Visiting Jan During COVID

Estimated reading time: 7 minutes, 32 seconds

Morning Alone

The alarm goes off, but I have already been awake for hours—the thought of seeing Jan had kept all of the synapses in my brain working at quantum speed. The inflatable mattress squishes as I stand up. My legs are wobbly as the bed is so close to the floor.

I devour breakfast; I am not sure what I ate.

Standing in the shower stall, I almost turn the water on again as I cannot remember if I showered. Soaking wet, I decide I must have showered. Today is essential, but it is not our first date.

Last night, I ordered food from Jerusalem Pizza, but they do not open until eleven. I pace aimlessly around the apartment.

I look at the NY Times again. None of the news in the paper version, good or bad, has changed. I debate checking my iPhone but decide to let it be.

At 9:30, I pull on my coat and start to leave to walk to her car. That takes ten minutes. The drive to pick up the food is only thirty minutes. Should I wait here or there? I decide to leave in hopes they open early.

Jerusalem Pizza

“I am here to pick up an order,” I say as I stand by the counter. “We have it almost ready,” the staff person responds. My heart sinks at the thought that I will see my wife late. He seems not to notice my angst.

He explains they are missing one salad. He recites the list of salads I can see in front of me.

“The Israeli salad will do.”

“You already have one already in the order.”

“I know,” I respond quickly. Will two of the same salad work?

“That’s fine; she likes the Israeli Salad.”

“Very good.”

They finish the order while I grab utensils and napkins.

His eyes focus on my left hand. “Is this for your wife?”

“Yes, she is in the hospital.”

“Is she OK?”

“My wife has been in the hospital for a month, and I am unsure how she is doing, but I can visit her.”

 I hear him whispering words in Hebrew.

I just said a prayer for her recovery.

I nod, as I cannot speak. I sign the charge slip and doubled the tip.

The Hospital

“Hi, how are you,” I say to the staff person at the table at the lobby entrance. I am here to see my wife, Jan Lilien.” I want her to check my temperature as quickly as possible. It has been 97.1 on every other visit, and she writes the same number and my name on the slip. I must look puzzled.

“I remembered your name as you have been here every day,” she says.

“Yes.”

I mouth or say thank you as my mind spins while she calls the COVID unit.

“I have Mr. Brown here to see his wife, Jan Lilien.”

I can’t understand what they are saying, but everything seems to go smoothly.

She gives me directions to the COVID unit.

“Thank you.”

With each step I take, I move faster.

The staff tells me to slow down.

“I am going to see my wife!”

“OK. But you cannot run in the hospital.”

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Bel Canto

Read: August 2024

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Bel Canto

by Ann Patchett

Today, I began my journey into the enchanting world of “Bel Canto” by Ann Patchett. This captivating novel delves into the realms of love, opera, and the remarkable ways people forge connections across cultural divides during moments of adversity. The New York Times has recognized it as one of the 100 Best Books of the Century.

At the home of the country’s vice president in South America, a lavish birthday party is underway in honor of the powerful businessman Mr. Hosokawa. The evening is perfect, with Roxanne Coss, opera’s most revered soprano, enchanting the international guests with her singing. However, this idyllic scene is shattered when a group of armed terrorists seizes the entire party. Yet, what initially seems like a nightmare gradually transforms into a moment of unexpected beauty and love. The hostages and captors form bonds that transcend their differences, turning strangers into compatriots, intimate friends, and even lovers, a testament to the resilience of the human spirit and the unexpected beauty that can emerge from the most dire situations.

Ann Patchett’s  Bel Canto is a captivating novel that weaves a story of strength and frailty, love and imprisonment, and an inspiring tale of transcendent romance. Her lyrical prose and vivid imagination bring to life a world where love and opera are unifying forces in a crisis. It’s a story that will keep you turning the pages, eager to uncover its secrets and a testament to Patchett’s captivating storytelling that will leave you spellbound. No wonder the New York Times included it on its list of the 100 Best Books of the Century.

Patchett’s beautiful writing and vivid imagination make Bel Canto a compelling tale that explores themes of strength, vulnerability, love, and confinement and ultimately tells an inspiring story of transcendent romance.

Bel Canto differs from Tom Lake by Ann Patchett, which I read nearly a year ago. Tom Lake is a novel that beautifully explores family, love, and coming of age. Patchett once again proves herself as one of America’s finest writers in both books.

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Lila: A Novel

Read: April 2022

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Lila: A Novel

by Marilynne Robinson

Lila: A Novel by Marilynne Robinson is an unusual but believable love story. Although different than how I met Jan, this novel is about love and romance that, on the surface, should never have happened. Lila, homeless and alone after years of roaming the countryside, steps inside a small-town Iowa church – the only available shelter from the rain- ignites a romance and a debate that will reshape her life. She becomes the wife of a minister, John Ames, and begins a new existence while trying to make sense of the life that preceded her newfound security.

Lila is the third novel in the Gilead series. Previously I read Home, the second in the series, and Jack, the fourth. I highly recommend all three books.

Hopefully, one day I will read the Gilead and complete the series.

The Goodreads summary of the book provides an excellent overview.

