Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The School for Good Mothers

Read: February 2023

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The School for Good Mothers

by Jessamine Chan

The School for Good Mothers by Jessamine Chan is a searing page-turner that is also a transgressive novel of ideas about the perils of “perfect” upper-middle-class parenting; the violence enacted upon women by both the state and, at times, one another; the systems that separate families; and the boundlessness of love, The School for Good Mothers introduces, in Frida, an everywoman for the ages.

Although it has been forty-two years since I became a parent, I still remember the anxiety of being a father. What if I could not be a good dad? Fortunately, I never had a bad like Frida. or lived in an age where parents would be sent to “a Big Brother-like institution that measures the success or failure of a mother’s devotion.”

Reading The School for Good Mothers was a reminder that solutions like this are possible unless we are willing to invest in families so that the skills and support are there to resolve any issues in the home. As a widow, I found Frida’s inner dialogue comparable to the early stages of my grief journey—the total isolation and fear of failing dominated my first months of mourning.

The School for Good Mothers had been on my book list since the middle of last year. I recommend it without reservations! Jan would have already read it, and we would be debating its fine points.

The Goodreads summary provides an overview,

In this taut and explosive debut novel, one lapse in judgement lands a young mother in a government reform program where custody of her child hangs in the balance.

Frida Liu is struggling. She doesn’t have a career worthy of her Chinese immigrant parents’ sacrifices. She can’t persuade her husband, Gust, to give up his wellness-obsessed younger mistress. Only with Harriet, their cherubic daughter, does Frida finally attain the perfection expected of her. Harriet may be all she has, but she is just enough.

Until Frida has a very bad day.

The state has its eyes on mothers like Frida. The ones who check their phones, letting their children get injured on the playground; who let their children walk home alone. Because of one moment of poor judgment, a host of government officials will now determine if Frida is a candidate for a Big Brother-like institution that measures the success or failure of a mother’s devotion.

Faced with the possibility of losing Harriet, Frida must prove that a bad mother can be redeemed. That she can learn to be good.

Using dark wit to explore the pains and joys of the deepest ties that bind us, Chan has written a modern literary classic.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Endling

Read: August 2025

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Endling: A Novel

by Maria Reva

Endling” by Maria Reva, a novel of exceptional literary merit, has been longlisted for the 2024 Booker Prize. Set in Ukraine, the story follows an eccentric scientist who breeds rare snails and two sisters pretending to be part of the marriage industry in their quest to find their activist mother. As Russia invades, they embark on a wild journey that involves kidnapped bachelors and the last of its kind snail. This darkly comic novel delves into themes of survival, love, and hope in times of increasing darkness.

In Ukraine in 2022, Yeva is a loner and a daring scientist who lives outside her mob country. She traverses the country’s forests and valleys, attempting to breed rare snails, though her efforts often fail. Meanwhile, her relatives pressured her not to settle down and start a family. What they don’t realize is that Yeva is already dating multiple men—not for love, but to fund her work—entertaining Westerners who come to Ukraine on guided romance tours believing they’ll find docile brides untainted by feminism and modernity.

Nastia and her sister, Solomiya, are also caught up in the booming marriage industry. They pose as a hopeful bride and her translator while secretly searching for their missing mother, who disappeared after years of fierce activism against the romance tours.

Together, they embark on a journey across hundreds of miles, joined by three angry women, a truckload of kidnapped bachelors, and Lefty, a rare snail with one last chance to perpetuate his species. However, their plans come to a sudden halt when Russia invades.

In a strikingly ambitious and profoundly moving metafictive narrative, Endling masterfully balances horror and family, drawing on Reva’s own experiences as a Ukrainian expat navigating her family’s struggle for survival during wartime. As fiction and reality converge on the page, Reva explores the harsh truths of war: What stories must we tell ourselves to survive? How do we maintain our routines amid military occupation? And for those watching from abroad: Can our sense of normalcy and security ever be restored, or have they always been a fragile illusion?

Endling is a tour de force from an author who weaves a story of love, loss, humor, and devastation that only she can tell.


Maria Reva was born in Ukraine and raised in Canada. She holds an MFA from the Michener Center at the University of Texas. Her fiction has been published in The Atlantic, McSweeney’s, and Best American Short Stories, among others, and has won a National Magazine Award. Additionally, she works as an opera librettist.



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Lila: A Novel

Read: April 2022

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Lila: A Novel

by Marilynne Robinson

Lila: A Novel by Marilynne Robinson is an unusual but believable love story. Although different than how I met Jan, this novel is about love and romance that, on the surface, should never have happened. Lila, homeless and alone after years of roaming the countryside, steps inside a small-town Iowa church – the only available shelter from the rain- ignites a romance and a debate that will reshape her life. She becomes the wife of a minister, John Ames, and begins a new existence while trying to make sense of the life that preceded her newfound security.

Lila is the third novel in the Gilead series. Previously I read Home, the second in the series, and Jack, the fourth. I highly recommend all three books.

Hopefully, one day I will read the Gilead and complete the series.

The Goodreads summary of the book provides an excellent overview.

