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Learning From Grief

Estimated reading time: 16 minutes, 33 seconds
Visiting Jan During COVID

Visiting Jan During COVID

Caregiver or Griever

As I reflect on my journey of caregiving and grieving, I wonder when precisely one transitions from the role of a caregiver to a griever. Does it happen when hospice care begins or after the funeral services are over? Although I am not an expert, I understand this question has no clear-cut answer. For me, the turning point came three years ago when we informed my wife, Jan, that she had only a few weeks left to live and would need hospice care. From that moment on, I found myself looking at my wedding ring and twisting it around my finger, imagining what life would be like without her.

Welcome by Richard W. Brown
Photo courtesy of Neeru and Asish Patel.

As an ordinary person, I have been struggling with a deep sense of loss for three years. It has left me feeling angry, sorrowful, and grieving. Initially, I was not interested in learning anything from my grief journey. However, I turned to the teachings of the Torah for solace. I have used my ears to listen, arms to embrace, and feet to walk into the future. One day at a time, I have opened myself up to the lessons my grief offers.

When I lost my wife, I decided to face the intense emotions that followed. Instead of getting lost in the overwhelming waves of grief, I chose to embrace them and listen carefully to what they had to say. Though it was a challenging experience, I found the courage to move forward and learn more about myself and the world around me. As a result, I gained a greater appreciation for my resilience and growth potential as I navigated the world alone.

Every day was a struggle, and I found myself constantly dwelling on the days leading up to her passing. However, as time passed, I began to shift my focus away from the pain and towards the positive aspects of our relationship. She is no longer with me, but Jan’s love has transformed my life. She helped me become a better person, and her memory continues to inspire me today. Before she passed, Jan left me with some invaluable advice – to embrace life, to not be consumed by grief, and to find love again. Those words have stayed with me, and I have found solace in knowing that Jan would want me to continue living my life to the fullest.

We typically rely on GPS to guide us and track our progress when embarking on a journey. However, there are no guide markers for those who are grieving. It can be challenging to know how to navigate the complex emotions and uncertainties that come with loss. Recently, I shared my Three Birthday Blessings with Danny, a dear friend who has unwavering support throughout my journey as a widow.

In response, he took the time to provide me with a thoughtful and comprehensive overview of my experiences thus far, helping me to gain a deeper understanding of my personal growth and progress and offering valuable insights for the road ahead.

You are an incredible person! You are a new person! A better person! Although not here physically, Jan has done so much for you!”

Danny

I am grappling with whether I have undergone a significant transformation and become a new person. Despite my doubts, I have been surprised by the number of friends who have reached out to me to say that I am a source of inspiration to them. These comments have been both humbling and gratifying, as I consider myself an ordinary person who is simply doing his best to deal with the profound grief that has come my way.

Despite my challenges, I remain committed to moving forward and taking each day. I believe that no matter what life throws our way, we can shape our destiny and create a meaningful and fulfilling life.

As I contemplate my journey, I am amazed by the potential that my experiences possess to assist others who might be struggling with loss and grief. By sharing my story and the lessons I have learned, I aspire to extend hope and support to those on the path to recovery. May my experiences serve as a ray of hope to others, illuminating their way through the darkest times.

If you liked this post, you should read Help Me Help, Jan, written a year ago, or A Day of Fear and Hope.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Salvage the Bones: A Novel

Read: September 2024

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Salvage the Bones: A Novel

by Jesmyn Ward

I’ve started reading “Salvage the Bones: A Novel” by Jesmyn Ward, a two-time National Book Award winner and author of “Sing, Unburied, Sing.” The book delivers a gritty yet tender story about family and poverty in the days leading up to Hurricane Katrina. Hurricane Helene’s devastation makes it the perfect time to read this book. The novel is among The New York Times’ 100 Best Books of the 21st Century.

The story is set in Bois Sauvage, Mississippi, where a hurricane is building over the Gulf of Mexico, threatening the city. Esch’s father is growing concerned, although he is often absent and a heavy drinker. Esch and her three brothers are stocking food, but there is little to save. Esch, who is fourteen, is pregnant and struggling to keep down the little food she gets. Her brother Skeetah is trying to care for his pit bull’s new litter, which is dying one by one. Meanwhile, brothers Randall and Junior struggle with family dynamics and lack parental guidance.

As the twelve days that make up the novel’s framework yield their dramatic conclusion, this unforgettable family – motherless children sacrificing for one another, protecting and nurturing where love is scarce – pulls itself up to face another day. The novel is a big-hearted story about familial love and community against all odds, offering a wrenching look at the lonesome, brutal, and restrictive realities of rural poverty. “Salvage the Bones” is a revelatory, honest, and poignant exploration of social issues, filled with poetry and emotional depth.

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The Essential Hamilton: Letters & Other Writings: A Library of America Special Publication

Read: February 2019

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The Essential Hamilton: Letters & Other Writings

by Edited by Joanne B. Freeman

The Essential Hamilton: Letters & Other Writings, edited by Joanne B. Freeman, Professor of History and American Studies at Yale University, is a must-read in our times when a constitutional crisis is the watchword of our day. Compared to reading all 27 volumes of Hamilton’s writings, this book provides the essential texts that offer a clear understanding of both the revolutionary era, the debates over the constitution, Hamilton’s impact as Secretary of the Treasury, and his downfall and eventual downfall death in Weehawken.

Professor Freeman’s introductions and chronology help place the writings into a historical context.

