Richard W. shared a stream on October 25, 2021
Jan and her Soul Sisters Blanket

Strolling with an IV Pole

Estimated reading time: 0 minutes, 35 seconds

Jan was in the second week, and none of the possible adverse and frightening side effects had occurred. A crucial part of my daily CAR-T  visits was strolling the halls several times with her IV poles. We could only walk on her floor as she was in a closed ward. The distance was minimal, but the joy of being together was immeasurable.

Passing the nurse’s station, they would comment about how enjoyable it was to see two people so much in love.

Despite our love, cancer won.

Love never dies, and her spirit will always walk with me.

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Jan and Richard at YWCA Gala

CAR-T Treatment Memory

A year ago today, Jan was starting CAR-T treatment at the Cancer Institute of NJ. Concerned about not being on time, we stayed at a Marriott Courtyard near the hospital. Anticipating the hospitalization was anxiety-producing enough. Straying in a hotel during COVID helped but also added some anxiety. Both of us knew that CAR-T was […]
Richard W. Brown October 19, 2021

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Jan and her Soul Sisters Blanket
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Anxious People

Read: June 2022

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Anxious People

by Fredrik Backman

Anxious People by Fredrik Backman, a poignant comedy about a crime that never occurred. A would-be bank robber disappears into thin air, and eight highly anxious strangers find they have more in common than they ever imagined. Anxious People is a novel that Jan and I would have both enjoyed reading. It jumped off the e-book shelf while looking for a new book to read.

Although Anxious People is a humorous comedy, it is really about the enduring power of friendship, forgiveness and hope, which are the key to our survival as individuals, couples and communities. It is the core of what made the love that Jan and I shared special and unique, but it is also what I gain from my participation in my various grief groups as well as Friday night Shabbat services.

I highly recommend this book.

The Goodreads summary provides an overview.

Viewing an apartment usually doesn’t turn into a life-or-death situation. Still, this particular open house becomes just that when a failed bank robber bursts in and takes everyone in the apartment hostage. As the pressure mounts, the eight strangers slowly open up to one another and reveal long-hidden truths.

First is Zara, a wealthy bank director who has been too busy to care about anyone else until tragedy changed her life. Now, she’s obsessed with visiting open houses to see how ordinary people live—perhaps, setting an old wrong to the right. Then there’s Roger and Anna-Lena, an Ikea-addicted retired couple who are on a never-ending hunt for fixer-uppers to hide the fact that they don’t know how to fix their failing marriage. Julia and Ro are a young lesbian couple and soon-to-be parents who are nervous about their chances for a successful life together since they can’t agree on anything. And there’s Estelle, an eighty-year-old woman who has lived long enough to be unimpressed by a masked bank robber waving a gun. And despite the story she tells them all, Estelle hasn’t come to the apartment to view it for her daughter, and her husband isn’t outside parking the car.

As police surround the premises and television channels broadcast the hostage situation live, the tension mounts, and even deeper secrets are slowly revealed. Before long, the robber must decide which is the terrifying prospect: going out to face the police or staying in the apartment with this group of impossible people.

Rich with Fredrik Backman’s “pitch-perfect dialogue and an unparalleled understanding of human nature” (Shelf Awareness), Anxious People’s whimsical plot serves up unforgettable insights into the human condition and a gentle reminder to be compassionate to all the anxious people we encounter every day.

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Watching Over Her

Read: January 2026

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Watching Over Her

by Jean-Baptiste Andrea

“Watching Over Her,” a novel by the acclaimed French author and Prix Goncourt winner Jean-Baptiste Andrea, is described by The New York Times as a “sprawling fresco and star-crossed love story.” The narrative follows a dwarf and talented sculptor as he reflects on the moments in his life that inspired his mysteriously powerful masterpiece. This book is perfect for readers who enjoyed “Martyr!” and “The Covenant of Water.”

In an Italian monastery, a sculptor named Mimo lies on his deathbed. For decades, he has lived among the monks who watch over his masterpiece, an arresting statue that haunts all who see it. During his final hours, he reveals his life story: his impoverished childhood, brutal apprenticeship, and, most importantly, his meeting with Viola Orsini, the only daughter of a powerful and dangerous aristocratic family.

Mimo and Viola are instantly drawn to one another, viewing themselves as outsiders—Mimo, for his dwarfism, Viola, for her ability to remember everything she has ever read or experienced. Together, they traverse the unrest of the twentieth century, from the rise of fascism to the violence of the world wars. While Mimo becomes a celebrated artist, Viola chases her own dreams of becoming an emancipated woman. Over the decades, they will lose and find each other time and again, but never will they give up on the love they share.

Immersive and full of heart, Mimo’s adventures are ribald and hilarious, challenging conventions of his day. Jean-Baptiste Andrea’s Prix Goncourt–winning novel has captivated audiences worldwide and is now available to readers in English for the first time, thanks to Frank Wynne’s wonderfully vivid translation.

