Breathing to Stay Alive

Breathing to Stay Alive

Estimated reading time: 1 minute, 39 seconds

Jan, the love of my lifeFortunately, the autonomic nervous system, which controls breathing, continued to work after Jan died.

However, I was never sure it would without reminding my lungs to breathe oxygen into my body.

In the initial weeks without Jan, my life was squeezed by the grief vise, and reminding myself to breathe was crucial if I continued to live.

Every day was a struggle. As Michaela, the protagonist of Breathe by Joyce Carol Oates, says,

In the grip of the grief vise: all that you will do, all that you even imagine doing, will require much more effort… Hardly daring to breathe for the grief vise will tighten around your chest, squeezing the very air out of your lungs.

Now I let the autonomic nervous system control my breathing, despite the grief of a husband mourning the love of his life.

Day by day, I grow stronger and regain my self-confidence.

  • I write daily about Jan, my love for her, my grief, my faith, and my life.
  • I take morning walks and evening strolls.
  • I read more than ever.
  • I help other widows, volunteer, and serve on a few boards.

These self-help steps have begun if only vaguely,  to outline who I might become.

Who I will be without Jan is still a work in progress, but now I can take a deep breath and exhale the demons in my soul. At a minimum, I am no longer the empty shell I was when Jan died.

Knowing that Jan is still with me and always will be, confirms that our love will never die.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Breathing to Stay Alive
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The Faraway World

Read: January 2023

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The Faraway World: Stories

by Patricia Engel

The Faraway World: Stories by Patricia Engel was released six days ago. The Faraway World is an exquisite collection of ten haunting, award-winning short stories set across the Americas and linked by themes of migration, sacrifice, and moral compromise. I highly recommend this collection of short stories. All ten are ones I would read again. As Leigh Newman wrote in her review in the NYTimes, The Faraway World is “a collection about the Latin American diaspora.”

In addition, Leigh Newman described The Faraway World proves that Engel, like one of her characters, is capable of noticing “that between two people, a look reveals more than a fingerprint.” The first story in the collection, “Aida,” is about two twins, one of whom goes missing. Once I read this story, I could not stop until I had read all ten.

The stories are based in Cuba, Colombia, and the US. I know a few NJ settings that gave more meaning to these stories. I felt like I was in Cuba and Colombia, which I had never visited.

NPR interviewed Patricia Engel. She described how she wrote the stories.

They came to me at different points when I was thinking about other things. But of course, they are connected by this – the motivating force for change, desire, and the ever-changing conditions of identity and movements and changing geography and landscape and diaspora. Those are things that I explore in all my writing, and it’s something that I explore in my life. So, of course, it permeates my stories.


The Goodreads summary provides an overview,

Two Colombian ex-pats meet as strangers on the rainy streets of New York City, both burdened with traumatic pasts. In Cuba, a woman discovers her deceased brother’s bones have been stolen, and the love of her life returns from Ecuador for a one-night visit. A cash-strapped couple hustles in Miami to life-altering ends.

The Faraway World is a collection of arresting stories from The New York Times bestselling author of Infinite Country, Patricia Engel, “a gifted storyteller whose writing shines even in the darkest corners” (The Washington Post). Intimate and panoramic, these stories bring to life the liminality of regret, the vibrancy of the community, and the epic deeds and quiet moments of love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Flight: A Novel

Read: January 2023

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Flight: A Novel

by Lynn Steger Strong

Flight: A Novel by Lynn Steger Strong is a novel about family, ambition, precarity, art, and desire, forming a decisive next step from a brilliant chronicler of our time. The book has been on my to-read list for a few months. A New Yorker Best Books of 2022, it seemed like a good start on my 2023 Goodreads Reading challenge. Flight is the first book I read in 2023. Last year I read seventy-four books, and each helped me with my grief journey.

I recommend this novel as it is a page-turner highlighting the difficulty families experience after a loss. As a culture, we are experiencing declining social connections, including within families. Flight is an excellent effort to define the crisis.

Although several possible resolutions to the conflict became clear by the middle of the novel, Ms. Strong told the story so that until the end, it was unclear how or if it would be resolved. In addition, enough unresolved issues remained so that.

The Goodreads summary provides an overview,

It’s December twenty-second and siblings Henry, Kate, and Martin have converged with their spouses on Henry’s house in upstate New York. This is the first Christmas the siblings are without their mother, the first not at their mother’s Florida house. Over the course of the next three days, old resentments and instabilities arise as the siblings, with a gaggle of children afoot, attempt to perform familiar rituals, while also trying to decide what to do with their mother’s house, their sole inheritance. As tensions rise, the whole group is forced to come together unexpectedly when a local mother and daughter need help.

With the urgency and artfulness that cemented her previous novel Want as “a defining novel of our age” (Vulture), Strong once again turns her attention to the structural and systemic failings that are haunting Americans, but also to the ways in which family, friends, and strangers can support each other through the gaps


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The Hidden Life of Trees

Read: August 2021

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The Hidden Life of Trees

by Peter Wohlleben

The Hidden Life of Trees: What They Feel, How They Communicate ― Discoveries from A Secret World is a book I have wanted but had not had the time to read. In July of this year, when I was still in the early stages of my recovery journey, I talked to a friend of my wife’s (whom I now count as my friend) about our plans to plant a tree in Hanson Park.

