Jan and Ana

Jan and Ana Visit During Hospice

by 27 comments

Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

Jan Runs Out of Options

“Your mom was very frustrated today,” I told Jon as we set the table for dinner after I visited with his mom on Monday. “I had hoped she would have been as vibrant as she was when I saw her in the ICU on Saturday after the emergency stent surgery. I remain optimistic and want to focus on getting her home and keeping her here.”

Jon looked pensive as he queried me, “What can we do?”

“Well, from what I had seen when she was home, she was weak, and I could not always help her. We may need to look into rehab or more intensive physical therapy at home.”

While we ate dinner, we left those suggestions on the sideboard. They were thoughts that might be easier to discuss on a full stomach. 

We were sitting on the couch after cleaning the dinner dishes. 

“Those are the only options I can see,” said Jon. 

“We should talk to both of the oncologists. They might have ideas.”

Can you reach out to them to set up a call so Mike and I can discuss the next steps?

“Yes, I will text Dr. Strair in the morning and schedule a call.”

“Is the physical therapist downstairs the one Mom used?”

I said yes. “I will reach out to Karyn in the morning.”

Next Steps Planning

“Jon, let’s see if we can chat with Karyn for a few minutes before getting Mom her milkshake.” I pulled my mask up and stepped into the office of Keating Physical Therapy. As soon as she saw me, Karyn came over to me.

“Do you have a minute to chat with my two sons about the next steps for Jan?”

“Yes, how is she?”

As we walked outside, I gave her a quick update on Jan’s recent hospitalization and surgery. 

After introducing my sons, Jon asked, “We are trying to make the best plans for Mom’s return home. Is there a time we could talk to you about rehab or more physical therapy?

Yes, I would be happy to help with discharge plans,” said Karyn. Your Mom is wonderful, and I would be happy to do what I can to help.

Thanks; let us know the best time for you.

We stopped to get Jan a chocolate milkshake, and the mood was upbeat and optimistic. 

While they prepared the shake, I texted Dr. Strair. 

Both of our sons are in NJ this week. They are concerned, and if it is OK, they might appreciate a brief call to understand the next steps better.

April 6, 2021, 10:13 am

Dr. Strair responded and said we could talk this evening. 

“I will be at Mike’s for dinner,” said Jon.

I nodded as I got into the car and drove to visit Jan. 

Next Page

Pages: 1 2 3 4 5

27 comments add your comment

Share your thoughts and ideas

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Previous Post:

Next Post:

The Jan Lilien Education Fund!

Donate Now!
Western Lane: A Novel

Read: March 2023

Get this book

Western Lane: A Novel

by Chetna Maroo

Western Lane: A Novel by Chetna Maroo is a taut, enthralling first novel about grief, sisterhood, and a young athlete’s struggle to transcend herself. Western Lane is about three sisters who have lost their mother. Their father is encouraged to provide structure in raising his daughters. Gopi, the narrator, is a squash player, and her father imposes a brutal training regimen. I highly recommend this novel!

The following passage explains the importance of squash to Gopi and how she views the world.

In the court, your mind is not only on the shot you’re about to play and the shot with which your opponent might reply, but on the shots that will follow two, three, four moves ahead. You’re watching your opponent’s position and the game he or she is playing, making calculations. This is how you choose which way to go. Though your mind is following several paths at once, it’s not a splitting but expansion forwards and backward in time, and it happens so quickly that it feels like instinct. Sometimes, you don’t even know you are thinking.

In the first few pages, I wondered what I would have done if I had been a single parent when my sons were young. I do not believe I would have imposed on my sons what Gopi’s father did to her. However, I have found reading and art to be powerful tools to help me cope with grief. I have focused on rituals, structure, and purpose.

The Goodreads summary provides an overview,

Eleven-year-old Gopi has been playing squash since she was old enough to hold a racket. When her mother dies, her father enlists her in a quietly brutal training regimen, and the game becomes her world. Slowly, she grows apart from her sisters. Her life is reduced to the sport, guided by its rhythms: the serve, the volley, the drive, the shot, and its echo.

But on the court, she is not alone. She is with her pa. She is with Ged, a thirteen-year-old boy with formidable talent. She is with the players who have come before her. She is in awe.

