Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Working

Read: October 2019

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Working

by Robert A. Caro

Working by Robert A. Caro is a book of evocatively written essays on his life and work. Among the many valuable words of wisdom is his case that one needs to look at every piece of information, not just what we know when we begin. Far too often, people jump to conclusions without having learned all of the facts.

He describes what it was like to interview the mighty Robert Moses and to begin discovering the extent of the political power Moses wielded; the combination of discouragement and exhilaration he felt confronting the vast holdings of the Lyndon B. Johnson Library in Austin, Texas; his encounters with witnesses, including longtime residents wrenchingly displaced by the construction of Moses’ Cross-Bronx Expressway and Lady Bird Johnson acknowledging the beauty and influence of one of LBJ‘s mistresses. He gratefully remembers how, after years of working in solitude, he found a writers’ community at the New York Public Library, and details the ways he goes about planning and composing his books.

Caro recalls the moments at which he came to understand that he wanted to write not just about the men who wielded power but about the people and the politics that were shaped by that power. And he talks about the importance to him of the writing itself, of how he tries to infuse it with a sense of place and mood to bring characters and situations to life on the page. Taken together, these reminiscences–some previously published, some written expressly for this book–bring into focus the passion, the wry self-deprecation, and the integrity with which this brilliant historian has always approached his work.

I found this one of the best books I have read and recommend it to all readers.

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Beautyland: A Novel

Read: June 2024

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Beautyland: A Novel

by Marie-Helene Bertino

I started reading “Beautyland: A Novel” by Marie-Helene Bertino today. The novel is about the fragility and resilience of life on Earth and in our universe. It tells the story of a baby born with extraordinary perception to a single mother in Philadelphia when Voyager 1 embarks on its interstellar journey. As we follow Adina Giorno’s growth, we witness her awakening to her exceptional nature—a profound understanding of a distant planet.

With the introduction of a fax machine, she established a unique form of communication with her extraterrestrial kin, who dispatched her to observe and document the peculiarities of Earthlings. As Adina navigates the complexities of the human world, she not only shares her observations on the joys and terrors of existence but also grapples with her identity and the connections she forms. At a pivotal moment, a trusted friend encourages her to share her transmissions with the world, leading her to question if she is alone in her experiences.

‘Beautyland‘ is a wise, tender novel about a woman who doesn’t feel at home on Earth, penned by the highly acclaimed Marie-Helene Bertino, the author of ‘Parakeet.’ With her proven ability to craft compelling narratives, Bertino’s ‘Beautyland’ is a surefire way to captivate readers interested in contemporary fiction, themes of identity, and human connection.

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The Day Tripper: A Novel

Read: April 2024

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The Day Tripper: A Novel

by James Goodhand

Today, I began reading “The Day Tripper: A Novel” by James Goodhand. The story centers around Alex Dean, who can travel through time but, unfortunately, always ends up in the wrong place at the wrong time. This book is a perfect read for a rainy April day. The story moves quickly in just the first few pages, with time flying by faster than it does for Alex.

It’s 1995, and Alex Dean has it all: a spot at Cambridge University next year, the love of a fantastic woman named Holly, and all the time ahead of him. That is, until a brutal encounter with a ghost from his past sees him beaten, battered, and almost drowning in the Thames.

The next day, he wakes to find himself in a messy, derelict room he’s never seen before, in grimy clothes Alex doesn’t recognize, with no idea how he got there. A glimpse in the mirror tells him he’s much older and has been living a hard life, his features ravaged by time and poor decisions. He snatches a newspaper and finds it’s 2010—fifteen years since the fight.

After finally drifting off to sleep, Alex wakes the following morning to find it’s now 2019, another nine years later. But the next day, it’s 1999. Never knowing which day is coming, he begins to piece together what happens in his life after that fateful night by the river.

But what exactly is going on? Why does his life look nothing like he thought it would? What about Cambridge and Holly? In this page-turning adventure, Alex must navigate the years to learn that small actions have an untold impact. And that might be all he needs to save the people he loves and, equally importantly, himself.

