Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Happiness Falls: A Novel

Read: September 2023

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Happiness Falls: A Novel

by Angie Kim

I highly recommend reading Happiness Falls, a book authored by Angie Kim. The story is about a family’s search for their missing father, which leads them to question their beliefs and relationships. The award-winning author of Miracle Creek writes this thrilling and emotionally profound book.

We didn’t call the police right away.” These are the first words of an extraordinary novel about a biracial Korean-American family in Virginia whose lives are upended when their beloved father and husband go missing.

Mia, the irreverent, hyper-analytical twenty-year-old daughter, has an explanation for everything—which is why she isn’t initially concerned when her father and younger brother Eugene don’t return from a walk in a nearby park. They must have lost their phone and or stopped for an errand somewhere. But by the time Mia’s brother runs through the front door bloody and alone, it becomes clear that the father in this tight-knit family is missing, and the only witness is Eugene, who has the rare genetic condition Angelman syndrome and cannot speak.

Happiness Falls is a gripping investigation that centers around a father’s disappearance and the intricate dynamics of his family. As the clock ticks, the family’s deepest secrets come to light, raising questions about love, communication, and the human experience. This novel is a thrilling blend of mystery, drama, and philosophical exploration, showcasing Angie Kim’s remarkable storytelling skills that garnered her numerous accolades for her debut novel, Miracle Creek. Through the family’s journey, Kim offers a fresh perspective on the missing person story, creating a memorable tale of a family that goes to great lengths to understand each other.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Help Wanted: A Novel

Read: March 2024

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Help Wanted: A Novel

by Adelle Waldman

Today, I started reading Help Wanted: A Novel by Adelle Waldman. The best-selling author of The Love Affairs of Nathaniel writes a funny and eye-opening tale of work in contemporary America. The story revolves around the members of Team Movement, who work at the big-box store Town Square in a small upstate New York town.

They come in for their shift at 3:55 a.m. every day, and under the supervision of a self-absorbed and barely competent boss, they empty the day’s merchandise truck, stock the shelves, and leave before the store opens for customers.

Although their lives follow a familiar and grueling routine, their real problem is that Town Square needs to schedule them for more hours. As a result, most are barely getting by, even while working second or third jobs. When the store manager, Big Will, announces he is leaving, the members of the Movement spot an opportunity. They set a just-so-crazy-it-might-work plot in motion, hoping one of them might land a management job, providing stability and possibilities for advancement.

The members of Team Movement, including a comedy-obsessed oddball who acts half his age, a young woman trying to keep her “cool kid” status from high school, and a college football hopeful trying to find a new path, band together to achieve their goal. Adelle Waldman’s debut novel was a breakout sensation, and her long-awaited follow-up brings her unparalleled wit and astute social observation to modern, low-wage work. Help Wanted is a humane and darkly comic workplace caper that highlights the hardships low-wage workers face in today’s economy. It is a funny and moving tale of ordinary people trying to make a living.

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Cloud Atlas: A Novel

Read: September 2024

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Cloud Atlas: A Novel

by David Mitchell

Today, I started reading Cloud Atlas: A Novel by David Mitchell, one of The New York Times’ 100 Best Books of the 21st Century. Cloud Atlas begins in 1850 with Adam Ewing, an American notary, voyaging from the Chatham Isles to his home in California. Ewing is befriended by a physician, Dr. Goose, who begins treating him for a rare species of brain parasite.

The novel careens, with dazzling virtuosity, to Belgium in 1931, the West Coast in the 1970s, an inglorious present-day England, a Korean superstate of the near future where neo-capitalism has run amok, and, finally, a postapocalyptic Iron Age Hawaii in the last days of history. But the story doesn’t end even there. What sets Cloud Atlas apart is its unique narrative structure, which boomerangs back through centuries and space, returning by the same route, in reverse, to its starting point. This journey reveals how the disparate characters connect, how their fates intertwine, and how their souls drift across time like clouds across the sky.

As wild as a video game, as mysterious as a Zen koan, Cloud Atlas is an unforgettable tour de force that, like its incomparable author, has transcended its cult classic status to become a worldwide phenomenon. The novel’s diverse settings and cultures, from 1850 Chatham Isles to a postapocalyptic Iron Age Hawaii, appeal to readers across the globe, offering a rich and varied reading experience.

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Luky Us

Read: March 2022

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Lucky Us: A Novel

by Amy Bloom

Having surpassed my Goodreads 2022 reading goal, I wanted a lite, historical fiction book and found this one in the e-libraryLucky Us by Amy Bloom is a book that hooked me on the opening line – “My father’s wife died. My mother said we should drive down to his place and see what might be in it for us.” I enjoyed reading it and highly recommend it.

