Cancer

Please Support My Fundraising Campaign for the Leukemia & Lymphoma Society (LLS)!

I climb to the Gateway Center in Newark yearly to honor my beloved wife, Jan. This year’s Big Climb on April 26 holds a particular weight for me, as it marks what would have been her seventy-fifth birthday. While I know I can’t bring her back, I find solace in this journey and the opportunity to rally support in the fight against cancer. Her battle with blood diseases has deeply impacted me, and I am passionate about promoting the search for cures. I invite you to join me in this heartfelt cause as we unite to transform hope into reality for those affected by these illnesses. Your support is invaluable as we stand united in this vital battle.

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Discovering Altruism as the Antidote to Love and Grief

“Can you please hold on for a moment? I need to make a quick phone call,” she asked. With my hand over the mouthpiece, I asked for a minute to handle the call. Since moving into Clara Martini’s Mansion, a one-bedroom place without heat or hot water, I had encouraged my colleagues to rent the larger apartment next door. Allowing their apartment to use the same phone number as mine was how I treated others as cousins. Until late November, I had not felt the need to make any calls, and the number of times people called for me could be counted on one hand. However, after meeting Jan, I constantly wanted to talk to her. What was supposed to be a minute-long interruption turned into over an hour. I realized that instead of being a considerate neighbor, I had selfishly focused only on my needs.

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I Am OK Walking Into the
Unknowable Future

I woke up at 5:30 AM this morning, just like my Apple Watch alarm rings daily. As I left bed, my watch greeted me with a friendly “Good Morning, Richard” message. Since I live alone, I responded to my watch and put on my walking clothes. Even though the sky was dark and dismal, the predicted rain did not arrive, and it was dry outside. I’ve been doing this for three years and never let the weather affect my mood.

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From One Rose to a
Home Full of Flowers

My beloved wife, Jan, was arriving home for the last time on April 10, 2021. I asked her how I could make her last trip home more comfortable, and she replied that she wanted to be surrounded by flowers upon her arrival. However, two days before her release from the hospital, Rabbi Renee, my sons, and Dr. Saksena delivered the heartbreaking news that hospice care was the only option left. Dr. Strair, her other oncologist, had explained that they couldn’t effectively treat Jan’s Lymphoma due to COVID-19, and the Lymphoma prevented them from treating COVID-19. He stated that her Lymphoma was very aggressive, and they had tried three treatments, but the efficacy of each new treatment had declined. Dr. Strair said there was little they could do even without COVID-19.

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The Jan Lilien Education Fund!

Remarkably Bright Creatures

Read: January 2024

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Remarkably Bright Creatures

by Shelby Van Pelt

Today, I recommended reading “Remarkably Bright Creatures” by Shelby Van Pelt. It’s a charming, witty, and compulsively readable exploration of friendship, reckoning, and hope. The novel traces the unlikely connection of a widow with a giant Pacific octopus, making it perfect for fans of “A Man Called Ove.” Shelby Van Pelt’s debut novel is a gentle reminder that sometimes, looking at the past can help uncover a future that once felt impossible.

The story follows Tova Sullivan, who works the night shift at the Sowell Bay Aquarium after her husband dies. Tova has been coping with loss since her eighteen-year-old son, Erik, mysteriously vanished on a boat in Puget Sound over thirty years ago.

While at the aquarium, Tova becomes acquainted with Marcellus, a grumpy giant Pacific octopus who refuses to cooperate with his human captors. However, Marcellus forms a remarkable friendship with Tova and helps her uncover the truth about her son’s disappearance.

As a detective, Marcellus uses his invertebrate body to deduce what happened when Tova’s son disappeared. Together, they embark on a journey to unearth the truth before it’s too late.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Writers and Lovers

Read: October 2021

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Writers and Lovers

by Lily King

Writers and Lovers by Lily King is a page-turner of a book. From page one, I was engaged with Casey and wanted to continue reading to find out how she resolved the crises of her life.

The loss of her mother was a constant reminder of my loss. Although she mourned in a different way than I am, there was much we had in common. The big difference was she was writing a novel about her mother, and I am only doing journal entries and occasional posts.

Blindsided by her mother’s sudden death and wrecked by a recent love affair, Casey Peabody has arrived in Massachusetts in the summer of 1997 without a plan. Her mail consists of wedding invitations and final notices from debt collectors. A former child golf prodigy, she now waits tables in Harvard Square and rents a tiny, moldy room at the side of a garage where she works on the novel she’s been writing for six years. At thirty-one, Casey is still clutching onto something nearly all her old friends have let go of: the determination to live a creative life. When she falls for two very different men at the same time, her world fractures even more. Casey’s fight to fulfil her creative ambitions and balance the conflicting demands of art and life is challenged in ways that push her to the brink.

Writers & Lovers follows Casey–a smart and achingly vulnerable protagonist–in the last days of a long youth, a time when every element of her life comes to a crisis. Written with King’s trademark humor, heart, and intelligence, Writers & Lovers is a transfixing novel that explores the terrifying and exhilarating leap between the end of one phase of life and the beginning of another.

I very much recommend this book and this writer.

