Breathing to Stay Alive

Breathing to Stay Alive

Estimated reading time: 1 minute, 39 seconds

Jan, the love of my lifeFortunately, the autonomic nervous system, which controls breathing, continued to work after Jan died.

However, I was never sure it would without reminding my lungs to breathe oxygen into my body.

In the initial weeks without Jan, my life was squeezed by the grief vise, and reminding myself to breathe was crucial if I continued to live.

Every day was a struggle. As Michaela, the protagonist of Breathe by Joyce Carol Oates, says,

In the grip of the grief vise: all that you will do, all that you even imagine doing, will require much more effort… Hardly daring to breathe for the grief vise will tighten around your chest, squeezing the very air out of your lungs.

Now I let the autonomic nervous system control my breathing, despite the grief of a husband mourning the love of his life.

Day by day, I grow stronger and regain my self-confidence.

  • I write daily about Jan, my love for her, my grief, my faith, and my life.
  • I take morning walks and evening strolls.
  • I read more than ever.
  • I help other widows, volunteer, and serve on a few boards.

These self-help steps have begun if only vaguely,  to outline who I might become.

Who I will be without Jan is still a work in progress, but now I can take a deep breath and exhale the demons in my soul. At a minimum, I am no longer the empty shell I was when Jan died.

Knowing that Jan is still with me and always will be, confirms that our love will never die.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Breathing to Stay Alive
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Study for Obedience

Read: August 2023

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Study for Obedience

by Sarah Bernstein

Today I began reading “Study for Obedience” by Sarah Bernstein. With a robust and lyrical voice, Bernstein thoughtfully examines themes of complicity, power, displacement, and inheritance. “Study for Obedience” is a finely-tuned and unsettling novel that establishes Bernstein as one of the most exciting voices of her generation.

A woman moves to her forebears’ remote northern home to be a housekeeper for her brother, whose wife left him. After arriving, strange events occur bovine hysteria, a ewe’s death, a dog’s phantom pregnancy, and potato blight. Suspicion towards newcomers seems directed at her, and she feels threatened. The hostility grows, and she fears what might happen.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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When I'm Gone, Look for Me in the East

Read: January 2023

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When I’m Gone, Look for Me in the East

by Quan Barry

When I’m Gone, Look for Me in the East by Quan Barry is a luminous novel that moves across a windswept Mongolia as a pair of estranged twin brothers make a journey of duty, conflict, and renewed understanding. Since Jan died, I have been sharing her love and not looking for her, so this novel attracted me as it was a counter-narrative. Are our lives our own, or do we belong to something more significant?

When I’m Gone, Look for Me in the East is a stunningly far-flung examination of our struggle to retain our convictions and discover meaning in a fast-changing world, as well as a meditation on accepting what is.

Although I know only a limited amount about Buddhism and even less about Mongolia, I found When I’m Gone, Look for Me in the East a fascinating page-turner of a novel.

Coincidently, while en route to see Memorial, we stopped to eat at a Mexican-Peruvian restaurant on Tenth Avenue in NYC. On the television was a continuous loop of a travelogue on Mongolia.

I found several quotes that I have used in other posts already.

  • “Sometimes faith is the only medicine available.”
  • “When the only hope is a boat and there is no boat, I will be the boat.”

I plan to use others in future posts.

Love never dies, and this quote echoed my belief.

“Love is neither created nor destroyed. It exists at all times and in all dimensions. Love is not something we create—it is something that wells up in us, like sap in a tree. It is an element in the fabric of the universe. Even on that distant day when sentient beings no longer exist, Love carries on. Perhaps our personal relationship to Love is impermanent, but Love itself is not.”

I highly recommend When I’m Gone, Look for Me in the East.

The Goodreads summary provides an overview,

Tasked with finding the reincarnation of a great lama somewhere in the vast Mongolian landscape, the young monk Chuluun seeks the help of his identical twin, Mun, who was recognized as a reincarnation himself as a child but has since renounced their once shared monastic life.

Harking back to her vivid and magical first novel set in Vietnam, Quan Barry carries us across a landscape as unforgiving as it is beautiful and culturally varied, from the stark Gobi Desert to the ancient capital of Chinggis Khan. As their country stretches before them, questions of the immortal soul, along with more earthly matters of love, sex, and brotherhood, haunt the twins, who can hear each other’s thoughts.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Read: September 2025

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Buckeye: A Novel

by Patrick Ryan

Buckeye: A Novel” by Patrick Ryan takes readers on a captivating journey through a single town, where the lives of two families intertwine amidst a life-altering secret. With its sweeping narrative and intimate moments, the story delves deeply into the human experience, offering rich insights and a warmth that resonates with anyone seeking love, goodness, and yearning for connection.

In Bonhomie, Ohio, a stolen moment of passion, sparked in the exuberant aftermath of the Allied victory in Europe, binds Cal Jenkins, a man wounded not in war but by his inability to serve in it, to Margaret Salt, a woman trying to obscure her past. Cal’s wife, Becky, possesses a spiritual gift: she is a seer who can conjure the dead, helping families reconnect with those they’ve lost. Margaret’s husband, Felix, is serving on a Navy cargo ship, out of harm’s way—until a telegram suggests that the unthinkable might have happened.

Later, as the country reconstructs in the postwar boom, a secret grows in Bonhomie—but nothing stays buried forever in a small town. Against the backdrop of some of the most transformative decades in modern America, the consequences of that long-ago encounter ripple through the next generation of both families, compelling them to reexamine who they thought they were and what the future might hold.


