Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief-vise: all that you will do, all that you even imagine doing, will require many times more effort… Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Help Wanted: A Novel

Read: March 2024

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Help Wanted: A Novel

by Adelle Waldman

Today, I started reading Help Wanted: A Novel by Adelle Waldman. The best-selling author of The Love Affairs of Nathaniel writes a funny and eye-opening tale of work in contemporary America. The story revolves around the members of Team Movement, who work at the big-box store Town Square in a small upstate New York town.

They come in for their shift at 3:55 a.m. every day, and under the supervision of a self-absorbed and barely competent boss, they empty the day’s merchandise truck, stock the shelves, and leave before the store opens for customers.

Although their lives follow a familiar and grueling routine, their real problem is that Town Square needs to schedule them for more hours. As a result, most are barely getting by, even while working second or third jobs. When the store manager, Big Will, announces he is leaving, the members of the Movement spot an opportunity. They set a just-so-crazy-it-might-work plot in motion, hoping one of them might land a management job, providing stability and possibilities for advancement.

The members of Team Movement, including a comedy-obsessed oddball who acts half his age, a young woman trying to keep her “cool kid” status from high school, and a college football hopeful trying to find a new path, band together to achieve their goal. Adelle Waldman’s debut novel was a breakout sensation, and her long-awaited follow-up brings her unparalleled wit and astute social observation to modern, low-wage work. Help Wanted is a humane and darkly comic workplace caper that highlights the hardships low-wage workers face in today’s economy. It is a funny and moving tale of ordinary people trying to make a living.

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The Sunset Years of Agnes Sharp

Read: August 2023

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The Sunset Years of Agnes Sharp

by Leonie Swann

I began reading The Sunset Years of Agnes Sharp by Leonie Swann, translated by Amy Bojang. The book follows a unique group of senior citizens as they try to solve one murder while hiding another, all with the assistance of an innovative tortoise. The mystery is full of twists and turns and is cleverly written by the same author who wrote Three Bags Full, adding a darkly humorous touch to the plot.

It has been an eventful morning for Agnes Sharp and the other inhabitants of Sunset Hall, a house shared by the old and unruly in the sleepy English countryside. Although they have had some issues (misplaced reading glasses, conflicting culinary tastes, decreasing mobility, and gluttonous grandsons), nothing prepares them for an unexpected visit from a police officer with some shocking news. A body has been discovered next door. Everyone puts on a long face for show, but they are secretly relieved the body in question is not the one they’re currently hiding in the shed (sorry, Lillith).

The answer to their little problem with Lillith may have fallen right into their laps. All they have to do is find out who murdered their neighbor so they can pin Lillith’s death on them, thus killing two (old) birds with one stone (cold killer).

Agnes and her group of elderly friends are eager to begin their plan. They believe that creating a mystery will divert suspicion away from themselves. To investigate, they will venture out of their comfort zone and into the less-than-ideal village of Duck End. Along the way, they will encounter suspicious bakers, malfunctioning stairlifts, incompetent criminals, the local authorities, and their hidden secrets.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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The Women: A Novel

Read: February 2024

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The Women: A Novel

by Kristin Hannah

I started reading “The Women: A Novel” by Kristin Hannah today. This book is written by the same author who wrote “The Nightingale” and “The Four Winds.” “The Women” is a story set in a difficult time, depicting a woman’s coming-of-age journey and an epic tale of a divided nation. It highlights that women can be heroes, too.

When twenty-year-old nursing student Frances “Frankie” McGrath hears these words, it is a revelation to her. She was raised in Southern California’s sun-drenched, idyllic world and was sheltered by her conservative parents. She has always prided herself on doing the right thing. However, in 1965, the world is changing, and Frankie suddenly dares to imagine a different future for herself. When her brother ships out to serve in Vietnam, she decides to join the Army Nurse Corps and follows his path.

Frankie, who is as inexperienced as the young men sent to fight in Vietnam, is struggling to cope with the chaos and destruction of war. Every day is a life-or-death gamble that can be filled with hope, betrayal, and shattered friendships. In this brutal reality, she encounters and becomes one of the lucky, the brave, the broken, and the lost.

War is just the beginning for Frankie and her veteran friends. The actual battle awaits when they return home to a divided and changing America, met by angry protesters and a nation wanting to forget Vietnam.

The Women” is a novel that tells the story of a woman who goes to war. Still, its purpose is to bring attention to all the women who have put themselves in danger for their country and whose sacrifice and dedication have often been overlooked. The book is about solid friendships and patriotism, and it portrays a brave and idealistic heroine whose courage in times of war will become a defining moment in history.

