Caretaker No, Caregiver Yes!

Caretaker No, Caregiver Yes!

Estimated reading time: 1 minute, 36 seconds
Visiting Jan During COVID

I am visiting Jan in March 2021 in the hospital.

Sunday afternoon, my grandson joined me at The Shakespeare Theatre of NJ for The Caretaker.

Harold Pinter’s 1960 classic was performed flawlessly by the cast under the direction of Bonnie Monte.

Jon Barker, Isaac Hickox-Young, and Paul Mullins were the ideal cast for the absurdist play.

A decade after its premiere, I found myself, on occasion, in circumstances that Harold Pinter could have easily written.

Once I was working as a tenant organizer in an abandoned building that the City of New York had acquired.

As we prepared plans to convert the vacant building into affordable homes, I met one remaining tenant squatting in the building without heat or electricity.

He attempted during several meetings to claim he was the owner and would repair the building and find tenants.

In our last conversation, he offered me the opportunity of being his caretaker once he completed the work.

I declined as that was not a skill or a position I desired.

In place of being a caretaker, the love Jan and I shared prepared me for the most important task of my life, being Jan’s caregiver.

As Viktor Frankl wrote,

Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry and human thought and belief have to impart: The salvation of man is through love and in love.

My love for Jan will never die!


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Man's Search for Meaning

Man's Search for Meaning

I remember reading portions of Man's Search for Meaning by Viktor E. Frankl at different times, but I never finished the book. However, recently, eight and a half months after the passing of Jan, the book came up for discussion in one of my groups. Frankl's theory of logotherapy, which derives from the Greek word for "meaning," centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

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Caretaker No, Caregiver Yes!

CancerCare Circle of Hope

Estimated reading time: 1 minute, 36 seconds

Last week, CancerCare, which provided me with vital support services, interviewed me about my role as a caregiver for their Circle of Hope.

As I often do, I did not respond directly to the questions but spoke from my heart.

The interview reminded me of the importance of being a caregiver and how our salvation is “through love and in love.”

I would have done anything not to have been Jan’s caregiver.

But it was the job that my love required of me. As long as I live, being her husband and caregiver will be my highest honor.

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Man's Search for Meaning

Read: January 2022

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Man’s Search for Meaning

by Viktor E. Frankl

I recall reading portions of Man’s Search for Meaning by Viktor E. Frankl at various times, but I never completed the book. However, recently, eight and a half months after Jan’s passing, my wife and I were discussing in one of my groups. Frankl’s theory of logotherapy, which derives from the Greek word for “meaning,” centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

For those like me who are widows, Frankl understands suffering,

In some ways, suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of a sacrifice.

Jan and I lived meaningful lives. My challenge now is to continue to find meaning in my life without Jan.

As Frankl writes,

Those who have a ‘why’ to live can bear with almost any ‘how.

The love Jan and I shared was one of my primary sources of meaning. In addition, I stopped working full-time at the end of 2018 and struggled to replace the purpose I had gained from repairing the world. After Jan died, I suffered the “provisional existence of an unknown limit, ” which Frankl experienced when he was in the concentration camps.

I have replaced the loss of meaning and purpose with a series of activities:

  1. Planning to celebrate Jan Day on her birthday this year.
  2. Writing my random thoughts on Jan, love, grief, life, and all things considered;
  3. Reading more than ever, including my Goodreads 2022 Reading Challenge; and
  4. Walking more than I probably should.

I am also beginning to serve on the board of a few non-profits. It is time to transition from hands-on work to providing leadership in a different way.

Will this be enough to give my life meaning?

Ultimately, man should not ask what the meaning of his life is, but rather must recognize that it is he who is asked. In a word, each man is questioned by life, and he can only answer to life by answering for his own life; to life, he can only respond by being responsible.

I must continue to focus on my search for meaning, as life will inevitably change over time.

My grief journey has taught me that love never dies,

For the first time in my life, I saw the truth as it is set into song by so many poets, proclaimed as the final wisdom by so many thinkers. The truth – that Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry, thought, and belief have to impart: The salvation of man is through love and in love.

My path forward is to keep Jan’s love alive and continue to share it with others.

I recommend this book without reservation.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Enjoy a limited-time offer of 20% off your next book purchase at Bookshop.org!


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Caretaker No, Caregiver Yes!
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Caretaker No, Caregiver Yes!
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Intermezzo: A Novel

Read: February 2025

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Intermezzo: A Novel

by Sally Rooney

Today, I dove into Sally Rooney‘s latest novel, “Intermezzo: A Novel,” which instantly captivated me. It’s a profoundly moving exploration of grief, love, and the intricacies of family life, with love at its heart. Reflecting on my journey through grief, I remember how Ms. Rooney‘s earlier work, “Beautiful World, Where Are You,” resonated with me during my second year of processing loss.