Neglected as a toddler, Lila was rescued by Doll, a canny young drifter, and brought up by her in a hardscrabble childhood. Together they crafted a life on the run, living hand to mouth with nothing but their sisterly bond and a ragged blade to protect them. Despite bouts of petty violence and moments of desperation, their shared life was laced with moments of joy and love. When Lila arrives in Gilead, she struggles to reconcile the life of her makeshift family and their days of hardship with the gentle Christian worldview of her husband which paradoxically judges those she loves.

Revisiting the beloved characters and setting of Robinson’s Pulitzer Prize-winning Gilead and Home, a National Book Award finalist, Lila is a moving expression of the mysteries of existence that is destined to become an American classic.

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20 Under 40

Read: January 2019

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20 Under 40 Fiction

by Various Writers Under 40

Short Stories that Will Define the Future of American Letters

The New Yorker’s collection of short stories – 20 Under 40 – is a collection of twenty writers “whose work will help define the future of American letters.”

Some of these I had read in The New Yorker and others I had missed. Either way, they were a pleasure to read.

As The New Yorker wrote,

The range of voices is extraordinary. There is the lyrical realism of Nell Freudenberger, Philipp Meyer, C. E. Morgan, and Salvatore Scibona; the satirical comedy of Joshua Ferris and Gary Shteyngart; and the genre-bending tales of Jonathan Safran Foer, Nicole Krauss, and Téa Obreht. David Bezmozgis and Dinaw Mengestu offer clear-eyed portraits of immigration and identity; Sarah Shun-lien Bynum, ZZ Packer, and Wells Tower offer voice-driven, idiosyncratic narratives. Then there are the haunting sociopolitical stories of Chimamanda Ngozi Adichie, Daniel Alarcón, and Yiyun Li, and the metaphysical fantasies of Chris Adrian, Rivka Galchen, and Karen Russell.

Each of these writers reminds us why we read. And each is aiming for greatness: fighting to get and to hold our attention in a culture that is flooded with words, sounds, and pictures; fighting to surprise, to entertain, to teach, and to move not only us but generations of readers to come. A landmark collection, 20 Under 40 stands as a testament to the vitality of fiction today.

I recommend this collection of short stories.

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Chain Gang All Stars

Read: December 2023

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Chain Gang All Stars

by Nana Kwame Adjei-Brenyah

Today, I started reading “Chain Gang All Stars” by Nana Kwame Adjei-Brenyah. The story revolves around Loretta Thurwar and Hamara “Hurricane Staxxx” Stacker, the main characters of the Chain-Gang All-Stars, a highly controversial and top-rated program in America’s private prison industry. The program is called Criminal Action Penal Entertainment (CAPE), where prisoners compete for the ultimate prize- their freedom. It’s similar to the return of the gladiators but in a modern-day setting.

The story is set in a prison called CAPE, where inmates are forced to participate in death matches as a part of a chain-gang. These matches are held in front of cheering crowds, while the prison authorities claim it to be a righteous act. Among the participants, Thurwar and Staxxx are the most popular as they are also lovers. Thurwar is just a few matches away from her freedom, which she carries with a heavy heart and lethal hammer. Thurwar contemplates how she can help her fellow inmates preserve their humanity despite being forced into these brutal games. However, the owners of CAPE are determined to safeguard their status quo, and they will go to extreme lengths to stop anyone who challenges them. Thurwar’s attempts to resist the system have devastating consequences.

Chain-Gang All-Stars” is a powerful book that sheds light on the American prison system’s problematic alliance with systemic racism, unchecked capitalism, and mass incarceration. It critically examines the situation from various perspectives, from the Links in the field to the protestors, the CAPE employees, and beyond. The book offers a clear-eyed reckoning of what freedom really means in America. It is a noteworthy contribution from a “new and necessary American voice,” as described by Tommy Orange in The New York Times Book Review.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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Finding Peace, One Piece at a Time

Read: September 2021

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Finding Peace, One Piece at a Time

by Rachel Blythe Kodanaz

Finding Peace, One Piece at a Time by Rachel Blythe Kodanaz is a book I wish I had long before Jan died. It provides helpful information on maintaining an organized lifestyle and handling a loved one’s possessions.

Having lost almost everything I had except for the clothes on my back after a house fire in 1972, I thought I had adopted a view that possessions were not significant. With Jan’s death, the truth is that she and I had collected essential possessions, and now it was my responsibility to decide what to do with them.

Rachel’s book is a practical guide, offering a comprehensive understanding of the significance of possessions and a step-by-step plan to manage them. Chapter 3, in particular, is a treasure trove of practical advice, focusing on Building Your Game Plan: The Ten Essentials and covering all the crucial topics – triggers, building a team, and creating a timeline, among others.

Magic of the Six Piles is a well-designed plan that will help most of us confront the possessions of our loved ones. The piles are:

  1. Keep
  2. Share
  3. Donate
  4. Sell
  5. Dispose
  6. Ponder

Having absorbed the book’s wisdom, I am ready to transition from contemplation to action. This is how I sort my wife’s possessions into six piles. I am optimistic that it will also help me streamline my possessions, making books my trusted company more accessible for my sons.

Ms. Kodanaz has presented at my bereavement groups and has been an inspiration. She has also encouraged me to write about my love for Jan in a journal.

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