Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Palaver

Read: November 2025

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Palaver: A Novel

by Bryan Washington

Written with subtle humor and warmth, Bryan Washington‘s Palaver weaves together the past and present across Houston, Jamaica, and Japan. This intricate story explores themes of family, love, and the beauty of coexistence. A finalist for the National Book Award for Fiction, this novel is a life-affirming tale about family, healing, and the ways we learn to love, showcasing the talent of the award-winning Bryan Washington.

In Tokyo, a young man works as an English tutor and spends his nights out with friends at a gay bar. He is involved in a sexual relationship with a married man. Although he has formed a chosen family in Japan, he and his mother, who resides in Houston, are estranged from each other. Her preference for his troubled, homophobic brother, Chris, ultimately pushed him to leave home. Then, in the weeks leading up to Christmas—ten years after they last saw each other—his mother arrives uninvited at his doorstep.

With only the son’s cat, Taro, to mediate, the two clash immediately. The mother struggles with memories of her youth in Jamaica and her complicated relationship with her brother, as she attempts to reconcile her good intentions with past mistakes. Meanwhile, the son grapples with the challenge of forgiveness. However, as life takes unexpected turns—leading the mother to form a tentative friendship with a local bistro owner and the son to connect with a new patron at the bar cautiously—they begin to see each other more clearly.

Through shared meals, conversations, and an eventful trip to Nara, both mother and son try to determine where “home” truly is and whether they can find it in one another.


Bryan Washington is the author of the story collection Lot and the novels Memorial and Family Meal. He is a National Book Award 5 Under 35 Honoree. He has won several prestigious awards, including the Dylan Thomas Prize, the NYPL Young Lions Fiction Award, the Ernest J. Gaines Award, two Lambda Literary Awards, and an O. Henry Prize.

Washington has also been a finalist for various awards, such as the National Book Critics Circle Award for Fiction, the Aspen Words Literary Prize, the Center for Fiction First Novel Prize, the Andrew Carnegie Medal of Excellence, and the James Tait Black Prize. The New York Times referred to his writing as among the 25 Most Influential Works of Postwar Queer Literature, and he was a columnist for the New York Times Magazine.

As a frequent contributor to The New Yorker and The New York Times, his writing has appeared in other notable publications, including Granta, The New York Times Magazine, New York, Time, GQ, and Esquire, among others. He lives in Tokyo.



Discover your next favorite book and dive into a world of curated, exciting reads by purchasing through my links. You’ll have access to a diverse selection of books that I’ve personally vetted to ensure quality and enjoyment. Additionally, by supporting these selections, you’ll help me continue to provide you with more personalized recommendations. I earn a small commission from your purchase, which allows me to buy and share even more books with you. Your support truly makes a difference!


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The Bee Sting: A Novel

Read: December 2023

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The Bee Sting: A Novel

by Paul Murray

I began reading “The Bee Sting: A Novel” by Paul Murray today, the seventy-fifth book I have read this year, one more than last year. This exuberantly entertaining novel is a tour de force that portrays post-crash Ireland, a tragicomic family saga, and a dazzling story about the struggle to be good at the end of the world.

The Barnes family is in trouble, with Dickie’s once-lucrative car business going under. However, Dickie is spending his days in the woods, building an apocalypse-proof bunker with a renegade handyperson. His wife, Imelda, sells off her jewelry on eBay while trying to avoid the attention of fast-talking cattle farmer Big Mike. Meanwhile, their teenage daughter, Cass, formerly top of her class, seems determined to binge drink through her final exams. As for twelve-year-old PJ, he’s on the brink of running away.

If you were to change this story, how far back would you have to go? To the infamous bee sting that ruined Imelda’s wedding day? To the car crash one year before Cass was born? Or back to Dickie at ten years old, standing in the summer garden with his father, learning how to be a real man?


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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The Antidote

Read: October 2025

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The Antidote: A Novel

by Karen Russell

Karen Russell‘s The Antidote, a finalist in the fiction category for the 2025 National Book Award, serves as a profound reckoning with a nation’s tendency to forget. It addresses the settler amnesia and deliberate omissions that have been passed down through generations, revealing not only horrors but also shimmering possibilities. The Antidote resonates with urgent warnings about our current climate emergency, prompting readers to reflect on what might have been and what is still possible.

The Antidote opens on Black Sunday, as a historic dust storm ravages the fictional town of Uz, Nebraska. But Uz is already collapsing—not just under the weight of the Great Depression and the Dust Bowl drought but beneath its own violent histories.

The Antidote follows a “Prairie Witch,” whose body serves as a bank vault for peoples’ memories and secrets; a Polish wheat farmer who learns how quickly a hoarded blessing can become a curse; his orphan niece, a basketball star and witch’s apprentice in furious flight from her grief; a voluble scarecrow; and a New Deal photographer whose time-traveling camera threatens to reveal both the town’s secrets and its fate.


Karen Russell is the author of six fiction books, including the New York Times bestsellers Swamplandia! and Vampires in the Lemon Grove. She is a MacArthur Fellow, a Guggenheim Fellow, and a Pulitzer Prize finalist.

She has received two National Magazine Awards for Fiction, the Shirley Jackson Award, the 2023 Bottari Lattes Grinzane Prize, and the 2024 Mary McCarthy Prize, and was selected for the National Book Foundation’s 5 Under 35 award and The New Yorker’s 20 Under 40 list (she is now decisively over forty).

She serves on the board of Street Books, a mobile library for people living outdoors. Born and raised in Miami, Florida, she lives in Portland, Oregon, with her husband, son, and daughter.