It beautifully highlighted love’s enduring nature and reminded me that, even in the depths of sorrow, love’s essence never truly fades. Intermezzo focuses on the fact that, aside from being brothers, Peter and Ivan Koubek seem to have little in common.

Peter is a Dublin lawyer in his thirties—successful, competent, and unassailable. But in the wake of their father’s death, he’s medicating himself to sleep and struggling to manage his relationships with two very different women—his enduring first love, Sylvia, and Naomi, a college student for whom life is one long joke.

Ivan is a twenty-two-year-old competitive chess player. He has always seen himself as socially awkward, a loner, the antithesis of his glib elder brother. Now, in the early weeks of his bereavement, Ivan meets Margaret, an older woman emerging from her turbulent past, and their lives become rapidly and intensely intertwined.

In this poignant interlude, we delve into the lives of two brothers grappling with their profound grief, accompanied by those who care for them. It’s a raw journey woven with threads of longing, heartbreak, and the flickering light of hope. Together, they navigate the uncharted territory of loss, uncovering how much the human spirit can withstand before it shatters.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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The Furrows- A Novel

Read: October 2022

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The Furrows: A Novel

by Namwali Serpell

The Furrows: A Novel by Namwali Serpell is a bold exploration of memory and mourning that twists unexpectedly into a story of mistaken identity, double consciousness, and the wishful—and sometimes willful—longing for reunion with those we’ve lost. Namwali Serpell’s remarkable new novel captures the uncanny experience of grief, the way the past breaks over the present like waves in the sea. I highly recommend this book.

The Furrows: A Novel reminded me of my longing to be reunited with Jan. I know it is impossible, but that does not keep me from desiring the unattainable. Reading this novel helped me remind me that Jan is still with me in spirit and that is far better than reuniting with her.

The Goodreads summary provides an overview,

Cassandra Williams is twelve, and her little brother Wayne is seven. One day, an accident happens when they’re alone together, and Wayne is lost forever. Or so it seems. Though his body is never recovered, their mother, unable to give up hope, launches an organization dedicated to missing children. Their father leaves and starts another family somewhere else.

As C grows older, she sees her brother everywhere: in coffee shops, airplane aisles, subway cars, and cities on either coast. Here is her brother’s more aging face, the light in his eyes, his lanky limbs, the way he seems to recognize her too. But it can’t be, of course. Or can it? Disaster strikes again, and C meets a man, both mysterious and strangely familiar, who is also searching for someone and his place in the world. His name is Wayne.

Namwali Serpell’s remarkable novel captures the ongoing and uncanny experience of grief–the past breaking over the present like waves in the sea. The Furrows is a bold and beautiful exploration of memory and mourning that twists unexpectedly into a masterful story of black identity, double consciousness, and the wishful and sometimes willful longing for reunion with those we’ve lost.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

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Judaism Is About Love

Read: October 2024

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Judaism Is About Love

by Rabbi Shai Held

Today, I embarked on a transformative journey with Rabbi Shai Held’s book, “Judaism Is About Love.” Rav Uri‘s mention of this book during this year’s Yom Kippur service at Temple Sha’arey Shalom sparked a profound connection to the Divine, as echoed in my writings “Love Can Conquer Even Death” and “High Holiday Meditation Cleanses My Soul.” Rabbi Held’s book, which focuses on love, meaning, purpose, and faith, has guided my quest to become the best version of myself.

“Judaism Is About Love” is a beacon of understanding, offering a profound and groundbreaking perspective on Jewish life. It challenges a long-standing misinterpretation that has shaped the Western narrative: Christianity is the religion of love, while Judaism is the religion of law. Rabbi Shai Held, a leading Jewish thinker in America, passionately argues for correcting this misconception. He asserts that love is not just a part of Judaism but a fundamental aspect, thus reclaiming the heart of the Jewish tradition.

With a unique blend of intellectual rigor, respect for tradition, and a vibrant Judaism, Held’s aim is clear: to reclaim Judaism in its authentic form. He illustrates that love is the foundation of the true Jewish faith, influencing our unique perspectives on injustice, protest, grace, family life, responsibilities toward neighbors and enemies, and chosenness.