An indelible coming-of-age story, Chetna Maroo’s first novel captures the ordinary and annihilates it with beauty. Western Lane is a valentine to innocence, to the closeness of sisterhood, to the strange ways we know ourselves and each other.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
Beautiful World, Where Are You

Read: July 2022

Get this book

Beautiful World, Where Are You

by Sally Rooney

Beautiful World, Where Are You by Sally Rooney, a writer recommended to me, but I have always kept them on the to-read list, not the current reading. Does a beautiful word exist? Is it possible to live in a beautiful world despite the loss of the love of my life? Perhaps reading  Beautiful World, Where Are You, will help me in my grief journey.

Ms. Rooney’s book was a page-turner, and I highly recommend it.

One of the quotes from the book echoed my dream of a beautiful world.

“When I try to picture for myself what a happy life might look like, the picture hasn’t changed very much since I was a child – a house with flowers and trees around it, and a river nearby, and a room full of books, and someone there to love me, that’s all. Just to make a home there, and to care for my parents when they grow older. Never to move, never to board a plane again, just to live quietly and then be buried in the earth.” ― Sally Rooney, Beautiful World, Where Are You

It also helped remind me how unique and memorable the love that Jan and I shared was. We could quickly fall into a life lived separately as friends, or we might not have ever fallen in love and married.

As Sally Rooney in Beautiful World, Where Are You, wrote:

“If God wanted me to give you up, he wouldn’t have made me who I am.”

The Goodreads summary provides an overview.

Alice, a novelist, meets Felix, who works in a warehouse, and asks him if he’d like to travel to Rome with her. In Dublin, her best friend, Eileen, is getting over a breakup and slips back into flirting with Simon, a man she has known since childhood. Alice, Felix, Eileen, and Simon are still young—but life is catching up with them. They desire each other, they delude each other, they get together, and they break apart. They have sex, they worry about sex, and they worry about their friendships and the world they live in. Are they standing in the last lighted room before the darkness, bearing witness to something? Will they find a way to believe in a beautiful world?

Subscribe

Contact Us

×
Wolf Hall: A Novel

Read: May 2022

Get this book

Wolf Hall: A Novel

by Hilary Mantel

Wolf Hall: A Novel by Hilary Mantel is the first book in a three-part series on Thomas Cromwell. I am an amateur historian, and one of the characters I have always wanted to know more about was Cromwell. Although I might have achieved that by reading actual history textbooks, this three-part series seemed like the perfect next book for me to read. With a vast array of characters overflowing with incidents, the novel re-creates an era when the personal and political were separated by a hairbreadth, where success brings unlimited power, but a single failure means death.

At least this time, I am reading book one first instead of last. I highly recommend this book.

The Goodreads overview provides more details.

In the ruthless arena of King Henry VIII’s court, only one man dares to gamble his life to win the king’s favor and ascend to the heights of political power.

England in the 1520s is a heartbeat from disaster. Henry VIII wants to annul his marriage of twenty years and marry Anne Boleyn. The pope and most of Europe oppose him. The quest for the king’s freedom destroys his adviser, the brilliant Cardinal Wolsey, and leaves a power vacuum. Civil war could destroy the country if the king died without a male heir.

Into this impasse steps Thomas Cromwell. Cromwell is a wholly original man, a charmer, and a bully, both idealist and opportunist, astute in reading people, and a demon of energy: he is also a consummate politician, hardened by his losses, implacable in his ambition. But Henry is volatile: one day tender, one day murderous. Cromwell helps him break the opposition, but what will be the price of his triumph?

In inimitable style, Hilary Mantel presents a picture of a half-made society on the cusp of change, where individuals fight or embrace their fate with passion and courage. With a vast array of characters overflowing with incidents, the novel re-creates an era when the personal and political were separated by a hairbreadth, where success brings unlimited power, but a single failure means death.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
Home: A Novel

Read: February 2022

Get this book

Home: A Novel

by Marilynne Robinson

Home: A Novel by Marilynne Robinson is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. Robinson’s most significant work is an unforgettable embodiment of the most profound and universal emotions. Although I have not read the other novels in this series, I plan to add them to my list. I highly recommend this book.

It is a moving and healing book about families, family secrets, the passing of generations, love, death, and faith. With the loss of the love of my life ten months ago, these are topics that I have spent time thinking about. Ms. Robinson’s powerful writing weaved a story that I could not stop reading.

Again, I highly recommend this novel.

This is the Goodreads summary.