Discover your next favorite book and dive into a world of curated, exciting reads by purchasing through my links. You’ll have access to a diverse selection of books that I’ve personally vetted to ensure quality and enjoyment. Additionally, by supporting these selections, you’ll help me continue to provide you with more personalized recommendations. I earn a small commission from your purchase, which allows me to buy and share even more books with you. Your support truly makes a difference!


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The Colony

Read: March 2025

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The Colony: A Novel

by Annika Norlin

Today, I explored “The Colony,” Annika Norlin‘s debut novel, which Alice E. Olsson has skillfully translated. This sensational bestseller from Sweden has captured the imagination of readers around the globe, with its rights sold in over a dozen countries and an exciting TV adaptation in the works. “The Colony,” has quickly become one of the most talked-about literary sensations since Fredrik Backman’s ‘A Man Called Ove.’

Winner of the Vi Literature Award and Swedish Radio’s Novel Prize, two of Sweden’s most prestigious literary awards, “The Colony” is a compelling portrayal of contemporary society and its alternatives.

Burned out from a demanding job and the hectic pace of city life, Emelie decides to spend a few days in the countryside. There, amidst the peaceful, green hills by the river, she encounters a mysterious group of seven people, each with personal stories marked by pain, alienation, and a longing to live differently. They are misfits in their ways, all led by the enigmatic and charismatic Sara.

How did they end up in this place? Are they content with the rigid roles assigned to them? And what happens when an outsider arrives, initially drawn to their alternative lifestyle, but inevitably disrupts their way of life?

A masterful blend of humor, emotion, unforgettable characters, and sharp social commentary, “The Colony” is a magnetic and deeply touching story about love, community, and our profound influence over one another.


Annika Norlin is a Swedish author, songwriter, and artist. She releases music under her name and through her projects, Säkert! and Hello Saferide. Her collection of short stories, “I See Everything You Do,” has been nominated for several awards. “The Colony” is her debut novel.

Alice E. Olsson is a literary translator, writer, and editor. She has served as the Cultural Affairs Adviser at the Embassy of Sweden in London and has received a fellowship and multiple grants from the Swedish Arts Council. Olsson was a nominee for the 2020 Peirene Stevns Translation Prize and the 2023 Bernard Shaw Prize.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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The Safekeep: A Novel

Read: July 2025

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The Safekeep: A Novel

by Yael van der Wouden

A house is a treasured possession, and “The Safekeep,” a debut novel by Yael van der Wouden, presents a gripping story of desire, suspicion, and obsession between two women staying in the same house in the Dutch countryside during the summer of 1961. The novel provides a profound exploration of the legacy of World War II and the darker elements of our shared history.

It is 1961, and the rural Dutch province of Overijssel is quiet. Bomb craters have become lakes, buildings have been repaired or rebuilt, and the war is truly over. Living alone in her late mother’s country home, Isabel knows her life is as it should be—led by routine and discipline. But all is upended when her brother Louis brings his graceless new girlfriend Eva, leaving her at Isabel’s doorstep as a guest, to stay for the season.

Eva is the complete opposite of Isabel: she sleeps late, stomps around the house, and handles things she shouldn’t. In response, Isabel becomes increasingly obsessed and furious, especially as items begin to go missing around the house—a spoon, a knife, a bowl. As her suspicions grow, Isabel’s paranoia eventually leads to infatuation, culminating in a revelation that shatters everything she has ever known. It seems that the war might not truly be over, and neither Eva—nor the house they inhabit—is what they appear to be.

For my house will be called a house of devotion for all,” in Isaiah 56:7, serves as a closing that reminds us that a house not open to all is not a home.


Yael van der Wouden is a writer and a teacher. The Safekeep, her debut novel, was a finalist for the 2024 Booker Prize and has been longlisted for the 2025 Aspen Words Literary Prize. It was also named a New York Times Notable Book of the Year and a best book of the year by The Washington Post, Time, The Economist, Kirkus Reviews, The Times (London), The Independent, BookPage, and others. She lives in Utrecht, Netherlands.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Enjoy a limited-time offer of 20% off your next book purchase at Bookshop.org!


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Working

Read: October 2019

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Working

by Robert A. Caro

Working by Robert A. Caro is a book of evocatively written essays on his life and work. Among the many valuable words of wisdom is his case that one needs to look at every piece of information, not just what we know when we begin. Far too often, people jump to conclusions without having learned all of the facts.

He describes what it was like to interview the mighty Robert Moses and to begin discovering the extent of the political power Moses wielded; the combination of discouragement and exhilaration he felt confronting the vast holdings of the Lyndon B. Johnson Library in Austin, Texas; his encounters with witnesses, including longtime residents wrenchingly displaced by the construction of Moses’ Cross-Bronx Expressway and Lady Bird Johnson acknowledging the beauty and influence of one of LBJ‘s mistresses. He gratefully remembers how, after years of working in solitude, he found a writers’ community at the New York Public Library, and details the ways he goes about planning and composing his books.

Caro recalls the moments at which he came to understand that he wanted to write not just about the men who wielded power but about the people and the politics that were shaped by that power. And he talks about the importance to him of the writing itself, of how he tries to infuse it with a sense of place and mood to bring characters and situations to life on the page. Taken together, these reminiscences–some previously published, some written expressly for this book–bring into focus the passion, the wry self-deprecation, and the integrity with which this brilliant historian has always approached his work.

I found this one of the best books I have read and recommend it to all readers.

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