Neglected as a toddler, Lila was rescued by Doll, a canny young drifter, and brought up by her in a hardscrabble childhood. Together they crafted a life on the run, living hand to mouth with nothing but their sisterly bond and a ragged blade to protect them. Despite bouts of petty violence and moments of desperation, their shared life was laced with moments of joy and love. When Lila arrives in Gilead, she struggles to reconcile the life of her makeshift family and their days of hardship with the gentle Christian worldview of her husband which paradoxically judges those she loves.

Revisiting the beloved characters and setting of Robinson’s Pulitzer Prize-winning Gilead and Home, a National Book Award finalist, Lila is a moving expression of the mysteries of existence that is destined to become an American classic.

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Orbital

Read: December 2023

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Orbital: A Novel

by Samantha Harvey

Today, I started reading “Orbital” by Samantha Harvey. “Orbital” is a slender novel with epic power that captures a single day in the lives of six women and men hurtling through space. The author’s prose is poetic and impossible to put aside. Watching the Earth through the eyes of space travelers is refreshing. If I finish reading it by Sunday, it will be the 78th book I’ve read this year or the first one of 2024.

They are not going towards the moon or the vast unknown but are orbiting our planet. These astronauts and cosmonauts come from various countries, including America, Russia, Italy, Britain, and Japan. They are selected for one of the last space station missions before the program is dismantled. They have left their lives behind to travel over seventeen thousand miles an hour as the earth reels below.

Throughout the book, we catch glimpses of their earthly lives through brief communications with their families, photos, and talismans. We watch them whip up dehydrated meals, float in gravity-free sleep, and exercise in regimented routines to prevent their muscles from atrophying. We also witness them form bonds that will stand between them and utter solitude. Most importantly, we are with them as they behold and record their silent blue planet. Their experiences of sixteen sunrises and sunsets and the bright, blinking constellations of the galaxy are breathtakingly beautiful and surprisingly intimate. Additionally, we get to see the marks of civilization far below, encrusted on the planet on which we live.

It is a profound, contemplative, and gorgeous book that eloquently meditates on space. Moreover, it is a moving elegy reflecting our humanity, environment, and planet.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. For gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Intermezzo: A Novel

Read: February 2025

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Intermezzo: A Novel

by Sally Rooney

Today, I dove into Sally Rooney‘s latest novel, “Intermezzo: A Novel,” which instantly captivated me. It’s a profoundly moving exploration of grief, love, and the intricacies of family life, with love at its heart. Reflecting on my journey through grief, I remember how Ms. Rooney‘s earlier work, “Beautiful World, Where Are You,” resonated with me during my second year of processing loss.

It beautifully highlighted love’s enduring nature and reminded me that, even in the depths of sorrow, love’s essence never truly fades. Intermezzo focuses on the fact that, aside from being brothers, Peter and Ivan Koubek seem to have little in common.

Peter is a Dublin lawyer in his thirties—successful, competent, and unassailable. But in the wake of their father’s death, he’s medicating himself to sleep and struggling to manage his relationships with two very different women—his enduring first love, Sylvia, and Naomi, a college student for whom life is one long joke.

Ivan is a twenty-two-year-old competitive chess player. He has always seen himself as socially awkward, a loner, the antithesis of his glib elder brother. Now, in the early weeks of his bereavement, Ivan meets Margaret, an older woman emerging from her turbulent past, and their lives become rapidly and intensely intertwined.

In this poignant interlude, we delve into the lives of two brothers grappling with their profound grief, accompanied by those who care for them. It’s a raw journey woven with threads of longing, heartbreak, and the flickering light of hope. Together, they navigate the uncharted territory of loss, uncovering how much the human spirit can withstand before it shatters.



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All the Water in the World

Read: January 2025

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All the Water in the World

by Eiren Caffall

Today, I began reading “All the Water in the World” by Eiren Caffall. Like Station Eleven, this novel is a literary thriller set partly in New York’s American Museum of Natural History in a flooded future. In the spirit of “From the Mixed-Up Files of Mrs. Basil E. Frankweiler” and “Parable of the Sower,” this adventurous journey offers hope that the most important things—love, work, community, and knowledge—will endure.

All the Water in the World” is narrated by a girl who profoundly appreciates water. In the years following the melting of the glaciers, Nonie, along with her older sister, parents, and their researcher friends, remains in a nearly deserted New York City. They have established a settlement on the roof of the American Museum of Natural History with a strict rule: they may only take from the exhibits in cases of dire need. They hunt and grow their food in Central Park while also working to preserve the collections of human history and science.

When a superstorm breaches the city’s flood walls, Nonie and her family must escape northward along the Hudson River. They carry a book containing records of the lost collections. As they race down the swollen river for safety, they encounter communities that have adapted in various, sometimes frightening, ways to the new reality. Despite the challenges, they are determined to create a new world that honors everything they have saved.

Inspired by the stories of curators in Iraq and Leningrad who worked to protect their collections during wartime, “All the Water in the World” mediates what we strive to preserve from collapse and an adventure filled with danger, storms, and a fight for survival.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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