Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Nobody Gets Out Alive- Stories

Read: February 2023

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Nobody Gets Out Alive: Stories

by Leigh Newman

Nobody Gets Out Alive: Stories by Leigh Newman, set in Newman’s home state of Alaska and an exciting virtuosic story collection about women navigating the wilds of a male-dominated society. Nobody Gets Out Alive is a collection of dazzling, courageous stories about women struggling to survive, not just grizzly bears and charging moose but the raw, exhausting legacy of their marriages and families.

There are moments when characters in a story leap off the page and become, for a few moments, our soul mates. Ms. Newman, in each of these memorable stories, engages so fully that each character becomes so alive that I wanted to know more about their lives.

The stores span both the recent past and the founding of Anchorage. I found all of them to be stories I would happily read again. The recent stories highlight the common desire for a freer, more inclusive world for women. A woman forced to sell her home or a new bride testing limits on her return home resonates as themes of the modern world.

The final story is set in 1915 in a railroad camp. The story highlights the founding of Anchorage. As one who likes historical fiction, I was so engaged that I could not take a break. I was not expecting the outspoken heiress would stage an elaborate theatrical to seduce the wife of her husband’s employer.

I may never visit Alaska at my age, but I now know enough to feel I have lived in Seward’s Folly.

I decided to read this book after reading Ms. Newman wrote a review of The Faraway World. Ms. Newman is a skilled writer, and I highly recommend this collection and look forward to reading more of her stories in the future.

The Goodreads summary provides an overview,

In “Howl Palace”—winner of The Paris Review’s Terry Southern Prize, a Best American Short Story, and Pushcart Prize selection—an aging widow struggles with a rogue hunting dog and the memories of her five ex-husbands while selling her house after bankruptcy. In the title story, “Nobody Gets Out Alive,” newly married Katrina visits her hometown of Anchorage. She blows up her wedding reception by flirting with the host and running off with an enormous mastodon tusk.

Alongside stories set in today’s Last Frontier—rife with suburban sprawl, global warming, and opioid addiction—Newman delves into the remote wilderness of the 1970s and 80s, bringing to life young girls and single moms in search of a wilder, more accessible, more adventurous America. The final story takes place in a railroad camp in 1915, where an outspoken heiress stages an elaborate theatrical to seduce the wife of her husband’s employer, revealing how this masterful storyteller is “not only writing unforgettable, brilliantly complex characters, she’s somehow inventing souls” (Kimberly King Parsons, author of Black Light).


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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A Seperation

Read: January 2022

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A Separation: A Novel

by Katie Kitamura

A Separation by Katie Kitamura is about a young woman who has agreed with her faithless husband: it’s time for them to separate. All I could think about from the opening page until I finished the book was how Jan and I, despite one messy period, never dealt with infidelity or separation. Our love was pure as the driven snow. The subject matter would typically not have interested me enough to read the book. However, it is written in a hypnotic manner that mesmerizes the reader into turning the next page.

I highly recommend this book.

Goodreads provides an overview.

As she begins her new life, she gets word that Christopher has gone missing in a remote region in the rugged south of Greece; she reluctantly agrees to look for him, still keeping their split to herself. As her search comes to a shocking breaking point, she discovers she understands less than she thought she did about her relationship and the man she used to love. In her heart, she’s not even sure if she wants to find him.  For the moment, it’s a private matter, a secret between the two of them.

Adrift in the wild landscape, she traces the disintegration of their relationship and discovers she understands less than she thought about the man she used to love.

A story of intimacy and infidelity, A Separation is about the gulf that divides us from the lives of others and the narratives we create for ourselves. As the narrator reflects upon her love for a man who may never have been what he appeared, Kitamura propels us into the experience of a woman on the brink of catastrophe. A Separation is a riveting stylistic masterpiece of absence and presence that will leave the reader astonished and transfixed.

In closing, I highly recommend this book.

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Chain Gang All Stars

Read: December 2023

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Chain Gang All Stars

by Nana Kwame Adjei-Brenyah

Today, I started reading “Chain Gang All Stars” by Nana Kwame Adjei-Brenyah. The story revolves around Loretta Thurwar and Hamara “Hurricane Staxxx” Stacker, the main characters of the Chain-Gang All-Stars, a highly controversial and top-rated program in America’s private prison industry. The program is called Criminal Action Penal Entertainment (CAPE), where prisoners compete for the ultimate prize- their freedom. It’s similar to the return of the gladiators but in a modern-day setting.

The story is set in a prison called CAPE, where inmates are forced to participate in death matches as a part of a chain-gang. These matches are held in front of cheering crowds, while the prison authorities claim it to be a righteous act. Among the participants, Thurwar and Staxxx are the most popular as they are also lovers. Thurwar is just a few matches away from her freedom, which she carries with a heavy heart and lethal hammer. Thurwar contemplates how she can help her fellow inmates preserve their humanity despite being forced into these brutal games. However, the owners of CAPE are determined to safeguard their status quo, and they will go to extreme lengths to stop anyone who challenges them. Thurwar’s attempts to resist the system have devastating consequences.

Chain-Gang All-Stars” is a powerful book that sheds light on the American prison system’s problematic alliance with systemic racism, unchecked capitalism, and mass incarceration. It critically examines the situation from various perspectives, from the Links in the field to the protestors, the CAPE employees, and beyond. The book offers a clear-eyed reckoning of what freedom really means in America. It is a noteworthy contribution from a “new and necessary American voice,” as described by Tommy Orange in The New York Times Book Review.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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Man's Search for Meaning

Read: January 2022

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Man’s Search for Meaning

by Viktor E. Frankl

I recall reading portions of Man’s Search for Meaning by Viktor E. Frankl at various times, but I never completed the book. However, recently, eight and a half months after Jan’s passing, my wife and I were discussing in one of my groups. Frankl’s theory of logotherapy, which derives from the Greek word for “meaning,” centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

For those like me who are widows, Frankl understands suffering,

In some ways, suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of a sacrifice.