“Judaism Is About Love” is a work of ambition and revelation. It serves as a beacon, illuminating the true essence of Judaism. More than just a book, it is an act of restoration from within, reclaiming the authentic form of Judaism.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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Celestial Navigation

Read: June 2021

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Celestial Navigation

by Anne Tyler

 

Celestial Navigation by Anne Tyler is a book I found on our bookshelf about a month after my wife passed away. The title and a mental note that my wife had recommended it made it an easy choice.

One of the main characters, thirty-eight-year-old Jeremy Pauling, had never left home. In the early stages of grief, I was nowhere near making a similar choice and remaining housebound. However, if I had been, this book would have caused me to reject that idea immediately.

After the death of his mother, he takes in Mary Tell and her daughter as boarders. The other boarders quickly realize that Jeremy is falling in love with Mary despite his fragility and inexperience with women.

To share more about the book would reveal details that might be spoilers.

For me, the book was a good read and one that reminded me that love is both beautiful and complicated. Although Jan and I shared passion was nothing like theirs, it was helpful to compare their love and ours when my loss seemed impossible.

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The Vegetarian: A Novel

Read: October 2024

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The Vegetarian: A Novel

by Han Kang

Today, I started reading The Vegetarian: A Novel by Han Kang, Winner of the 2024 Nobel Prize in Literature. The novel also won The International Booker Prize and is one of The New York Times’s 100 Best Books of the 21st Century. Celebrated by critics worldwide, The Vegetarian is a darkly allegorical, Kafka-esque tale of power, obsession, and one woman’s struggle to break free from the violence both without and within her.

Before the nightmares began, Yeong-hye and her husband lived an ordinary, controlled life. But the dreams—invasive images of blood and brutality—torture her, driving Yeong-hye to purge her mind and renounce eating meat altogether. It’s a small act of independence, but it interrupts her marriage and sets into motion an increasingly grotesque chain of events at home.

As her husband, her brother-in-law, and her sister each fight to reassert their control, Yeong-hye obsessively defends the choice that’s become sacred to her. Soon, their attempts turn desperate, subjecting first her mind and then her body to ever more intrusive and perverse violations, sending Yeong-hye spiraling into a dangerous, bizarre estrangement, not only from those closest to her but also from herself.


Han Kang was born in 1970 in South Korea. She is the author of The Vegetarian, which I have read, and winner of the International Booker Prize,  Human Acts, The White Book, Greek Lessons, and We Do Not Part. In 2024, she received the Nobel Prize in Literature.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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Being Mortal

Read: August 2019

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Being Mortal

by Atul Gawande

Before departing for Toronto to celebrate our 44th Wedding Anniversary, I went through the e-library. Everything on my list that I wanted to read was not available except for this book. Being Mortal by Atul Gawande is the book I read on our vacation before Jan’s diagnosis of non-Hodgkin Large B-cell Lymphoma.

Selecting Being Mortal might seem an accidental choice to some, and I believe it was a divine intervention. It prepared me to be a caregiver to my wife over the nineteen months of her fight with cancer. It helped me focus on the good life that my wife lived and not the pain and suffering.

Atul Gawande describes his book as “riveting, honest, and humane. Being Mortal shows that the ultimate goal is not a good death but a good life – to the very end.”

When I read the book, I wondered what I could have done to help my mother in her final years. The book offers an excellent overview of how nursing homes and assisted living facilities have struggled to meet the needs of their residents.

Dr. Gawande provides an in-depth overview of the benefits of hospice care. Although I knew of this option, reading this book helped me understand that I was ready for hospice when my wife came home for the last time.

He reminds us that “when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should.” As he writes in the book, the current system does not work and, in many cases, actually shortens life.

This book has had a lasting impact on my life. It allowed me to be a loving caregiver to my wife when she needed it more than anything else. I read it when it would be most beneficial to me.

I highly recommend this book.


Atul Gawande is the author of several bestselling books: Complications, a finalist for the National Book Award; Better; The Checklist Manifesto; and Being Mortal. He is also a surgeon at Brigham and Women’s Hospital in Boston, a staff writer for The New Yorker, and a professor at Harvard Medical School and the Harvard School of Public Health. He has won the Lewis Thomas Prize for Writing about Science, a MacArthur Fellowship, and two National Magazine Awards. In his work in public health, he is the Founder and Chair of Ariadne Labs, a joint center for health systems innovation, and Lifebox, a nonprofit organization dedicated to making surgery safer globally. He is also the chair of Haven, where he served as CEO from 2018 to 2020. He and his wife have three children and live in Newton, Massachusetts.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Enjoy a limited-time offer of 20% off your next book purchase at Bookshop.org!


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