Hundreds of thousands were enthralled by the luminous voice of John Ames in Gilead Marilynne Robinson’s Pulitzer Prize-winning novel. Home is an entirely independent, deeply affecting novel that takes place concurrently in the same locale, this time in the household of Reverend Robert Boughton, Ames’s closest friend.

Glory Boughton, aged thirty-eight, has returned to Gilead to care for her dying father. Soon her brother, Jack—the prodigal son of the family, gone for twenty years—comes home too, looking for refuge and trying to make peace with a past littered with tormenting trouble and pain.

Jack is one of the great characters in recent literature. A bad boy from childhood, an alcoholic who cannot hold a job, he is perpetually at odds with his surroundings and with his traditionalist father, though he remains Boughton’s most beloved child. Brilliant, lovable, and wayward, Jack forges an intense bond with Glory and engages painfully with Ames, his godfather and namesake.

Home is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. Robinson’s most significant work is an unforgettable embodiment of the most profound and universal emotions.

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×
Audition

Read: April 2025

Get this book

Audition: A Novel

by Katie Kitamura

Today, I dove into “Audition” by Katie Kitamura, and I’m already hooked! This gripping novel explores a woman’s journey as she navigates what could be the performance of her lifetime—and perhaps even two. It’s both exhilarating and disorienting, much like a Möbius strip that challenges our understanding of the people we cherish. I can’t wait to see where this story takes me!

The narrative begins with two people meeting for lunch in a Manhattan restaurant. She is an accomplished actress in rehearsals for an upcoming premiere, while he is an attractive, troubled young man—young enough to be her son. What is his relationship to her, and how does she see him?

In this compulsively readable and brilliantly crafted novel, two competing narratives unfold, challenging our understanding of the roles we play in life – whether as partners, parents, creators, or muses – and revealing the truths that each performance conceals, particularly from those who believe they know us best.

Taut and hypnotic, “Audition” showcases Katie Kitamura‘s virtuosic writing at its finest.

Katie Kitamura is the author of four previous novels, most recently A Separation and Intimacies, which was longlisted for the National Book Award and the PEN/Faulkner Award and was a finalist for a Joyce Carol Oates Prize. She is a recipient of the Rome Prize in Literature, a Lannan fellowship, and many other honors, and her work has been translated into twenty-one languages. She teaches in the creative writing program at New York University.

When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Enjoy a limited-time offer of 20% off your next book purchase at Bookshop.org!

×
Tenth of December: Stories

Read: July 2024

Get this book

Tenth of December: Stories

by George Saunders

One of the most important and blazingly original writers of his generation, George Saunders, is an undisputed master of the short story. The Tenth of December is his most honest, accessible, and moving collection yet. It is one of the New York Times’ 100 Best Books of the Century. The book is structured as a collection of short stories, each offering a unique and compelling narrative.

In the taut opener, “Victory Lap,” a boy witnesses the attempted abduction of the girl next door and is faced with a harrowing choice: Does he ignore what he sees or override years of smothering advice from his parents and act?

In “Home,” a combat-damaged soldier moves back in with his mother and struggles to reconcile the world he left with the one to which he has returned.

In the title story, a stunning meditation on imagination, memory, and loss, a middle-aged cancer patient walks into the woods to commit suicide, only to encounter a troubled young boy who, throughout a fateful morning, gives the dying man a final chance to recall who he is.

An unfortunate, deluded owner of an antique store; two mothers struggling to do the right thing; a teenage girl whose idealism is challenged by a brutal brush with reality; a man tormented by a series of pharmaceutical experiments that force him to lust, to love, to kill—the unforgettable characters that populate the pages of Tenth of December are vividly and lovingly infused with Saunders’s signature blend of exuberant prose, deep humanity, and stylistic innovation.

Writing brilliantly and profoundly about class, sex, love, loss, work, despair, and war, Saunders cuts to the core of the contemporary experience. These stories take on the big questions and explore the fault lines of our morality, delving into what makes us suitable and what makes us human. They are not just stories but profound explorations that will stimulate your intellect and make you ponder.

Unsettling, insightful, and hilarious, the stories in Tenth of December—through their manic energy, their focus on what is redeemable in human beings, and their generosity of spirit—not only entertain and delight but also fulfill Chekhov’s dictum that art should “prepare us for tenderness.” The humor in these stories will keep you entertained and laughing, even as they delve into profound themes.

When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

×

Discover more from Sharing Jan’s Love

Subscribe now to keep reading and get access to the full archive.

Continue reading