The Essential Hamilton is one of four books that I purchased after my first One Day University class.

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We Were Eight Years in Power

Read: September 2020

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We Were Eight Years in Power

by Ta-Nehisi Coates

We Were Eight Years in Power by Ta-Nehisi Coates is a collection featuring the landmark essay The Case for Reparations he wrote for The Atlantic. Even though I am a subscriber to The Atlantic and have read many of the pieces, this is a must-read book as it reflects on race, Barack Obama’s presidency, and its jarring aftermath, including the election of Donald Trump.

We were eight years in power as the lament of Reconstruction-era black politicians as the American experiment in multiracial democracy ended with the return of white supremacist rule in the South. In this sweeping collection of new and selected essays, Ta-Nehisi Coates explores the tragic echoes of that history in our own time: the unprecedented election of a black president followed by a vicious backlash that fueled the election of the man Coates argues is America’s first white president.

But the story of these present-day eight years is not just about presidential politics. This book also examines the new voices, ideas, and movements for justice that emerged over this period and the effects of the persistent, haunting shadow of our nation’s old and unreconciled history. Coates powerfully examines the events of the Obama era from his intimate and revealing perspective:” the point of view of a young writer who begins the journey in an unemployment office in Harlem and ends it in the Oval Office, interviewing a president.

We Were Eight Years in Power features Coatesa’s iconic essays first published in The Atlantic, including Fear of a Black President, The Case for Reparations, and The Black Family in the Age of Mass Incarceration, along with eight fresh essays that revisit each year of the Obama administration through Coate’s own experiences, observations, and intellectual development, capped by a bracingly original assessment of the election that fully illuminated the tragedy of the Obama era. We Were Eight Years in Power is a vital account of modern America, from one of the definitive voices of this historic moment.

I recommend this book to all readers.

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Stories: The Collected Short Fiction

Read: March 2026

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Stories: The Collected Short Fiction

by Helen Garner

Stories: The Collected Short Fiction by Helen Garner, one of Australia’s most cherished writers, is featured as a Most Anticipated Book of the Year by The New Yorker. This collection presents a finely crafted assortment of short stories showcasing Garner’s “generous, category-defying imagination,” as noted by the New York Times Book Review. Helen Garner is best known for her frank, unsparing, and intricate portraits of Australian life.

A woman sends postcards from the beautiful Gold Coast to a former lover. A chorus of voices from her hometown gossips about a friend who has returned after going astray. A young girl discovers a hidden box filled with frightening secrets.

In Stories, you will find a collection of short fiction from a unique literary voice. These tales explore the complexities of love and longing, capturing the pain, darkness, and joy of life, all conveyed with Garner’s characteristic sharpness, honesty, and humor. Each story stands on its own as a perfect piece, but together they showcase the remarkable talent of a master of various literary forms.

Helen Garner is an accomplished writer known for her novels, short stories, screenplays, and non-fiction works. In 2006, she received the inaugural Melbourne Prize for Literature. A decade later, in 2016, she was honored with the prestigious Windham-Campbell Literature Prize for Non-Fiction. In 2019, she received the Australia Council Award for Lifetime Achievement in Literature.

Among her notable works are Monkey Grip, The Children’s Bach, Cosmo Cosmolino, The Spare Room, The First Stone, This House of Grief, and Everywhere I Look. Her diaries, titled Yellow Notebook, One Day I’ll Remember This, and How to End a Story, were published together as a single volume in the United States.

Discover your next favorite book and dive into a world of curated, exciting reads by purchasing through my links. You’ll have access to a diverse selection of books I’ve personally vetted for quality and enjoyment. Supporting these selections not only helps me continue to provide you with personalized recommendations but also ensures you have access to meaningful stories that enrich your life. Your support truly makes a difference in helping me share more books and insights with you!

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The Hero of This Book: A Novel

Read: November 2022

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The Hero of This Book: A Novel

by Elizabeth McCracken

The Hero of This Book: A Novel by Elizabeth McCracken is a searing examination of grief and renewal and a deeply felt relationship between a child and her parents. It is not a memoir but a remembrance of those we have lost. Ten months after her mother’s death, the narrator of The Hero of This Book takes a trip to London. The city was a favorite of her mother’s, and as the narrator wanders the streets, she reflects on her mother’s life and their relationship.

Thoughts of the past meld with questions of the future: Back in New England, the family home is now up for sale, its considerable contents already winnowed.

The following quote resonated with me.

I’ve always hated the notion, in life or in fiction, that the human personality is a puzzle to be solved, that we are a single flashback away from understanding why this person is cruel to her children, why that man has a dreamy, downcast look. A human being is not a lock and the past is not a key.

I highly recommend this book.

The Goodreads summary provides an overview,

The woman, a writer, recalls all that made her complicated mother extraordinary–her brilliant wit, her generosity, her unbelievable obstinacy, her sheer will to seize life despite physical difficulties–and finds herself wondering how her mother had endured. Even though she wants to respect her mother’s nearly pathological sense of privacy, the woman must come to terms with whether making a chronicle of this remarkable life constitutes an act of love or betrayal.

The Hero of This Book is a searing examination of grief and renewal and a deeply felt relationship between a child and her parents. What begins as a question of filial devotion ultimately becomes a lesson in what it means to write. At once comic and heartbreaking, with prose that delights at every turn, this is a novel of such piercing love and tenderness that we are reminded that art is what remains when all else falls away.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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