minimalist maximalism. As a widow, I live in a world of memories, but I would not want them shared as they are in The Candy House. “It’s as if Egan compressed a big 19th-century novel onto a flash drive.”

Of course, I am not able to access my unconscious memories. Albeit in an amateur way, I write down some of my memories as they remind me of the power of the love that Jan and I shared. For example, the essay when I met Jan rekindles the memory and attempts to tell the story the way it happened, not how some would like it to be remembered.

The Candy House is one of the NYTimes’ top five fiction books of 2022. I have read two of them, The Furrows and Checkout 19. Initially, I was overwhelmed by the multitude of characters and was confused. By the novel’s middle, their interconnectedness helped me understand its real meaning. In the end, Egan delivers a fierce and exhilarating testament to the tenacity and transcendence of human longing for authentic connection, love, family, privacy, and redemption. As a widow, authenticity Is what I need to heal.

The Candy House is the seventieth (70) book I have read this year. 

The Goodreads summary provides an overview.

It’s 2010. Staggeringly successful and brilliant tech entrepreneur Bix Bouton is desperate for a new idea. He’s forty, with four kids, and restless when he stumbles into a conversation with mostly Columbia professors, one of whom is experimenting with downloading or “externalizing” memory. Within a decade, Bix’s new technology, Own Your Unconscious—that allows you access to every memory you’ve ever had and to share every memory in exchange for access to the memories of others—has seduced multitudes. But not everyone.

In spellbinding linked narratives, Egan spins out the consequences of Own Your Unconscious through the lives of multiple characters whose paths intersect over several decades. Egan introduces these characters in an astonishing array of styles—from omniscient to first person plural to a duet of voices, an epistolary chapter, and a chapter of tweets. In the world of Egan’s spectacular imagination, there are “counters” who track and exploit desires and “eluders,” who understand the price of taking a bite of the Candy House.

Intellectually dazzling and extraordinarily moving, The Candy House is a bold, brilliant imagining of a world that is moments away. With a focus on social media, gaming, and alternate worlds, you can almost experience moving among dimensions in a role-playing game.​ Egan delivers a fierce and exhilarating testament to the tenacity and transcendence of human longing for real connection, love, family, privacy and redemption.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Blue Skies: A Novel

Read: August 2023

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Blue Skies: A Novel

by T. C. Boyle

I started reading Blue Skies: A Novel by T. C. Boyle today. The book is an eco-thriller with comedic elements. It explores the relationships between humans and their habitats in a world where natural disasters frequently occur, where “the only truism seems to be that things always get worse.”

Denied a dog, a baby, and even a faithful fiancé, Cat suddenly craves a snake: a glistening, writhing creature that can be worn like “jewelry, living jewelry” to match her black jeans. But when the budding social media star promptly loses the young “Burmie” she buys from a local pet store, she inadvertently sets a chain of increasingly dire and outrageous events threatening her survival.

Blue Skies follows the tradition of T. C. Boyle’s finest novels, combining high-octane plotting with biting wit and intelligent social commentary. Here Boyle, one of the most inventive voices in contemporary fiction, transports us to water-logged and heat-ravaged coastal America, where Cat and her hapless, nature-loving family—including her eco-warrior parents, Ottilie and Frank; her brother, Cooper, an entomologist; and her frat-boy-turned-husband, Todd—are struggling to adapt to the “new normal,” in which once-in-a-lifetime natural disasters happen once a week and drinking seems to be the only way to cope.

But there’s more than meets the eye to this compulsive family drama. Lurking beneath the bland façade of twenty-first-century Californians and Floridians attempting to preserve normalcy in the face of violent weather perturbations is a caricature of materialist American society that doubles as a prophetic warning about our planet’s future. Blue Skies deftly explores the often volatile relationships between humans and their habitats, from pet bees and cricket-dependent diets to massive species die-offs and pummeling hurricanes, in which “the only truism seems to be that things always get worse.”


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Such a Fun Age

Read: October 2021

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Such a Fun Age

by Kiley Reid

Such a Fun Age by Kiley Reid. Although many reviewers highly rated this book, I was unsure it was the book for me. However, once I started reading, I could not stop. It is “a striking and surprising debut novel from a compelling new voice. Such a Fun Age is a big-hearted story about race and privilege, set around a young Black babysitter, her well-intentioned employer, and a surprising connection that threatens to undo them both.”

Alix Chamberlain is a woman who gets what she wants and has made a living with her confidence-driven brand, showing other women how to do the same. So she is shocked when her babysitter, Emira Tucker, is confronted while watching the Chamberlains’ toddler one night, walking the aisles of their local high-end supermarket. The store’s security guard, seeing a young Black woman out late with a White child, accuses Emira of kidnapping two-year-old Briar. A small crowd gathers, a bystander films everything, and Emira is furious and humiliated. Alix resolves to make things right.

But Emira herself is aimless, broke, and wary of Alix’s desire to help. At 25, she is about to lose her health insurance and has no idea what to do with her life. When the video of Emira unearths someone from Alix’s past, both women find themselves on a crash course that will upend everything they think they know about themselves and each other.

With empathy and piercing social commentary, Such a Fun Ageexplores the stickiness of transactional relationships, what it means to make someone “family”, and the complicated reality of being a grown up. It is a searing debut for our times.

When race and privilege are paramount issues, this book is a first step to understanding the intersectionality of the issues and addressing them. I recommend this book with our reservation.

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