Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The Extinction of Irena Rey

Read: April 2024

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The Extinction of Irena Rey

by Jennifer Croft

I began reading “The Extinction of Irena Rey” by Jennifer Croft today. The novel is about eight translators searching for a world-famous author, Irena Rey, who has gone missing in a primeval Polish forest. The translators have come from eight different countries and share a deep admiration for Irena Rey. Their mission is to translate her masterpiece, “Gray Eminence,” but their task takes an unexpected turn when Irena disappears within days of their arrival.

The translators begin to investigate where Irena may have gone while continuing to work on her book. They explore the ancient wooded refuge, with its intoxicating slime molds and lichens, and study Irena’s exotic belongings and layered texts for clues. However, their search reveals secrets and deceptions that they are unprepared for. As they grow increasingly paranoid in this isolated and obsessive fever dream, the translators are forced to confront their differences, and their rivalries and desires threaten not only their work but also the fate of Irena Rey herself.

This debut novel is a brilliant exploration of art, celebrity, the natural world, and the power of language. It is a thought-provoking narrative blends humor and adventure, taking readers on an unforgettable journey with a small yet diverse cast of characters. These characters, shaken by the shocks of love, destruction, and creation, find themselves in one of Europe’s last great wildernesses, where the fate of their beloved author hangs in the balance.

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Blue Skies: A Novel

Read: August 2023

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Blue Skies: A Novel

by T. C. Boyle

I started reading Blue Skies: A Novel by T. C. Boyle today. The book is an eco-thriller with comedic elements. It explores the relationships between humans and their habitats in a world where natural disasters frequently occur, where “the only truism seems to be that things always get worse.”

Denied a dog, a baby, and even a faithful fiancé, Cat suddenly craves a snake: a glistening, writhing creature that can be worn like “jewelry, living jewelry” to match her black jeans. But when the budding social media star promptly loses the young “Burmie” she buys from a local pet store, she inadvertently sets a chain of increasingly dire and outrageous events threatening her survival.

Blue Skies follows the tradition of T. C. Boyle’s finest novels, combining high-octane plotting with biting wit and intelligent social commentary. Here Boyle, one of the most inventive voices in contemporary fiction, transports us to water-logged and heat-ravaged coastal America, where Cat and her hapless, nature-loving family—including her eco-warrior parents, Ottilie and Frank; her brother, Cooper, an entomologist; and her frat-boy-turned-husband, Todd—are struggling to adapt to the “new normal,” in which once-in-a-lifetime natural disasters happen once a week and drinking seems to be the only way to cope.

But there’s more than meets the eye to this compulsive family drama. Lurking beneath the bland façade of twenty-first-century Californians and Floridians attempting to preserve normalcy in the face of violent weather perturbations is a caricature of materialist American society that doubles as a prophetic warning about our planet’s future. Blue Skies deftly explores the often volatile relationships between humans and their habitats, from pet bees and cricket-dependent diets to massive species die-offs and pummeling hurricanes, in which “the only truism seems to be that things always get worse.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Neverhome: A Novel

Read: November 2024

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Neverhome: A Novel

by Laird Hunt

Today, I began reading “Neverhome: A Novel” by Laird Hunt, a critically acclaimed work that has garnered praise for its unique storytelling. The protagonist introduces herself as Ash, which is not her real name. She is the devoted wife of a farmer, yet she has left her husband to enlist as a Union soldier during the Civil War. “Neverhome” narrates Ash Thompson’s harrowing journey as she faces the chaos of battle in the South.

Amidst scenes of bloodshed, hysteria, and heartbreak, Ash undergoes a profound transformation. She evolves from a devoted wife to a hero, a folk legend, a madwoman, and, to some, a traitor to the American cause. This complex journey of self-discovery adds depth to her character and makes her story all the more compelling.

Laird Hunt‘s captivating novel illuminates the adventurous women who chose to fight rather than remain behind. It also presents a compelling mystery: Why did Ash leave while her husband stayed? This enigma, shrouded in the fog of war, keeps us intrigued and eager to uncover the truth. What challenges must she overcome to return to her husband?

In beautifully crafted prose, Hunt‘s rebellious young heroine battles her way through history. Her emotional journey, filled with longing, fear, and determination, resonates with us as she strives to return to her husband and captures our hearts.

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Leadership: In Turbulent Times

Read: January 2019

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Leadership: In Turbulent Times

by Doris Kearns Goodwin

A Book for Our Turbulent Times

Leadership: In Turbulent Times by Doris Kearns Goodwin, one of America’s best presidential historians, offers an illuminating exploration of the early development, growth and exercise of leadership as demonstrated by Presidents Lincoln, Theodore Roosevelt, FDR and Johnson.

I received this book for Hanukkah from my granddaughter and son Mike and his girlfriend Elyssa. They know me very well. A book by Ms. Goodwin is always a must read. If you add in Lincoln, the two Roosevelt’s and LBJ, it is a book I cannot put down.

This NPR interview with Ms. Goodwin is worth listening to.

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The Field of Blood: Violence in Congress and the Road to Civil War

Read: March 2019

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The Field of Blood

by Joanne B. Freeman

The Field of Blood: Violence in Congress and the Road to Civil War by Joanne B. Freeman, Professor of History and American Studies at Yale University, is a must-read in our hyper-partisan times. The partisanship and divisiveness of the period before the Civil War have many parallels to our time, and the difference is the violence of the Civil War era. Professor Freeman recovers the long-lost story of physical violence on the floor of the U.S. Congress.

She can do this by first source materials from Benjamin Brown French. He was never elected to office but was an acquaintance of twelve consecutive presidents, from Andrew Jackson to Ulysses S. Grant. In addition, he maintained a diary for forty years that highlighted the violence and his and the nation’s political transformation.

During much of this period, he was the Clerk in the House.  His diary documents the violence that did not get covered by the press. Legislative sessions included mortal threats, canings, flipped desks, and all-out slugfests. When debate broke down, members of Congress drew pistols and waved Bowie knives. One representative even killed another in a duel. Many were beaten and bullied in an attempt to intimidate them into compliance, particularly on the issue of slavery.

The Field of Blood is one of four books I purchased after my first One Day University class.

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A Line in the Sand- A Novel

Read: June 2023

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A Line in the Sand: A Novel

by Kevin Powers

Today I started reading A Line in the Sand: A Novel by Kevin Powers. Listed as one of the books to read this week by The New York Times, which described it as “a stunning novel. Kevin Powers provides what any discerning reader desires the most — complex and flawed characters, precise use of language, succinct description, and believable dialogue.”

One early morning on a Norfolk beach in Virginia, a dead body is discovered by a man taking his daily swim—Arman Bajalan, formerly an interpreter in Iraq. After narrowly surviving an assassination attempt that killed his wife and child, Arman has been given lonely sanctuary in the US as a maintenance worker at the Sea Breeze Motel. Now, convinced that the body is connected to his past, he knows he is still unsafe.

Seasoned detective Catherine Wheel and her newly minted partner have little to go on beyond a bus ticket in the dead man’s pocket. It leads them to Sally Ewell, a local journalist as grief-stricken as Arman is by the Iraq War, investigating a corporation on the cusp of landing a multi-billion-dollar government defense contract.

As victims mount around Arman, taking the team down wrong turns and towards startling evidence, they find themselves in a race committed to unraveling the truth and keeping Arman alive—even if it costs them everything.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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