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Kala: A Novel

Read: June 2024

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Kala: A Novel

by Colin Walsh

Today, I started reading “Kala: A Novel” by Colin Walsh, a gripping literary page-turner from a rising Irish talent. Former friends, estranged for twenty years, reckon with the terrifying events of the summer that changed their lives. Three old friends are reunited in the seaside town of Kinlough, on Ireland’s west coast, for the first time in years.

Helen, Joe, and Mush were part of an original group of six inseparable teenagers in the summer of 2003, with motherless, reckless Kala Lanann as their group’s white-hot center. Soon after that summer’s peak, Kala disappeared without a trace.

Now it’s fifteen years later:

  • Helen has reluctantly returned to Ireland for her father’s wedding.
  • Joe is a world-famous musician who is newly back in town.
  • Mush has never left, too scared to venture beyond the counter of his mother’s café.

But human remains are discovered in the woods. Two more girls have gone missing. As past and present begin to collide, the estranged friends are forced to confront their involvement in the events that led to Kala’s disappearance.

Against the backdrop of a town suffocating on its secrets, in a story that builds from a smolder to a stunning climax, Kala brilliantly examines the sometimes brutal costs of belonging and the battle in the human heart between vengeance and forgiveness, despair and redemption.

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Us Fools

Read: November 2024

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Us Fools: A Novel

by Nora Lange

Today, I embarked on the journey of Us Fools by Nora Lange. This poignant and personal American narrative is about two remarkable sisters who, against all odds, come of age during the Midwestern farm crisis of the 1980s. In her debut novel, Nora Lange has crafted a lively, ambitious, and heart-wrenching portrait of two unique sisters determined to persevere despite the harsh realities of capitalism and their circumstances. After a pivotal national election, this seemed like the perfect book to read.

Joanne and Bernadette Fareown, born and raised on a family farm in rural Illinois, are deeply impacted by their parents’ tumultuous relationship and mounting financial debt, haunted by the unsettling history of the women in their family. Left to fend for themselves, the sisters delve into Greek mythology, feminism, and Virginia Woolf. As they grapple with these trying circumstances, they must devise unique coping mechanisms and question the validity of the American Dream. At the same time, the rest of the nation disregards their struggling community.

Jo and Bernie’s imaginative efforts to escape their parents’ harsh realities ultimately fall short, prompting the family to relocate to Chicago. There, Joanne—free-spirited, reckless, and struggling to manage her inner turmoil—rebels in increasingly desperate ways. After undergoing her most significant breakdown yet, Jo goes into exile in Deadhorse, Alaska. Bernadette takes it upon herself to apply everything she has learned from her sister to rekindle a sense of hope in a failing world.

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Beautyland: A Novel

Read: June 2024

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Beautyland: A Novel

by Marie-Helene Bertino

I started reading “Beautyland: A Novel” by Marie-Helene Bertino today. The novel is about the fragility and resilience of life on Earth and in our universe. It tells the story of a baby born with extraordinary perception to a single mother in Philadelphia when Voyager 1 embarks on its interstellar journey. As we follow Adina Giorno’s growth, we witness her awakening to her exceptional nature—a profound understanding of a distant planet.

With the introduction of a fax machine, she established a unique form of communication with her extraterrestrial kin, who dispatched her to observe and document the peculiarities of Earthlings. As Adina navigates the complexities of the human world, she not only shares her observations on the joys and terrors of existence but also grapples with her identity and the connections she forms. At a pivotal moment, a trusted friend encourages her to share her transmissions with the world, leading her to question if she is alone in her experiences.

Beautyland‘ is a wise, tender novel about a woman who doesn’t feel at home on Earth, penned by the highly acclaimed Marie-Helene Bertino, the author of ‘Parakeet.’ With her proven ability to craft compelling narratives, Bertino’s ‘Beautyland’ is a surefire way to captivate readers interested in contemporary fiction, themes of identity, and human connection.

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Can You Feel This?

Read: January 2023

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Can You Feel This?

by Julie Orringer

Today I read Can You Feel This? by Julie Orringer. This short story rekindled so many memories. In the chaos of a maternity ward, memories of tragedy and grief come flooding back for an anxious mother-to-be as she struggles to balance her child’s needs with her healing. Although Jan and I did not have the shadows of tragedy and grief when our sons were born, this short story was more than a page-turner. Can You Feel This? reminded me of the power of the love Jan and I shared.

When our second son was born, we almost had him at home or in the as we waited too long. In Can, You Feel This? , that was not the case. Both children had two loving parents but also grandparents.

When Jan had the first of several hospitalizations, she was in the hospital where her mother died. Jan told me her feelings, and I comforted her, but I could not fully comprehend her angst.

Can You Feel This? is part of Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones. Each Inheritance piece can be read or listened to in a single setting. By yourself, behind closed doors, or shared with someone you trust. This is the second one in the series I have read. The previous one was Everything That my Mother Taught Me.

The Goodreads summary provides an overview,

Rushed into an emergency cesarean section, a woman finds herself in the same hospital where her suicidal mother died. She’s buried the trauma of her mother’s last hours—and also the dread that she might be just as vulnerable to breaking. As the new mother relives one crisis in the midst of another, prize-winning author Julie Orringer turns the joyous event of birth into a harrowing, poignant short story.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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