The first section in Hollywood was the one I found less appealing. Partly that is because I identified with Eva, and she does not fulfill her leading role until the last two sections. Its depiction of how people survived the way years by sometimes is a reminder of our inner resilience.

Goodreads provides the following summary.

So begins this remarkable novel by Amy Bloom, whose critically acclaimed Away was called “a literary triumph” (The New York Times). Lucky Us is a brilliantly written, deeply moving, fantastically funny novel of love, heartbreak, and luck.

Disappointed by their families, Iris, the hopeful star and Eva the sidekick, journey through 1940s America in search of fame and fortune. Iris’s ambitions take the pair across the America of Reinvention in a stolen station wagon, from small-town Ohio to an unexpected and sensuous Hollywood, and to the jazz clubs and golden mansions of Long Island.

With their friends in high and low places, Iris and Eva stumble and shine through a landscape of big dreams, scandals, betrayals, and war. Filled with gorgeous writing, memorable characters, and surprising events, Lucky Us is a thrilling and resonant novel about success and failure, good luck and bad, the creation of a family, and the pleasures and inevitable perils of family life, conventional and otherwise. From Brooklyn’s beauty parlors to London’s West End, a group of unforgettable people love, lie, cheat, and survive in this story of our fragile, absurd, heroic species.

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Western Lane: A Novel

Read: March 2023

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Western Lane: A Novel

by Chetna Maroo

Western Lane: A Novel by Chetna Maroo is a taut, enthralling first novel about grief, sisterhood, and a young athlete’s struggle to transcend herself. Western Lane is about three sisters who have lost their mother. Their father is encouraged to provide structure in raising his daughters. Gopi, the narrator, is a squash player, and her father imposes a brutal training regimen. I highly recommend this novel!

The following passage explains the importance of squash to Gopi and how she views the world.

In the court, your mind is not only on the shot you’re about to play and the shot with which your opponent might reply, but on the shots that will follow two, three, four moves ahead. You’re watching your opponent’s position and the game he or she is playing, making calculations. This is how you choose which way to go. Though your mind is following several paths at once, it’s not a splitting but expansion forwards and backward in time, and it happens so quickly that it feels like instinct. Sometimes, you don’t even know you are thinking.

In the first few pages, I wondered what I would have done if I had been a single parent when my sons were young. I do not believe I would have imposed on my sons what Gopi’s father did to her. However, I have found reading and art to be powerful tools to help me cope with grief. I have focused on rituals, structure, and purpose.

The Goodreads summary provides an overview,

Eleven-year-old Gopi has been playing squash since she was old enough to hold a racket. When her mother dies, her father enlists her in a quietly brutal training regimen, and the game becomes her world. Slowly, she grows apart from her sisters. Her life is reduced to the sport, guided by its rhythms: the serve, the volley, the drive, the shot, and its echo.

But on the court, she is not alone. She is with her pa. She is with Ged, a thirteen-year-old boy with formidable talent. She is with the players who have come before her. She is in awe.

An indelible coming-of-age story, Chetna Maroo’s first novel captures the ordinary and annihilates it with beauty. Western Lane is a valentine to innocence, to the closeness of sisterhood, to the strange ways we know ourselves and each other.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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How Democracies Die

Read: January 2021

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How Democracies Die: What History Reveals About Our Future

by Steven Levitsky and Daniel Ziblatt

How Democracies Die: What History Reveals About Our Future by Steven Levitsky and Daniel Ziblatt was on my reading list for almost a year. In late December of last year, I started reading it and was in the final chapter on January 6, 2021. Like many of us, I never in my life expected to see a day like that in our country.

This type of event is one the authors talk about in their book.

According to the overview in GoodReads,

Donald Trump’s presidency has raised a question that many of us never thought we’d be asking: Is our democracy in danger? Harvard professors Steven Levitsky and Daniel Ziblatt have spent more than twenty years studying the breakdown of democracies in Europe and Latin America, and they believe the answer is yes. Democracy no longer ends with a bang–in a revolution or military coup–but with a whimper: the slow, steady weakening of critical institutions, such as the judiciary and the press, and the gradual erosion of long-standing political norms. The good news is that there are several exit ramps on the road to authoritarianism. The bad news is that, by electing Trump, we have already passed the first one.

Drawing on decades of research and a wide range of historical and global examples, from 1930s Europe to contemporary Hungary, Turkey, and Venezuela, to the American South during Jim Crow, Levitsky and Ziblatt show how democracies die–and how ours can be saved.

Our democracy is too valuable for us to have it die. We all need to work to preserve and strengthen it. How Democracies Die is a book that everyone needs to read!

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