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The Midnight Bargain

Read: February 2022

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The Midnight Bargain

by C.L. Polk

The Midnight Bargain by C.L. Polk is about Beatrice Clayborn, a sorceress, who was the next book to read. She practices magic in secret, terrified of being locked into a marital collar that will cut off her powers to protect her unborn children. She dreams of becoming a full-fledged Magus and pursuing magic as her calling as men do. Still, her family has staked everything to equip her for Bargaining Season, when young men and women of means descend upon the city to negotiate the best marriages. The Clayborn’s are in severe debt, and only she can save them by securing a good match before their creditors call.

In a stroke of luck, Beatrice finds a grimoire that contains the key to becoming a Magus, but before she can purchase it, a rival sorceress swindles the book right out of her hands. Beatrice summons a spirit to help her get it back, but her new ally exacts a price: Beatrice’s first kiss . . . with her adversary’s brother, the handsome, compassionate, and fabulously wealthy Ianthe Lavan.

The more Beatrice is entangled with the Lavan siblings, the harder her decision becomes: If she casts the spell to become a Magus, she will devastate her family and lose the only man to ever see her for who she is; but if she marries—even for love—she will sacrifice her magic, her identity, and her dreams. But how can she choose just one, knowing she will forever regret the path not taken?

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Anxious People

Read: June 2022

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Anxious People

by Fredrik Backman

Anxious People by Fredrik Backman, a poignant comedy about a crime that never occurred. A would-be bank robber disappears into thin air, and eight highly anxious strangers find they have more in common than they ever imagined. Anxious People is a novel that Jan and I would have both enjoyed reading. It jumped off the e-book shelf while looking for a new book to read.

Although Anxious People is a humorous comedy, it is really about the enduring power of friendship, forgiveness and hope, which are the key to our survival as individuals, couples and communities. It is the core of what made the love that Jan and I shared special and unique, but it is also what I gain from my participation in my various grief groups as well as Friday night Shabbat services.

I highly recommend this book.

The Goodreads summary provides an overview.

Viewing an apartment usually doesn’t turn into a life-or-death situation. Still, this particular open house becomes just that when a failed bank robber bursts in and takes everyone in the apartment hostage. As the pressure mounts, the eight strangers slowly open up to one another and reveal long-hidden truths.

First is Zara, a wealthy bank director who has been too busy to care about anyone else until tragedy changed her life. Now, she’s obsessed with visiting open houses to see how ordinary people live—perhaps, setting an old wrong to the right. Then there’s Roger and Anna-Lena, an Ikea-addicted retired couple who are on a never-ending hunt for fixer-uppers to hide the fact that they don’t know how to fix their failing marriage. Julia and Ro are a young lesbian couple and soon-to-be parents who are nervous about their chances for a successful life together since they can’t agree on anything. And there’s Estelle, an eighty-year-old woman who has lived long enough to be unimpressed by a masked bank robber waving a gun. And despite the story she tells them all, Estelle hasn’t come to the apartment to view it for her daughter, and her husband isn’t outside parking the car.

As police surround the premises and television channels broadcast the hostage situation live, the tension mounts, and even deeper secrets are slowly revealed. Before long, the robber must decide which is the terrifying prospect: going out to face the police or staying in the apartment with this group of impossible people.

Rich with Fredrik Backman’s “pitch-perfect dialogue and an unparalleled understanding of human nature” (Shelf Awareness), Anxious People’s whimsical plot serves up unforgettable insights into the human condition and a gentle reminder to be compassionate to all the anxious people we encounter every day.


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The Bully Pulpit

Read: October 2019

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The Bully Pulpit

by Doris Kearns Goodwin

The Bully Pulpit by Doris Kearns Goodwin is a history of the first decade of the Progressive era told by focusing on the intense friendship of Theodore Roosevelt and William Howard Taft.

Although I had read many books about Theodore Roosevelt, I had limited knowledge about Taft until I read this book. Reading about their friendship and its eventual collapse helped me to understand both of these presidents and the times in which they lived in a way I had not understood previously.

The Bully Pulpit is also the story of the muckraking press, which arouses the spirit of reform that helps Roosevelt push the government to shed its laissez-faire attitude toward robber barons, corrupt politicians, and corporate exploiters of our natural resources. The muckrakers are portrayed through the greatest group of journalists ever assembled at one magazine—Ida Tarbell, Ray Stannard Baker, Lincoln Steffens, and William Allen White—teamed under the mercurial genius of publisher S. S. McClure.

Goodwin’s narrative is founded upon a wealth of primary materials. The correspondence of more than four hundred letters between Roosevelt and Taft begins in their early thirties and ends only months before Roosevelt’s death. Edith Roosevelt and Nellie Taft kept diaries. The muckrakers wrote hundreds of letters to one another, kept journals, and wrote their memoirs. The letters of Captain Archie Butt, who served as a personal aide to both Roosevelt and Taft, provide an intimate view of both men.

I recommend this book without reservations.

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