Jan and I lived meaningful lives. My challenge now is to continue to find meaning in my life without Jan.

As Frankl writes,

Those who have a ‘why’ to live can bear with almost any ‘how.

The love Jan and I shared was one of my primary sources of meaning. In addition, I stopped working full-time at the end of 2018 and struggled to replace the purpose I had gained from repairing the world. After Jan died, I suffered the “provisional existence of an unknown limit, ” which Frankl experienced when he was in the concentration camps.

I have replaced the loss of meaning and purpose with a series of activities:

  1. Planning to celebrate Jan Day on her birthday this year.
  2. Writing my random thoughts on Jan, love, grief, life, and all things considered;
  3. Reading more than ever, including my Goodreads 2022 Reading Challenge; and
  4. Walking more than I probably should.

I am also beginning to serve on the board of a few non-profits. It is time to transition from hands-on work to providing leadership in a different way.

Will this be enough to give my life meaning?

Ultimately, man should not ask what the meaning of his life is, but rather must recognize that it is he who is asked. In a word, each man is questioned by life, and he can only answer to life by answering for his own life; to life, he can only respond by being responsible.

I must continue to focus on my search for meaning, as life will inevitably change over time.

My grief journey has taught me that love never dies,

For the first time in my life, I saw the truth as it is set into song by so many poets, proclaimed as the final wisdom by so many thinkers. The truth – that Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry, thought, and belief have to impart: The salvation of man is through love and in love.

My path forward is to keep Jan’s love alive and continue to share it with others.

I recommend this book without reservation.



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Conjure Women

Read: November 2021

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Conjure Women: A Novel

by Afia Atakora

Conjure Women by Afia Atakora is about a mother and her daughter with a shared talent for healing—and for the conjuring of curses — at the heart of this dazzling first novel. Conjure Women takes place before, during, and after the Civil War. The book is structured around three-time frames; Slaverytime, Freddomtime, and Wartime.

Having grown up in the South and heard far too many stories about the Lost Cause, it was a joy to read a book narrated by two African-American women. The third leading character is the daughter o the owner of the plantation. At the end of the war, she was hidden away for six years and was unaware the South had surrendered.

Conjure Women is a sweeping story that brings the world of the South before and after the Civil War vividly to life. Spanning eras and generations, it tells of the lives of three unforgettable women: Miss May Belle, a wise healing woman; her precocious and observant daughter Rue, who is reluctant to follow in her mother’s footsteps as a midwife; and their master’s daughter Varina. The secrets and bonds among these women and their community come to a head at the beginning of a war and at the birth of an accursed child, who sets the townspeople alight with fear and a spreading superstition that threatens their newly won, tenuous freedom.

Magnificently written, brilliantly researched, and richly imagined, Conjure Women moves back and forth in time to tell the haunting story of Rue, Varina, and May Belle, their passions and friendships, and the lengths they will go to save themselves and those they love.

Since Jan died, I have read many books that I know she enjoyed. We both enjoyed Call the Midwife, and this book focused on birthing and mothering. Although conjuring was their medical care and not the type practiced in poplar by the Midwives, we would both have enjoyed the book.

Conjure Women also raises questions about the meaning of freedom. For example, Rue chooses not to leave the former plantation after the Klan attacks despite being free.

I recommend this book and look forward to reading more from Afia Atakora.

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Sea of Tranquility

Read: September 2022

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Sea of Tranquility

by Emily St. John Mandel

Sea of Tranquility by Emily St. John Mandel has been on my reading list for months. I recommend the book without reservations. Sea of Tranquility is a novel of art, time, love, and plague that takes the reader from Vancouver Island in 1912 to a dark colony on the moon three hundred years later, unfurling a story of humanity across centuries and space. It was a page-turner from page one.

With the delay of Artemis I, I have been thinking a lot about the Sea of Tranquility, the original lunar landing site. Sea of Tranquility reminded me of the days of my youth when we believed that NASA would colonize the moon as it is in the novel.

One of the passages that moved me was when Olive Llewellyn asked, “What if it always is the end of the world.” A second profound passage asks, “A life lived in a simulation is still a life.

The Goodreads summary provides a good overview,

Edwin St. Andrew is eighteen years old when he crosses the Atlantic by steamship, exiled from polite society following an ill-conceived diatribe at a dinner party. He enters the forest, spellbound by the beauty of the Canadian wilderness, and suddenly hears the notes of a violin echoing in an airship terminal—an experience that shocks him to his core.

Two centuries later a famous writer named Olive Llewellyn is on a book tour. She’s traveling all over Earth, but her home is the second moon colony, a place of white stone, spired towers, and artificial beauty. Within the text of Olive’s bestselling pandemic novel lies a strange passage: a man plays his violin for change in the echoing corridor of an airship terminal as the trees of a forest rise around him.

When Gaspery-Jacques Roberts, a detective in the Night City, is hired to investigate an anomaly in the North American wilderness, he uncovers a series of lives upended: The exiled son of an earl driven to madness, a writer trapped far from home as a pandemic ravages Earth, and a childhood friend from the Night City who, like Gaspery himself, has glimpsed the chance to do something extraordinary that will disrupt the timeline of the universe.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

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