As I talked about our plans, my friend suggested I read this book as it would help me understand the importance of trees. I will forever be grateful for her recommendation, as it made me read this book sooner than later.

To read that trees have a social network with more prominent, healthier trees concerned about the smaller, weaker ones. How is it that humans, a supposedly advanced species, have a social network that divides and weakens our community?

Are trees social beings? In The Hidden Life of Trees forester and author Peter Wohlleben convincingly makes the case that, yes, the forest is a social network. He draws on groundbreaking scientific discoveries to describe how trees are like human families: tree parents live together with their children, communicate with them, support them as they grow, share nutrients with those who are sick or struggling, and even warn each other of impending dangers. Wohlleben also shares his deep love of woods and forests, explaining the amazing processes of life, death, and regeneration he has observed in his woodland.

Having read this book, I am more sensitive to trees and have enjoyed my walks more than ever. In addition, when we plant Jan’s tree in Hanson Park, I will now have even more reasons to talk about the importance of trees to Jan, myself, and the community.

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Booth

Read: January 2023

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Booth: A Novel

by Karen Joy Fowler

Booth by Karen Joy Fowler was on my to-read list for several months. Booth is an epic and intimate novel about the family behind one of the most infamous figures in American history: John Wilkes Booth. I have always been fascinated by history, especially the Civil War. Booth is a startling portrait of a country in the throes of change and a vivid exploration of the ties that make and break a family. It is the second book I have read this year.

Ms. Fowler struggled with how to write this novel without focusing on the cruelest member of the Booth family. She succeeded, but I sometimes felt confused about the type of book I was reading. Was it historical fiction or a textbook?

In the afterword, she admits that there is more of the story in the children of the siblings of John Wilkes Booth. I wish I knew more about that generation and how they responded to the notoriety. A family tree would have helped as there are many family members.

I recommend Booth as history is a dynamic lesson we must keep studying.

The Goodreads summary provides an overview,

In 1822, a secret family moved into a secret cabin some thirty miles northeast of Baltimore to farm, hide, and bear ten children over the next sixteen years. Junius Booth–breadwinner, celebrated Shakespearean actor, and master of the house in more ways than one–is at once a mesmerizing talent and a man of terrifying instability. One by one, the children arrive, as year by year, the country draws frighteningly closer to the boiling point of secession and civil war.

As the tenor of the world shifts, the Booths emerge from their hidden lives to cement their place as one of the country’s leading theatrical families. But behind the curtains of the many stages they have graced, multiple scandals, family triumphs, and criminal disasters begin to take their toll, and the solemn siblings of John Wilkes Booth are left to reckon with the truth behind the destructively specious promise of an early prophecy.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Shiner: A Novel

Read: March 2022

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Shiner: A Novel

by Amy Jo Burns

Shiner: A Novel by Amy Jo Burns was my twenty-second of the year, and I achieved my Goodreads 2022 Reading Challenge. An hour from the closest West Virginia mining town, fifteen-year-old Wren Bird lives in a secluded mountain cabin with her parents. They have no car, mailbox, or visitors- except for her mother’s lifelong best friend.

Wren’s narration of her discoveries of the secrets of the past over one summer drives the novel and makes it a page-turner. Her mother, Ruby, and her best friend, Ivy, are two strong women who dreamed of escaping the West Virginia mountains. The male characters play secondary roles in the novel, as they should. Shiner is a feminist book about how women can and must take back their stories and lives from men whose power is an illusion.

I highly recommend this novel and look forward to reading other books by Amy Jo Burns. It was the perfect book to finish my reading challenge. As I continue to read this year, I hope to find another of her books on my shelf.

Goodreads provides an overview.

Every Sunday, Wren’s father delivers winding sermons in an abandoned gas station. He takes up serpents and praises the Lord for his blighted white eye, proof of his divinity and key to his hold over the community, Wren, and her mother.

But over the course of one summer, a miracle performed by Wren’s father quickly turns to tragedy. As the order of her world begins to shatter, Wren must uncover the truth of her father’s mysterious legend and her mother’s harrowing history and complex bond with her best friend. And with that newfound knowledge, Wren can imagine a different future for herself than she has been told to expect.

Rich with epic love and epic loss, and diving deep into a world that is often forgotten but still part of America, Shiner reveals the hidden story behind two generations’ worth of Appalachian heartbreak and resolve. Amy Jo Burns brings us a smoldering, taut debut novel about modern female myth-making in a land of men-and one young girl who must ultimately open her eyes.

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Organ Meats: A Nove

Read: November 2023

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Organ Meats: A Novel

by K-Ming Chang

I recently started reading ‘Organ Meats: A Novel‘ by K-Ming Chang. The story follows the journey of two best friends, Anita and Rainie, who find solace under the shade of an old sycamore tree and some stray dogs. The tree is believed to have the power to communicate with humans. As the girls explore their surroundings, they discover they are connected to a long line of dog-headed women and woman-headed dogs.

Anita convinces Rainie to become a dog like her, and they tie red string collars around their necks to symbolize their bond. However, their friendship is tested when they separate, and Anita enters a dream world. As Anita’s physical body begins to decay, Rainie takes it upon herself to rebuild her friend’s body and save her from being lost forever.

The story is filled with ghosts and vivid descriptions of the human body, portraying the beauty and horror of intimacy, all written in K-Ming Chang’s unique poetic style.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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