Jean-Baptiste Andrea is a writer, screenwriter, and director. His novel Watching Over Her won the Prix Goncourt, France’s most prestigious literary prize. He is also the author of Ma Reine, A Hundred Million Years and a Day, and Devils and Saints.

Frank Wynne is an Irish literary translator, writer, and editor known for his translations of various French and Hispanic authors, including Michel Houellebecq, Patrick Modiano, Javier Cercas, and Virginie Despentes. Over his career, which has spanned more than twenty-five years, he has won the IMPAC Dublin Literary Award twice and the Independent Foreign Fiction Prize.

Additionally, he has received the Scott Moncrieff Prize three times and the Premio Valle Inclán twice. Most recently, his translation of “The Annual Banquet of the Gravediggers’ Guild” by Mathias Énard won the 2024 French-American Prize. Wynne has also edited two significant anthologies: “Found in Translation: 100 of the Finest Short Stories Ever Translated” and “Queer: LGBT Writing from Ancient Times to Yesterday.”

Discover your next favorite book and dive into a world of curated, exciting reads by purchasing through my links. You’ll have access to a diverse selection of books that I’ve personally vetted to ensure quality and enjoyment. Additionally, by supporting these selections, you’ll help me continue to provide you with more personalized recommendations. I earn a small commission from your purchase, which allows me to buy and share even more books with you. Your support truly makes a difference!

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Clear: A Novel

Read: April 2024

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Clear: A Novel

by Carys Davies

Today, I started reading “Clear: A Novel” by Carys Davies. It’s a stunning and exquisite novel written by an award-winning author. The story follows John, a Scottish minister who is sent to a remote island off the coast of Scotland to evict the last remaining inhabitant, Ivar. However, Ivar is unwilling to leave, and John’s wife, Mary, has severe misgivings about the task.

Shortly after arriving on the island, John falls off a cliff and is badly injured. Ivar finds him and takes him home, where he tends to his wounds. John and Ivar understand each other despite the language barrier and the fragile connection that forms.

The story takes place in the 1840s, during the Scottish Clearances, a period of forced evictions that saw many rural communities lose their homes. The novel explores the differences and connections between people, the impact of history on our beliefs, and the resilience of the human spirit.

“Clear” is a moving, unpredictable, sensitive, and spellbinding novel. It is a profound and pleasurable read that will stay with you long after you finish the last page.

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The Vegetarian: A Novel

Read: October 2024

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The Vegetarian: A Novel

by Han Kang

Today, I started reading The Vegetarian: A Novel by Han Kang, Winner of the 2024 Nobel Prize in Literature. The novel also won The International Booker Prize and is one of The New York Times’s 100 Best Books of the 21st Century. Celebrated by critics worldwide, The Vegetarian is a darkly allegorical, Kafka-esque tale of power, obsession, and one woman’s struggle to break free from the violence both without and within her.

Before the nightmares began, Yeong-hye and her husband lived an ordinary, controlled life. But the dreams—invasive images of blood and brutality—torture her, driving Yeong-hye to purge her mind and renounce eating meat altogether. It’s a small act of independence, but it interrupts her marriage and sets into motion an increasingly grotesque chain of events at home.

As her husband, her brother-in-law, and her sister each fight to reassert their control, Yeong-hye obsessively defends the choice that’s become sacred to her. Soon, their attempts turn desperate, subjecting first her mind and then her body to ever more intrusive and perverse violations, sending Yeong-hye spiraling into a dangerous, bizarre estrangement, not only from those closest to her but also from herself.

Han Kang was born in 1970 in South Korea. She is the author of The Vegetarian, which I have read, and winner of the International Booker Prize,  Human Acts, The White Book, Greek Lessons, and We Do Not Part. In 2024, she received the Nobel Prize in Literature.

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Eastbound

Read: November 2023

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Eastbound by Maylis De Kerangal

by Maylis De Kerangal

Today, I would like to recommend the book “Eastbound” by Maylis De Kerangal, which has been beautifully translated into English by Jessica Moore. The story revolves around a Russian conscript and a French woman who cross paths on the Trans-Siberian railroad, each trying to escape to the East for different reasons. “Eastbound” is an adventure story that takes you through two vibrant inner worlds.

The book has been listed as one of the five best fiction books 2023 by The New York Times. Maylis De Kerangal has done an excellent job telling the story of two unlikely souls with gorgeously translated, winding sentences that evoke a striking sense of tenderness. The brutality of the surrounding world contrasts sharply with the growing collaboration between the two characters.

As the story progresses, we meet Aliocha, a young Russian conscript who decides to desert the train soon after boarding the Trans-Siberian train with other Russian conscripts. During a midnight smoke in a dark corridor of the train, Aliocha encounters an older French woman, Hélène, for whom he feels an uncanny trust. He urgently asks Hélène, through pantomime and basic Russian, for her help hiding him. They hurry from the filth of his third-class carriage to Hélène’s first-class sleeping car. As Aliocha becomes a hunted deserter, Hélène becomes his accomplice, having her inner landscape of recent memories to contend with.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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