Patrick Ryan is the author of the story collections The Dream Life of Astronauts and Send Me. The Dream Life of Astronauts was named one of the Best Books of the Year by the St. Louis Times-Dispatch, Literary Hub, Refinery29, and Electric Literature, and it was also longlisted for The Story Prize.

His work has been featured in The Best American Short Stories and the anthology Tales of Two Cities, among other publications. Ryan is the former associate editor of Granta and currently serves as the editor-in-chief of One Story. He resides in New York City.



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The Faraway World

Read: January 2023

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The Faraway World: Stories

by Patricia Engel

The Faraway World: Stories by Patricia Engel was released six days ago. The Faraway World is an exquisite collection of ten haunting, award-winning short stories set across the Americas and linked by themes of migration, sacrifice, and moral compromise. I highly recommend this collection of short stories. All ten are ones I would read again. As Leigh Newman wrote in her review in the NYTimes, The Faraway World is “a collection about the Latin American diaspora.”

In addition, Leigh Newman described The Faraway World proves that Engel, like one of her characters, is capable of noticing “that between two people, a look reveals more than a fingerprint.” The first story in the collection, “Aida,” is about two twins, one of whom goes missing. Once I read this story, I could not stop until I had read all ten.

The stories are based in Cuba, Colombia, and the US. I know a few NJ settings that gave more meaning to these stories. I felt like I was in Cuba and Colombia, which I had never visited.

NPR interviewed Patricia Engel. She described how she wrote the stories.

They came to me at different points when I was thinking about other things. But of course, they are connected by this – the motivating force for change, desire, and the ever-changing conditions of identity and movements and changing geography and landscape and diaspora. Those are things that I explore in all my writing, and it’s something that I explore in my life. So, of course, it permeates my stories.


The Goodreads summary provides an overview,

Two Colombian ex-pats meet as strangers on the rainy streets of New York City, both burdened with traumatic pasts. In Cuba, a woman discovers her deceased brother’s bones have been stolen, and the love of her life returns from Ecuador for a one-night visit. A cash-strapped couple hustles in Miami to life-altering ends.

The Faraway World is a collection of arresting stories from The New York Times bestselling author of Infinite Country, Patricia Engel, “a gifted storyteller whose writing shines even in the darkest corners” (The Washington Post). Intimate and panoramic, these stories bring to life the liminality of regret, the vibrancy of the community, and the epic deeds and quiet moments of love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The missing hours

Read: February 2022

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The Missing Hours

by Julia Dahl

The Missing Hours by Julia Dahl is a novel I chose to read as I was looking for something different from the recent books I have read, and a fellow reader recommended this one. The Missing Hours is a novel about obsession, privilege, and the explosive consequences of one violent act. Like a bomb exploding, the ripple effects of the novel’s primary event impact the victim and her family, friends, and the larger community.

A trigger warning to all readers, the violent act in the novel is a sexual assault that is filmed and shared. Claudia, the victim, has no memory initially of what happened. She had been drinking and wearing clothes that she liked to wear. None of her choices is an excuse for those who victimized her.

She cannot remember what happened until a friend receives the video.

Being wealthy and social media savvy, she is aware that reporting the assault before or after the video is released would only allow her to be re-victimized. Her choices and how she seeks to secure justice make this a book I enjoyed and highly recommended.

This is the Goodreads overview.

From a distance, Claudia Castro has it all: a famous family, a trust fund, thousands of Instagram followers, and a spot in NYU’s first-year class. But look closer, and things are messier: her parents are separating, she’s just been humiliated by a sleazy documentary, and her sister is about to have a baby with a man she barely knows.

Claudia starts the school year resolved to find a path toward something positive, maybe even meaningful – and then, one drunken night, everything changes. Reeling, her memory hazy, Claudia cuts herself off from her family, seeking solace in a new friendship. But when the rest of school comes back from spring break, Claudia is missing.

Suddenly, the whole city is trying to piece together the hours of that terrible night.

From the critically acclaimed author of Invisible City and Conviction, The Missing Hours is a novel about obsession, privilege, and the explosive consequences of one violent act.

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Neighbors and Other Stories

Read: February 2024

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Neighbors and Other Stories

by Diane Oliver

Today, I began reading Diane Oliver‘s Neighbors and Other Stories. It’s a powerful and eerie debut collection of stories that portrays the struggles of different characters as they face the everyday dangers of racism during the Jim Crow era. The book features an introduction by Tayari Jones.

Diane Oliver is an important yet often overlooked figure in African American literature of the 20th century. She was a gifted writer, ahead of her time, whose talent was cut short by her untimely death at 22 in 1966. Nevertheless, she left behind a remarkable collection of crisply written and often chilling tales that delve into race and racism in America during the 1950s and 60s. Oliver’s insightful stories remain relevant today; this is the only existing collection of her works. She has rightfully earned her place in the literary canon as a masterful storyteller.

The passage below describes several short stories with different themes. The first story, “The Closet on the Top Floor,” tells the story of Winifred, the first Black student in a newly integrated college. In this story, Winifred begins to disappear, creating a nightmarish scenario. The second story is titled “Mint Juleps not Served Here.” It’s about a couple who live deep in a forest with their son. They will go to bloody lengths to protect him from any danger. The third story, “Spiders Cry without Tears,” features a couple named Meg and Walt. They must confront prejudices and strains of interracial and extramarital love. Finally, the last story is the titular one, and it’s a high-tension narrative that follows a nervous older sister the night before her younger brother is set to desegregate his school.

These are powerful and personal depictions of African American families everyday struggles and moments of distress, illustrating how they utilize their abilities to overcome challenges. “Neighbors” is an enthralling compilation and a valuable historical and social document, displaying the remarkable literary skills of a previously overlooked author.

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