Richard W. shared a stream on November 26, 2022
Lime for Lymphoma

Lime for Lymphoma

Estimated reading time: 1 minute, 33 seconds

Visiting Jan During COVIDYesterday I discovered that lime is the color for lymphoma on the cancer rainbow from a sign on the door of Keating Physical Therapy.

I have walked to cure for lymphoma but never had heard of lime as the color.

Next September, I will encourage Hanson Park to change the lighting of Jan’s wind sculpture to lime.

In the final months of her life, Jan was on the list for a stem cell transplant.

The medical advice recommended an alternative process to use her stem cells.

Delia Ephron‘s guest essay in the NY Times wrote about her successful transplant that saved her life.

So, during the holidays, if you are under 40, register to be a blood stem cell donor. If you are having a baby, donate your umbilical cord to a cord blood bank. Talk to your OB — umbilical cords, rich with lifesaving stem cells, are otherwise, as one of my doctors put it, thrown in the trash. Give these gifts to a stranger. That’s the holiday spirit. If you have children or grandchildren in their 20s or 30s, when they ask you what you want for a present, tell them that you want them to register. Tell them that, for the holidays, you want them to save a life.

Let us all choose to save a life so one day, lime will only be a color in a rainbow, not the pigmentation for lymphoma.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Walking to Light the Night to Cure Lymphoma

Lighting the Night to Cure Lymphoma

Last night, the Light the Night event was held in Verona Park, Verona, NJ, and I, walked in memory of Jan to help find a cure for lymphoma and leukemia.

As the hundreds of walkers collectively did the countdown to commence the walk, I wept as I wanted Jan with me as a survivor so I could walk with her as her caregiver.

Although I walked alone, Jan was with me.

Together we walked to cure blood cancers so no one would die from lymphoma one day.

Richard W. Brown October 16, 2022

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The Poppy Fields

Read: June 2025

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The Poppy Fields

by Nikki Erlick

The Poppy Fields by Nikki Erlick is a unique and thought-provoking speculative novel that delves into themes of heartache, hope, and resilience. It explores the complexities of grief and healing, raising essential questions about recovery after loss and the lengths we go to in search of healing. This powerful exploration resonated with me and provided ample food for thought. I’d love to hear your thoughts on it!

The Poppy Fields is a captivating speculative story that explores themes of healing, self-discovery, forgiveness, and the power of newfound friendship. Located in a remote stretch of the California desert, the Poppy Fields offers hope for even the most battered hearts seeking to heal. Nikki Erlick‘s unique narrative technique adds an extra layer of intrigue to the story.

This area is home to an experimental and controversial treatment center designed for those grappling with the heartache of loss. It offers a unique solution, allowing patients to sleep through their pain and continue sleeping. However, when they eventually awaken from this prolonged state of slumber, they will be healed, provided they are willing to accept the possible shadowy side effects, raising concerns about the actual cost of healing.

Embarking on a journey to this mystical destination are four very different strangers and one little dog: Ava, a book illustrator; Ray, a fireman; Sasha, an occupational therapist; and Sky, a free spirit, accompanied by a friendly pup named PJ. Their diverse backgrounds and mysterious motivations add an intriguing layer to their quest to find Ellis, the brilliant and enigmatic founder of The Poppy Fields.

Nikki Erlick is the author of the instant New York Times bestseller, The Measure, which was selected as a Read with Jenna/Today Show book club pick. The Measure has been translated into twenty-four languages worldwide. She holds a bachelor’s degree from Harvard University and a master’s degree from Columbia University. Currently, she resides in Los Angeles.

When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Enjoy a limited-time offer of 20% off your next book purchase at Bookshop.org!

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A Sovereign People: The Crises of the 1790s and the Birth of American Nationalism

Read: February 2019

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A Sovereign People: The Crises of the 1790s and the Birth of American Nationalism

by Carol Berkin

A Sovereign People: The Crises of the 1790s and the Birth of American Nationalism by Carol Berkin, Presidential Professor American Colonial and Revolutionary History; Women’s History Professor at Baruch College, focuses on four crises in the first decade. Most historians view these are part of the early partisan debates in America.

Professor Berkin takes a different perspective. She focuses on how the Whiskey Rebellion, the Genet Affair, the XYZ Affair, and the Alien and Sedition Acts helped build nationalism. Despite the partisan divisions, both sides could find solutions that helped America survive its first decade. The failure to resolve anyone of these could have doomed America to failure.

The Federalists – Washington, Hamilton, and Adams – were the leaders of that first decade and managed the successive crisis of sovereignty.

A Sovereign People is one of four books from my first One Day University class.