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Old Babes in the Wood: Stories

Read: March 2023

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Old Babes in the Wood: Stories

by Margaret Atwood

Old Babes in the Wood: Stories by Margaret Atwood is a collection of remarkable tales, which delight, illuminate, and are quietly devastating. I especially found the stories about Nell and Tig compelling and engaging. Widow describes a letter Nell almost wrote to a friend after Tig is gone. Nell sounded like me when she said, “the warping or folding of time. In some parts of this refolded time, Tig still exists, as much as he ever did.”

The letter Nell is writing to a friend she will never be sent because it speaks to the harsh reality that grief imposes upon us.

Margaret Atwood writes as Nell,

Have I gone into the dark tunnel, dressed in mourning black with gloves and a veil, and come out the other end, all cheery and wearing bright colors and loaded for bear?

No. Because it’s not a tunnel. There isn’t any other end. Time has ceased to be linear, with life events and memories in a chronological row, like beads on a string. It’s the strangest feeling, or experience, or rearrangement. I’m not sure I can explain it to you.

As much as it might have appeared that I was in a dark tunnel after Jan died, I was not and am not now. There is indeed no defined end to the grief journey.

We all must learn how to live without our loved ones. The pathway I have chosen may not work for anyone else.

The earlier Nell and Tig stories are memories about their lives, reminding me of how I wrote about how Jan and I met and eventually married.

I have always enjoyed reading Atwood‘s writing, including The Handmaid’s Tale and The Testaments. I highly recommend Old Babes in the Wood: Stories by Margaret Atwood!

Old Babes in the Wood was my twenty-third book of the year and fulfilled my Goodreads 2023 Reading Challenge, but it will not end my reading this year. 

The Goodreads summary provides an overview,

Margaret Atwood has established herself as one of the world’s most visionary and canonical authors. This collection of fifteen extraordinary stories–some of which have appeared in The New Yorker and The New York Times Magazine–explores the full warp and weft of experience, speaking to our unique times with Atwood’s characteristic insight, wit, and intellect.

The two brave sisters of the title story grapple with loss and memory on a perfect summer evening; “Impatient Griselda” explores alienation and miscommunication with a fresh twist on a folkloric classic; and “My Evil Mother” touches on the unbelievable, examining a mother-daughter relationship in which the mother purports to be a witch. At the heart of the collection are seven extraordinary stories that follow a married couple across the decades, the moments big and small that make up a long life of uncommon love–and what comes after.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Tenth of December: Stories

Read: July 2024

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Tenth of December: Stories

by George Saunders

One of the most important and blazingly original writers of his generation, George Saunders, is an undisputed master of the short story. The Tenth of December is his most honest, accessible, and moving collection yet. It is one of the New York Times’ 100 Best Books of the Century. The book is structured as a collection of short stories, each offering a unique and compelling narrative.

In the taut opener, “Victory Lap,” a boy witnesses the attempted abduction of the girl next door and is faced with a harrowing choice: Does he ignore what he sees or override years of smothering advice from his parents and act?

In “Home,” a combat-damaged soldier moves back in with his mother and struggles to reconcile the world he left behind with the one he has returned to.

In the title story, a stunning meditation on imagination, memory, and loss, a middle-aged cancer patient walks into the woods to commit suicide, only to encounter a troubled young boy who, throughout a fateful morning, gives the dying man a final chance to recall who he is.

An unfortunate, deluded owner of an antique store; two mothers struggling to do the right thing; a teenage girl whose idealism is challenged by a brutal brush with reality; a man tormented by a series of pharmaceutical experiments that force him to lust, to love, to kill—the unforgettable characters that populate the pages of Tenth of December are vividly and lovingly infused with Saunders’s signature blend of exuberant prose, deep humanity, and stylistic innovation.

Writing brilliantly and profoundly about class, sex, love, loss, work, despair, and war, Saunders cuts to the core of the contemporary experience. These stories take on the big questions and explore the fault lines of our morality, delving into what makes us suitable and what makes us human. They are not just stories but profound explorations that will stimulate your intellect and make you ponder.

Unsettling, insightful, and hilarious, the stories in Tenth of December—through their manic energy, their focus on what is redeemable in human beings, and their generosity of spirit—not only entertain and delight but also fulfill Chekhov’s dictum that art should “prepare us for tenderness.” The humor in these stories will keep you entertained and laughing, even as they delve into profound themes.