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Misinterpretation

Read: August 2025

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Misinterpretation: A Novel

by Ledia Xhoga

Ledia Xhoga‘s debut novel, Misinterpretation, is a reflective and engaging work longlisted for the 2025 Booker Prize. The novel delves into the darker legacies of family and country, exploring the tension between compassion and self-preservation. Additionally, it won the 2024 New York City Book Award for a first book, a prestigious recognition in the literary world. It was a finalist for the 2024 Center for Fiction First Novel Prize.

Set in present-day New York City, the story follows an Albanian interpreter who reluctantly agrees to work with Alfred, a Kosovar torture survivor, during his therapy sessions. Despite her husband’s warnings, she becomes increasingly entangled in her clients’ struggles. Alfred’s nightmares unearth her own buried memories, and an impulsive attempt to help a Kurdish poet leads to a risky encounter and a reckless plan. The emotional journey of the protagonist will surely resonate with you.

As a series of ill-fated decisions jeopardize the narrator’s marriage and mental health, she takes a spontaneous trip to reunite with her mother in Albania. This trip is a fascinating exploration of the contrast between her life in the United States and her roots back home. Upon returning, she must confront the consequences of her actions and question what is real and what is not.

Ledia Xhoga, the author of Misinterpretation, is an Albanian-American fiction writer and playwright. Her personal experiences and cultural background have deeply influenced her writing. Before earning an MFA in fiction from Texas State University, she worked in publishing in New York City. Her writing, which often explores themes of identity and belonging, has been featured in various journals, including Intrepid Times, Hobart, and KGB Magazine. Originally from Tirana, Albania, she now lives with her family in Brooklyn and the Catskills.

When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

Enjoy a limited-time offer of 20% off your next book purchase at Bookshop.org!

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A Harvest of Secrets- A Novel

Read: August 2022

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A Harvest of Secrets: A Novel

by Roland Merullo

After reading Aftermirth, I wanted a book I could enjoy without raising questions I was not ready to answer. A Harvest of Secrets by Roland Merullo was set in Italy in 1943. The terror seeds planted by Hitler brought Allied forces to Italian soil. Young lovers separated by war—one near a Tuscan hill town, the other a soldier on the Sicilian front—will meet any challenge to reunite. Historical fiction is a genre I enjoy. Will this book fulfill my needs? The answer is yes.

The web of secrets that are harvested kept me on my toes. Usually, the surprises of a novel are ones that I know even before finishing the book. At least one of the secrets did surprise me.

I also found the background of the war and loyalty to Il Duce a reminder that blind loyalty to a leader can destroy a nation.

I recommend this book.

The Goodreads summary provides an overview.

Vittoria SanAntonio, the daughter of a prosperous vineyard owner, is caught in a web of family secrets. Defying her domineering father, she has fallen for humble vineyard keeper Carlo Conte. When Carlo is conscripted into Mussolini’s army, it sets a fire in Vittoria, and she joins the resistance. As the Nazi war machine encroaches, Vittoria is drawn into dangers as unknowable as those faced by the man she loves.

Badly wounded on the first day of the invasion, Carlo regains consciousness on a farm in Sicily. Nursed back to health by a kind family there, he embarks on an arduous journey north through his ravaged homeland. For Carlo and Vittoria, as wartime threats mount and their paths diverge, what lies ahead will test their courage as never before.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Long Island

Read: May 2024

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Long Island – Eilis Lacey Series

by Colm Tóibín

Today, I embarked on a literary journey into the distinct world of Long Island, a novel by the acclaimed author Colm Toibin. This captivating narrative continues the life of Eilis Lacey, a beloved character from Toibin’s celebrated work Brooklyn, but two decades have passed. Eilis, now in her forties, is married to Tony Fiorello, an Italian-American plumber, and they are raising two teenagers.

The novel offers a fresh perspective on Eilis’s life, struggles, and journey of self-discovery. She lives with Tony’s large and loving extended family on a cul-de-sac in Lindenhurst, Long Island, which plays a significant role in the story. Though Eilis feels connected to her Irish roots, she has yet to return to Ireland in many years.

One fateful day, a visitor arrives unannounced at Eilis’s doorstep, bringing with him a life-altering revelation. He reveals that his wife is carrying Tony’s child and plans to leave the baby with Eilis once it’s born. This unexpected twist throws Eilis into a maelstrom of emotions and a labyrinthine decision-making process. As the emotional core of Toibin’s narrative, this journey of self-discovery and emotional upheaval is sure to hold readers spellbound.

‘Long Island‘ is a poignant exploration of unfulfilled desires and the enigmatic secrets that shape our lives. Eilis’s reticence speaks volumes, and Toibin masterfully gives voice to her concealed yearnings and profound connections. For instance, Eilis often finds herself lost in memories of her life in Ireland, particularly her relationship with her mother. Though unspoken, these recollections lay bare her profound yearning for her homeland and family. This evocative tale of love, longing, and the quest for self-discovery is bound to enthrall readers.

NPR’s Mary Louise Kelly speaks with author Colm Toibin about his new novel Long Island.

When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!

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