George Saunders is the author of thirteen books, including the novel Lincoln in the Bardo, which won the Booker Prize, and five collections of stories, including Tenth of December, which was a finalist for the National Book Award, and the recent collection Liberation Day (selected by former President Obama as one of his ten favorite books of 2022).

Three of Saunders’s books—Pastoralia, Tenth of December, and Lincoln in the Bardo—were chosen for The New York Times’s list of the 100 Best Books of the 21st Century. Saunders hosts the popular Story Club on Substack, which grew out of his book, A Swim in a Pond in the Rain. In 2013, he was named one of Time’s 100 Most Influential People. He teaches in the creative writing program at Syracuse University.



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The Amen Effect

Read: March 2025

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The Amen Effect

by Sharon Brous

Sharon Brous, a prominent American rabbi, argues in The Amen Effect: Ancient Wisdom to Heal Our Hearts and Mend Our Broken World that the essential spiritual work of our time—though instinctual and often countercultural—focuses on connecting through celebration, sorrow, and solidarity. We must support one another in times of joy and pain, embracing vulnerability and possibility, nurturing relationships with shared purposes, and creating communities centered on care.

From one of our country’s most prominent rabbis comes this inspiring book about the power of community, based on one of her most impactful sermons. What will it take to mend our broken hearts and rebuild our society in a time of loneliness, isolation, social rupture, and alienation?

Brous contends that honoring our most basic human instinct—the yearning for authentic connection—is the way to reawaken our shared humanity and begin the healing process. This kind of sacred presence is captured by the word amen, a powerful ancient idea that we affirm the fullness of one another’s experience by demonstrating, in body and word: “I see you. You are not alone.”

An acclaimed preacher and storyteller, Brous pairs heart-driven anecdotes from her experience building and pastoring to a leading-edge faith community over the past two decades with ancient Jewish wisdom and contemporary science. The result is a clarion call: the sense of belonging engendered by our genuine presence is both a social and biological need, as well as a moral and spiritual necessity.

With original insights and practical tools, The Amen Effect translates foundational ideas into simple practices that connect us to our better angels, offering a blueprint for a more meaningful life and a more connected and caring world.

As she writes in the preface, after listing the joys and pains of life, weddings, births, and death,

It’s in these times that I feel the weight of the work, the privilege of being alive, the blessing of being so close to such raw beauty and pain. It’s there that I have learned the power of saying ‘Amen‘ to one another’s grief and joy, sorrow and celebration with our very presence. Of bearing witness to profound suffering and protesting injustice with our very presence. Of comforting and consoling, surviving and thriving with our very presence. What I’ve learned, during the years, is the meaning of sacred companionship. I have seen, in ways subtle and pronounced, a longing to connect with others who can help hold the pain, a need to share what we’ve learned in the trenches, and a desire to give, even when we ourselves have barely caught our breath. And I have seen how knowing that we’re not alone can both heighten our joy and help us endure unimaginable hardship.

Click here to read about my experience listening to Rabbi Brous at the Kol Tzedek Speakers Series at Temple Emanu-El in Westfield.


Sharon Brous is the senior and founding rabbi of IKAR, a leading-edge Jewish community based in Los Angeles, and the author of The Amen Effect: Ancient Wisdom to Heal Our Hearts and Mend Our Broken World, a national bestseller.

In 2013, Brous blessed President Obama and Vice President Biden at the Inaugural National Prayer Service, and in 2021, returned to bless President Biden and Vice President Harris and then led the White House Passover Seder 2021 and the Hanukkah candle lighting with the Vice President and Second Gentleman in 2023. She was ranked as the number one most influential Rabbi in America by Newsweek/The Daily Beast. She has also been recognized by The Forward and the Jerusalem Post as one of the most influential Jews alive today. Her work has appeared in prominent publications, including The New York Times, The Los Angeles Times, and The Washington Post. Additionally, her TED talk, “Reclaiming Religion,” has been viewed by over 1.5 million people.

Brous is part of the inaugural cohort of Auburn Seminary’s Senior Fellows program, which brings together top faith leaders working on the frontlines for justice. She sits on the faculty of REBOOT and serves on the International Council of the New Israel Fund, as well as the national steering committee for the Poor People’s Campaign.

A Columbia University graduate (holding both undergraduate and M.A. degrees in Human Rights), she was ordained by the Jewish Theological Seminary and resides in Los Angeles with her husband and children.


 

 

 



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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